I have psoriatic arthritis which causes wide spread tendonitis basically everywhere. The medical term for it is enthesitis . I’d be surprised if yours wasn’t from some form of spondyloarthopathy...
Funny I just started the Primal Trust! I hope it helps you (and me) Mestinon really helps my POTs. Its the only thing keeping me functional and has very few side effects and is cheap. It increases...
Yes. Sent me a direct email you can see my email on my profile...
Can you describe your pain when it started? What did it feel like and where was it? Is it predominantly in your knees or does it migrate to other places? Is your lower back affected? Does it ever...
I dont want to say whether you have lyme or not. I do not know. I'm also sorry if I upset anyone on here because they've been gaslit enough. But the sad truth is that it's very difficult to know...
Hey Eric H. Long time nerve sufferer here. I can confirm that everything you are experiencing is tied back to neuropathy. A few points: 1.) You need an EMG and a nerve biopsy to confirm what type of...
I am prescribed mestinon, which increases acetylcholine, for my POTs (which causes bad brain fog). It definitely helps quite a bit w/ a POTs flare....
Small fiber neuropathy. Go on IVIG for sure. Nerves can heal quite a bit. 100% in some cases is hard but you can recover most of it....
sure do you have reddit? dm me at jkuhn89...
I have psoriatic arthritis which manifests as severe tendon and muscle pain. In a bad flare it could feel like my muslces were being ripped off the bone. There are probably some old posts on here of...
I second Runningwild's suggestion. Sjogrens is seronegative in about 50% of cases. The only dispositive way to confirm it is by lip biopsy. I estimate about 50-60% of people respond. It is a miracle...
I havent tried it yet, I keep meaning to, but some people w/ mitocondria issues are reporting benefits w/ SS-31 peptide. You can buy it from China. I havent done a deep dive on it but it seems to...
Peroneal nerve injury means you injured that specific nerve, which is a type of peripheral neuropathy. The peroneal nerve is a large fiber sensory-motor nerve that affects both pain sensation/feeling...
It means you have large fiber nerve damage. It won’t tell you the cause, although sometimes they can tell if it’s inflammatory/autoimmune. Unless it was caused by a known injury or some sort of...
I just checked out the integrative peptides product, I’m very skeptical. Oral capsule, highly doubt it’s bioavailable that way. Sounds gimmicky. You need IM injection. If you order from one of the...
I don’t see why there would be any contraindications. Completely different mechanisms...
I just ordered cerebrolysin and cortexin. Hoping it makes it past customs. May I ask where you ordered yours from? Curious about the best sources These are two great peptides for neuroinflammation....
Hi RW, and everyone. It's been a while. Garzie hello my friend, saw where you asked how I'm doing. RW, I think the shortness of breath is likely autonomic. I too have developed this, quite severely....
Hey all, long time but happened to see this post. I have used TB500 extensively. It is one of the safest peptides out there. It's the analog of TB4 which is naturally occuring in the body. It is...
I'm sorry youre dealing with this Astro. How low exactly are your IgGs? Sorry to ask and you dont have to answer, but do you have insurance? Reason I ask is IgG deficiency is something insurance...
Hey rainy, ah yes your message did go into spam lol! Just seeing it now. Thank you for the response! I did buy the mots-c but i have yet to try it, maybe will experiment with it soon. Will keep ya...
Hey rainy! Good to hear from you. I’m not sure I’m following, maybe our wires are crossed. But I’ll clarify what I meant. As you probably know, IVIG is literally other people’s antibodies. They pool...
Actually the IVIG antibodies do not, to my knowledge, cause any kind of thyroid issues. It's a good question, since you would expect that exactly what you outlined is what would happen. But I've...
Hey RW. I wouldnt worry about Hashi unless youre having a weird thyroid readings. As other's have poined out, IVIG often raises your TPO antibody titers. Mine are positive on IVIG....
I agree with garzie, the difference in the last 2 tests is very small,within the normal standard deviation from day to day in these tests. I would also say that IVIG drops your WBC significantly. I...
What is going on with your right knee and ankle? what are your overall symptoms?...
