Vinzor LIVE your life. if she knows your struggles, she can take a more informed choice on what she wants to do, if she is OK with it then go for it. Life is way too short as we have seen. I don't...
Thank you Wisco I refuse to seclude myself and use this disease as a "lifestyle" but at the same time it's really taking a toll. I fear my better days are well behind me. I told my therapist it seems...
Received my mycotoxin results from Real Time Labs, my LLMD doesn't seem too concerned and told me about binders but my family is worried and ME? I can't calm down. One more damn thing after another....
Girlie that doesn't frighten me. Go on and delete me. I already sent you a PM. Some members on here are mentally unwell and let lyme control their lives and sit on these forums for hours and are...
No I won't Girlie. I do not care if you are a moderator or not. You're not above any of us, sorry. You said to MN " you pointing at me?" That sounded quote confrontational. Why don't you re-read what...
Girlie what's your problem? No really...CHILL OUT. Oh and by the way I saw that comment you said to that other member about you being upset that she wished she was 90% better, what was that? What is...
Girlie you don't need to clarify and quote what he said....I know what he said. I'm not looking for a fight. I'm stating what I infact read....
No you Said *many* of us will need to treat forever and won't go into remission...
Not constant day to day treatment, some do get into remission and are fine. Others it may be more than just LD/Co's. Maybe some need to treat forever but not most. I could careless what Dr H says in...
Also medical nerd I believe the "established medical community" probably sees us as victims to these LLMDs with the very unorthodox ways they treat LD and the $ they charge with alot of us getting...
I'm not going to say much since I've never seen Dr. P but it could be ( like some llmds) he's burnt out? It can take a toll on these doctors emotionally when they know how much we and our families...
Thanks for that negative spewing tickbite666. Thanks for making us feel so much better and add hope to our future NOT!...
Welcome home (sorry lol coming home stinks I know!). Glad you had a wonderful vacation and congrats on your son's engagement!...
Not all LLMDs are like this just FYI. Please don't knock *most* LLMDs as quacks. My first one wasn't a good fit for me. I now have a new LLMD whom I adore. Praying she'll help me really turn a...
The last few exams and cultures I've been normal. Is in a way this doesn't surprise me that this time again things are neg. It always seems right after my period. I don't know anymore....my body and...
Is this doctor in Connecticut? No I've never seen them however I believe I know who you are talking about. I've seen a post about this doctor before and their hefty fee....
So doc said most likely is Bacterial vaginosis. She called in the script anyway ( gel insert) and I've been using it the last 2 nights. She just called to say my BV and yeast results are normal. Wtf....
That's great that it seems like a very inclusive environment! My department is like that too. I'm afraid being promoted I'll be working from home because lol I really like the in-person working....
Lol the deodorant sure as heck ain't preventing me from sweating thats for sure. Thanks for feedback...
Hi! I am very proud of you. After being on SSDI for almost 10 yrs i went back to work. I graduated from college and this was my first real "career" job. Scared? You bet I was. I was at my worst with...
And no it doesn't burn, itch etc. I don't even know it's there until I look in mirror. Sorry neglected to mention that....
Hey WBF, It's Dove deodorant. Turns out the " straie" was from part of my tank too rubbing, lol. I sweat alot now and since using the aluminum free I do have alot of body pit odor. I never had this...
Haha I know but I really should shave lol... all joking aside though I'm just too tired. We've all been there though esp women. The weather here in Mass hasn't been nice, very unseasonably cool but...
I'm hoping it's not from the aluminum-free deodorant. Crazy I say that huh? At least with a herx rash I'd know I'm killing and hitting stuff which is a good thing. My llmd believes it's a rash too...
https://ibb.co/C0xYRnt Is this a herxing lyme rash? Sorry about the hairy pits ( really I know its bad). I sent an email with this picture to my Llmd. Oddly enough when I use aluminum free deodorant...
Saraeli thanks. Lovely I know right, lol. I was going to email my LLMD as well, she's great and very quick responding. This isn't unfortunately my first "rodeo" with yeast and BV infections. Even...
My new LLMD wanted me to redo my mycotoxin urine test with Real Time Labs. About 6 months ago I did one through Great Plains with my former LLMD with not much flagged. I just want to get this...
Thank you 💚...
I decided to go back into treatment with much encouragement. I ask that my boundaries and choices be respected and honored. I still will not be sharing my treatment protocol publicly. I do NOT want...
It just got to be too much. I even had my therapist tell me to only come on these sites minimally because it can bring on more stress ( and no she's NOT knocking my chronic lyme)....
Regular blood tests are up. Negative for M. Peaumonia and C. Peaumonia both IgM and IgG. Liver slightly elevated and IgA is high. Homocytine and Methyl normal....
Apparently my "protocol" that my new LLMD is doing with me isn't good and getting questioned by some seasoned veteran chronic Lyme, mold exposed, celiac, thyroid warrior "know it alls". I had hope...
I believe it's for parasites too. She ordered a TON of blood work (not just igenex) one of the blood tests I believe is for celiac as well. I haven't done those yet only did igenex the day of my...
I did Great Plains with my former LLMD about 6 months ago. My new LLMD wants me to redo my urine mycotoxin test with Real Time, she says they're more accurate and most physicians prefer. Ugh....
I am IgG Bartonella positive (B. Quintana). So many meds and supplements it's getting to be alot financially. $700 was taken out of my account yesterday from igenex now have to resubmit to insurance....
Girlie you're in healthcare too correct? We were mandated obviously. They were gonna mandate the booster too but at last minute said no. Very happy to hear you are feeling better! 😊...
Yes! Both regular doses of Phizer I was fine but when I got my booster in January definitely felt awful. I was in bed for 2 days with horrible body aches and chills, temp of almost 101 and I soaked...
Concord...
Hi guys! Yes it certainly did! I was so exhausted , long day and I stayed later at work to make up my hours. My head was cranking by the end. Alot of information but it was worth it! 💚...
Dr. B in Massachusetts. Am I allowed to do city/town?...
It went AWESOME! This LLMD is truly an angel. My appt was 3.5 hrs long! She believes my main issues are Bartonella , mycotoxins, yeast and possibly strep. She's helping as well with my...
My appt is in a few hours. Everything is all set, notes/my concerns/questions, lab results, complete medication history with now former LLMD. My records haven't come yet its been a month go...
My new LLMD appt is this Wednesday at 9am. You'd think the closer it was coming the more excited and hopeful I'd be. It's the exact opposite. Getting panic stricken, fearful and worried about what...
Glad you're OK as well WBF! 💕 Yes Bailey its crazy, but since changing the clocks forward recently getting darker later is great! Decorating the house for Easter/spring later. It's the little...
I live in Massachusetts and its been an up and down pattern weather wise, I guess you call that a typical New England spring haha! Last week it was over 75 degrees it was so awesome and now cold and...
Yes of course. Thankyou...
Yes I am happy about that. One HLA even being green esp. There are many different MTHFR ones, so I get very confused the list was long and on some I was green and yellow....
I can certainly send a pic of all of them later on. My thyroid ones were red as well....
HLA DRB1 Green HLA DPB2 Yellow HLA DQA2 Yellow HLA DRB1 rs9271366 Yellow HLA DRB1 rs9275596 Yellow MTHFD1 both Red These are just a few that caught my attention that I know ppl in the Lyme community...
Ok thank you 💚...