You’ve got a lot of good info on this thread in response to your question. I thought I’d throw in an article I read awhile back that always stuck with me and was the easiest way for me to understand...
Acarined how long have you been using hydrogen water? Just curious if it’s effects are long term. My dr recommended the tablets to me and I’m planning to try them. Just don’t want to waste more money...
I just wanted to say your definitely not alone in feeling this way. I’ve struggled a lot recently with having to quit a treatment that wasn’t working for me and take a break. I went back to my...
Hi Alex, I’m sorry you are struggling the mood symptoms can sometimes be harder to deal with that the physical. I’m glad that your other symptoms are gone that is a good sign. Bartonella is usually...
Thanks everyone. Definitely some interesting take aways here. And had not heard about the kidney issues that is good to know. Id been on hottyunia for long periods of time in the past had a couple...
Hi everyone, I was curious what others experiences were with hottyunia. My doctor started me on it to help with healing my gut due to yeast overgrowth. But I noticed right away it took away my OCD...
I had some improvement with midodrine. Didn’t fix the problem but it was enough of an improvement for me that it was worth it. Allowed me to be able to tolerate standing longer period of time. I...
acarined- Oh Thank you for this info it sounds very similar to me….my foggy brain isn’t understanding all of it completely right now lol but it sounded like a lot of my concerns. Going to reread...
Thanks guys@ jason2233 thank you, I will have to look deeper into some of your suggestions. I am taking several of those herbs and antibiotics so maybe I’m on the right track. I believe babesia is...
Hey everyone! I’ve still been struggling with significant POTS symptoms due to Lyme-babesia. I started on an antibiotic treatment protocol in sept haven’t seen any progress and normally I would say I...
Thanks rainy cloud 💜 My moods been all over the place! I think the agitation in my mind has been a lot worse harder to deal with. I think part of it is just feeling bad. And my startle reflex has...
Thank you both for the encouragement. Today has been better with my mood, I think your prayer helped! still having to really work on those negative thoughts creeping in. I’ll think back to the past...
Hey rainy cloud, I’ve still been struggling with my mood especially depression. A lot of negative thoughts coming at me and it’s been hard to combat them with the flares from the treatment. I just...
So glad to hear that! Any little progress is a relief esp sleep. I think the charcoal will be a great help to you. I’m glad one of your doctors felt like it was a good plan. Getting rid of those...
I think it’s great you are searching for answers. I know it must have been so frustrating and scary to be doing so well and have the rug pulled out from under you in such a drastic way. This whole...
Hi Forest, I’m sorry for what you are going through. For me the mental symptoms of panic attacks, anxiety, depression, random crying spells, suicidal thoughts can be even more debilitating than...
So sorry to hear that, sending prayers. This is a good reminder and thoughts to keep in mind. This disease is so all consuming makes it hard to not isolate from others. I’m glad they had you for...
Thanks everyone, these were very helpful. Rainycloud-thank you for sharing although I’m sorry you have similar thoughts it is nice to know I’m not alone in that. Bailey- thank you for sharing that’s...
Hi everyone, have been feeling really worn down with treating Lyme and co. It sometimes feels never ending and I almost feel numb to everything. I guess detached bc although I started with a new...
Hi Forest, I’m so sorry you are struggling so much right now. I think like others have said if possible make ever attempt to have a mold free environment. And detox and diet are such an important...
I recently started a new prescription med called dronabinol 2.5 mg can up taken as need up to 3x a day. It is typically used for patients on chemotherapy to treat nausea. I’ve only been using about a...
It is such a disturbing symptom I’m yet to find the right answer but for me if I talk to my fiancé or my sisters and talk about feeling the depersonalization it helps a little but I only tell it to...
That’s a good question. I definitely avoid talking about my symptoms with anyone I don’t know on a close personal level. I’ve found it’s safer to talk about my symptoms in depth with my friends who...
Cignet, I feel like I’ve journaled your same thoughts of frustration so many times. It can get very hard to stay hopeful and there are so many ups and downs. Coffeholic made some good suggestions if...
@astroman I’m glad your able to add something back in! That’s always a good feeling. I avoided dairy for years but over time I realized I could tolerate goats cheese and sheep’s cheese. Apparently...