Where exactly is the pain and what does it feel like? You’re having pain in other areas too like your testicles, no?...
Agree with Garzie's overall points, although one thing I would add, having been through both SIBO and gastirtis separately. The functional medicine school of thought does seem to implicate low...
It's likely interstitial cystitis. Do pelvic floor exercises (kegels) and buy some prelief...
Hey mark, I knew a lot about nerves back then and what causes them to degenerate, but in hindsight I did not know much about how to heal them. My nerve journey has not been fun. Mine is autoimmune...
Hey sdarrah, I did make some minor improvements initially, and felt I was on the road to healing myself, but unfortunately it didn’t last. I went deep down the rabbit hole on healthy eating, positive...
If you recall I was at the spero clinic in Arkansas for 3m They use the ARP and sanexas. You use them daily. Unfortunately will run you like $40k for 3m The ARP really is a cool machine. If I could...
If you want to microdose there is a company I'd highly recommend. Very professional and high quality product. Comes mixed with some lion's mane in capsules to your door relatively quickly. Just make...
Not sure this is that weird tbh RW The punch biopsy is often negative early. Mine was in 2019, now I can barely feel my feet 😂🥺😂 Other possibility is that large fiber damage can cause burning as...
Yup, good memory Rainy. I've seen 3 n=1 cases of people developing alopecia while on TA1. Given alopecia is a t-cell disease, and TA1 modulates t-cells, it makes me too scared to try it. That being...
Good memory Garzie I did do hbot. I did a hard chamber medical grade HBOT at 2.0 atmospheres for 10 dives It did seem to help my arthritis quite a bit. It’s been much more mild ever since I did...
hi there, ARA-290 is a peptide injected subcutaneously. It's a tiny needle, very safe, and you literally dont feel it. I've yet to hear of a side effect from it....
Hi michael, I have autoimmune neuropathy, so i know your pain well. I'm convinced small fiber neuropathy is the most painful disease known to mankind. As you pointed out, it will make one contemplate...
Stay away like the plague. I was there for 3 months. it's going to cost you a lot more than they say it will, a lot...the owner katinka is $ hungry, and their success rate more like 15%, not 85%. Not...
I get my ivig through dr k The pharmacy sends the usual nsaid + Benadryl, which I think he ordered. I don’t get infusion headaches anymore so I don’t take them He never ordered iv steroids w my...
Go to a biological dentist and have them x ray the tooth. A root canal infection isn’t too hard to spot. Some drs are getting new 3D X-ray imaging to better see these infections, so do some research...
You can take as much b-12 as you want, its not toxic in large doses I actually started taking hydroxycobalamin IM shots 2 weeks ago. My b12 is always low. while it doesnt stop the autoimmune attack,...
Looks exactly like my bloodwork (super low WBC, just below normal RBC/platelets/hematocrit/hemoglobin), except for the high MCV. I've got UCTD w/ neuroapthy which is basically part of the...
Well when i see someone mention the heal/achilles tendon, and full body crepitus. Sounds just like psoriatic arthritis (or something in spondyloarthopathy family of diseases, theyre very hard to...
This is called crepitus. Do you have pain in other places or just feet/heels? Tendon pain? SI joint pain? Full body stiffness? Does anyone in your family have psoriasis?...
Study on the demethylation of Treg signature genes post vaccine (takes 3y to have full effect): https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8298580/ One thing I took from this paper was how real...
Yup, i was quite surprised by the fact that it seemed to work in mature T1D cases as well. My friend who tried the BCG vaccine actually has ME/CFS. He claims he's already feeling significantly...
Many of us had the BCG as kids, but seems like it's being used with some success in autoimmune and chronic infection. The benefits seem to be two-fold. Firstly, it appears to be able to increase...
I did 10 dives over the past month or so. 2.0 atmospheres in a hard chamber. Found a paper on pubmed about a case study where it put two patients with psoriatic arthritis, like I have, into...
These symptoms could fit a lot of things, but the symptoms and pattern match a pheocromocytoma. Rare tho, but figured I’d mention. Did they rule that out? Check your catecholamines?...