My pituitary hormones ( 5 to be exact) were all elevated. Im starting to think this might not be Lyme. I know what most are gonna say that Lyme can cause elevated pituitary hormones because it can...
Girlie, I will ask about the leucovorin. Also what labs should I get checked. The only labs I am getting is the regular safety labs. I hope I am prepared for the dapsone. My remaining symptoms are...
I have my next portion of the protocol. We are now targeting bart/persisters and a little bit of babesia. I will be on dapsone, rifabutin, azithromycin, cefuroxime, flagyl, and diflucan and coartem....
What has been the best antibiotic in your protocol? I mean like it made a night and day difference and you can surely attribute it to that antibiotic....
Last day - meaning after I had done the 6 months? I felt quite good - but I have lingering back pain plus short term memory isn’t good. I’m not sure if that’s what you’re asking me….[/quote] Yes...
GIrlie, how did you feel on the last day of the persisters protocol? Were you almost back to normal? When during the persisters protocol did you feel like it was turning around...
Im rooting for you Lymie24! I hope this next portion gets you back to 100%. I believe he prescribes dapsone which is an exciting drug that has been a game changer from what I've heard. Keep us updated...
Was around the time you took dapsone the turning point for you girlie? When did you notice that turning point?...
Has anyone done double dapsone from horowitz? the 8 week protocol. What was your experience? Also, is dapsone that great of a drug? Ive heard good things about it and if so im definitely looking...
Girlie, how are you feeling nowadays? back to normal?...
Thanks for all your responses, I read every one of them. I will of course be sticking with Dr J treatment because I definitely feel like I have improved but just concerned it may not take me the full...
Antibiotics and herbs are the only things that are proven to work. Honestly I don't see my self doing rife, bvt and stuff like that. I have to get on with my life. Im already skeptical of this...
Im worried that after Dr J protocol, I won't be completely well. What would the next steps be? Apparently Dr J has one of the best protocols, if he can't fix me then I doubt any other protocol will....
What does high complement c4a mean?...
why did they move?...
It hasn't gone away completely and honestly is still my most bothersome symptom. However, I believe it has gotten somewhat better. Hope that helps I really feel for you...
Its going decent. I definitely have improved a bit. I feel like im getting close to functional but I took coartem last week and I herxed like crazy. Seems to me is that I may be dealing with babesia...
Gotcha thanks Lyme24! Im hoping it goes away with time and treatment. How has your treatment been with Dr. J so far? Any improvements?...
Thank you everyone for the replies. I was more wondering did treating the infection resolve the pots so that other treatment for pots wasn't necessary. Im aware that there are pharm meds and salt and...
Has anyone here had severe POTS go away on its own within a few years of treatment? Im talking not being able to stand for 2-3 minutes severe. What has helped it go away completely. Im not interested...
On my last day of coartem and its kicking my butt. I haven't herxed like this in awhile. Does this mean I probably have babesia? Or does coartem target other infections? Did you guys feel better...
Are you continuing to improve after the herxes? Or do you feel like your backsliding? What percent would you give yourself now?...
My acth was extremely high but started coming down, my cortisol was always fine. What could this mean then?...
According to CDC,"There is no evidence that ticks spread Bartonella infection to people." It honestly bothers me that this forum goes against the CDC. We have people on this forum that are convinced...
All my cortisol values cam in normal, the 4 point, morning cortisol. All my hormones are fine except for the TSH...
Good luck girlie, it gives all of us hope especially those patients of Dr J that someone made it out successfully!...
My blood sugar spikes to 165 around 1 hour then is back to 145 after 2 hours. According to my doctor if the peak is higher than 140, you have pre diabetes. It just doesn't make sense, im not obese or...
I noticed after dinner, my blood glucose levels are going to the 150-160 range about an hour after I eat. This fits the criteria for pre diabetes. I generally have a fit body and have been exercising...
Are you supposed to take Enula on empty stomach? Also Lymie24, I believe bart is a main issue for me too. I did test positive for bart but not Babesia. I am also on my 2nd round of Babesia but I have...
Does anyone have experience with enula? Dr J prescribed me it. What does it treat and is it hard to take? Its 10 drops 2x a day...
anyone else have any experiences?...
Did you take coartem from dr j girlie? I had my appointment today and he added coartem and enula...
What are your experiences with coartem for babesia ?...
Has anyone done wet cupping for Lyme disease? What were your experiences?...
I do all the standard things compression garments, salt, hydration. The POTS is always bad whether im herxing or having a better day. I don't think I have Mcas but I've been doing binders for mold...
Ive been treating for over a year now and about 3 months with Dr. J. Although I've seen improvements, my POTS has been terrible. Is this a sign that it won't get better? I would expect that over the...
POTS is awful. I still have it severely and can't stand anywhere for more than 5 minutes. Many people say with treatment it improves, but I've been treating 1.5 years and haven't seen any...
If I were to go to Horowitz, would he be willing to give this short duration treatment? Although it is kinda extreme, its shorter in length...
I would love someone to try this and know their experience under the supervision of Horowitz. I hope it works for everyone. Does this study include all confections?...
I take Zyrtec everyday and vitamin c, im not sure it really helps with anything...
Walkingbyfaith, I have made progress since starting treatment about 1.25 years ago. Maybe 30-35% better on my best days. I do Herx but sometimes I never feel better afterwards. My igenex was positive...
Did it resolve?...
Which infection is most likely to cause dry eyes? Its one of my worst symptoms and I would love for it to resolve. Is it autoimmune? Is it bart? I have no clue...
Thank you Lymie24! Im rooting for you as much as I am for me! Hopefully in a year from now, we will both be in much better places....
Yea I was on the Buhner protocol for 6 months and didnt really notice a difference. Not sure if the Rawls will be any different. Hoping Dr J will give me my life back. Im eager to go on the...
Where can I find the full protocol?...
Has anyone successfully done Rawls protocol? What are your experiences with it? How long is the program that he gives?...
Agreed Lymie24, it just reassures me that people that have gone to the same doctor as me are getting better. Im thankful I believe I have been making improvements and I've been treating under 2...
trkane, did you improve at all with Dr J? How long ago did you do treatment with him...
Girlie, what percent would you say you were at when you got to maintenance? And what percent would you give yourself now?...