So sorry to hear about your daughter struggling so bad. What treatment is she on if you don’t mind me asking? Definitely could be adrenals like others have said. Will she drink any kind of smoothies...
Yes, that exact feeling so many times. There’s been so many ups and downs. I would have a day of feeling good and want to clean the whole house and make all these plans and start thinking about what...
Have you been to a cardiologist just to get checked out for the high heart rate symptoms? You mentioned the vaccine did this start before the vaccine. I know a couple coworkers and family that had...
My LLMD recommended against it bc I’ve been in a relapse and my immune system likely would not handle it well. The new LLMD I’m seeing also was open to either way but leaned more that it wouldn’t be...
Yes full moons seem to always flare me up. It’s terrible I’ve heard different things in the past but of course now I can’t seem to remember….ugh brain fog. Would be interesting to hear if anyone...
@borrelioburgdorferii yes, emotional lability explains it perfectly. I feel like I’ve gotten a little better at controlling it but it’s very difficult. I do use CBD at night with melatonin and it...
@lymegirly, I’ve never thought about a cold shower lol but I might have to try it. I do try to always have ocean sounds playing at night. I had an appt with my counselor yesterday and it really helps...
Thanks @lymegirly I will try that I take burbur and pinella in morning and evening but not during the day. Maybe throughout the day will help more. It’s definitely been hard and having a lot of...
@runningwild- thanks that helps me not feel as crazy. It is such a scary feeling. I definitely have felt similar to that out of body feeling where you don’t feel in control of yourself and on...
I’ve really been struggling with depersonalization it’s been getting almost unbearable the past few days. I feel like I’m losing my mind…again. I also feel extremely irritable and a lot of muscle...
Running wild, Sorry to hear you are struggling so much. I know for me thrush (yeast) can really ramp up the anxiety/depression symptoms. I don’t know with your kidney problems how much your limited...
I thought I’d share something I was excited and shocked to see on my local news in southwestern VA. I normally don’t watch the news but my grandma told me they were having a segment on Lyme so I...
Thanks for the suggestions everyone. I’ll definitely look into that supplement I’ve never heard of lions mane mushroom. Being outside more when I can this week has helped some. Trying to do little...
No, I haven’t had any recent testing done. Are there any affordable tests you know of that I could test my apartment? I remember doing one test on my old apt years ago but I can’t remember what I...
Thanks! I’ll check that out...
I’ve been really struggling esp the last couple weeks with getting a handle on my anxiety and depression. I had a bad relapse several months back and it’s been a hard pill to swallow. Thankfully I’ve...
Hi disillusioned, I can so relate to how your feeling. Feeling like your in a constant fog and stuck in a continuous cycle with no way out. I’m 29 and have been struggling at around 10 years as well....
Thanks everyone for the suggestions! I will definitely look into some of your suggestions saraeli...that’s definitely a lot of good info I’ll look into! I’ve been trying some yoga poses from YouTube...
Hi everyone, I haven’t posted in awhile. I was making a lot of progress for a couple years with my Lyme/babesia/bartonella, MCAS dx since around sept I’ve slowly been relapsing POTS symptoms began to...
Thank you Denise! I have been doing epsom salt bath several times a week. It’s definately helping hopefully it will continue to help with the mental symptoms....
Thank you, I have been taking 10-15 drops of neuro antiox before the lymogen. Is the neuro antiox something that can be taken to help with herxing? Or is it just taken before the lymogen?...
Thanks so much deejavu...I started the lymogen just 5 drops bc I usually herx easily with too much. It’s already made an incredible difference with my mood just feeling very exhausted and head...
It’s definitely the bartonella. I took lymogen which is an herbal treatment for Lyme and after 2 doses I felt much clearer mentally. My psychiatrist thinks my symptoms are bipolar but I really think...
Has anyone had experience with these 2 products from Jernigan? I’m thinking of trying them but not sure what dosage to start out with. I’m recently off all antibiotics and on a homeopathic regemine...
Thanks everyone for the replies some good suggestions for me. I don’t have a follow up with my llmd until the end of the month but hoping she can give me more insight. Goshawk I’m not on antibiotics...