Congrats Garzie, your "official" coronation is well deserved. Congrats also on your continued health improvements....
Yep, Went to pickup a re-fill yesterday at CVS for Clarithromycin, that's been a tier 1 generic forever, and the cost went from zero dollars to $47.00 for a Tier 3 Rx. What gives. I declined pickup....
My LLMD told me to expect the worse herx reaction to IV Rocephin around the fourth week after starting this protocol. The extreme herx didn't happen to me, and progress was very slow over a 16 month...
Dr J had many ILADS trained LLMDs rotate thru his office for pediatric training. I believe S Nueber at Lyme Center Of New England did an internship. I don't know how to get more leads. Maybe ILADs...
eb, One more point on your banderol and samento dosages. Some people are very sensitive to dosage and its best to start slowly with one to five drops per day, then gradually ramp up to the dosage...
"I was tested and found to have Bartonella, EBV, Mycoplasma, Lyme, TBRF, mold, and possibly babesia." You need much more that Banderol and Samento, plus your ON/OFF use of Doxy to address these...
My LLMD told me that week 4 of IV Rocephin would cause a major herx reaction. It didn't for me, and progress was very slow over 16 months. Hang in there and take a break if necessary. Maybe pulse 4...
IV's should be used to treat only the most serious cases of Lyme Disease, or for people that cannot tolerate any oral antibiotics. Also make sure your Health Insurance plan will cover up to six...
I googled "small fiber neuropathy vs large fiber neuropathy" and came across this:...
Here's an interesting article I archived and came across today while looking for something else. The article is from an interview with Tim Jackson... here's the link followed by the critical info on...
lumbrokinase is one of the strongest biofilm busters where Lyme, Bart and Babs are protected. This caused a release of the infections and causes a flare in symptoms that may have reduced over your...
trkane, it probably will work to some extent on babs as well, but there are other preferred treatment like Mepron or artemisinin (sp?) that have better success rates. I was aware Plaq was also used...
Plaquenil was original prescribed for Lyme in combination with a macrolide class abx (zith, clarithromycin, etc) to improve cellular ph which increases abx efficacy. This is one of the original Donta...
Doesn't look like a very safe neighborhood being that close to the DC swamp at 1600 Penn Ave....
RC, I've been using a Sundown brand of Milk Thistle with Fennel, Dandelion Root, and Licorice for almost as long as I've been treating lyme and co's aggressively with abx. Liver AST and ALT have...
Traveler, Good to see you back. I agree with your comments on herbals and abx in combination are needed based in individual tolerance. Even Buhner recommended that abx was needed to support his...
Girlie, Brain fog and short term memory were some of my last sx to improve. But in my past few relapses it was neuro and shin bone pain, and fatigue that flared....
Hang in there Girlie.... Reducing the OFF weeks sounds like a good plan. I struggled with my pulse wean down schedule a few years back and could only get to 4 weeks OFF. Usually, Bart will flare back...
Wow.... what a thread! Just catching up on issues after an out of state wedding last weekend for my stepdaughter. Bart sucks, and CDC doesn't have a clue to even recognize it as a problem. IDSA...
Hey Astro, I had neem tucked away in my lyme file from years ago. Byron White included it in either his A-Bart or A-Babs formulars. I also think that Buhner covered it a bit in his books, but I've...
Good stuff astroman. One other easy thing to try is adding B12 to your supplements and get it tested. Low B12 levels, even within accepted range, can contribute to neuropathy symptoms....
your LLMD has a pretty good plan. Move ahead with his plan as soon as you can ramp up....
What other Rx's do you take with the MB?...
Treat Lyme and Babs first, then go after Bart. Babs treatment is 4 to 6 months minimum. Go back to see LLMD asap. godspeed...
I keep a bottle of "soft scrub w/ chlorine bleach" next to the toilet and apply it to the toilet brush to quickly clean the bowl just after flush and before the water is replenished. Yes, it's a...
Well said Garzie..... I haven't wasted too much of my treatment funds on testing and rely more on symptoms. Trouble is many of our symptoms overlap with many other bacterial, viral, and fungal...
MartinK stated above.... "@RainyCloud: I probably don't have Bart. No positive tests in last 7 years. I do MB in protocol for Lyme mainly. But one never knows when tests cannot be 100% trusted." I...
Total D3 count is also very beneficial for healing....
Almost through my second month on MB with Biaxin, Bactrim, and recently added lumbrokenase. Some sx improvings. How long should I stay on the MB?...
Early in my treatment I used Floristor to help control some severe diarrhea. It works the best for this treatment. Later I would use a cheaper generic sacc b for maintenance and rotate with my normal...
I just stumbled on a white paper on Disulfiram and Syncope. While I understand it is a very limited study, it helps confirm my connection with Disulfiram and my two episodes of syncopy resulting in...
I had read that Plaquenil was first prescribed along with Macrolide-class antibiotics (clarithromycin, zith, etc) to increasing cellular penetration by improving pH levels. I also heard that some...
Best way I've tried is stopping the ABX or herbal treatment to calm down the die-off, then ramp back up more slowly. Also take Alka-Seltza Gold to ease symptoms. The Gold formular i believe doesn't...
I vote for.... it is an impossible question to answer because every person is differrent and every tick is different. But given what you know now your treatment after a second bite will be much more...
I've read a few of his articles and seen some of his on-line talks. He is supposed to be pretty well respected in the NorthEast lyme community. He most likely has a full patient list and the office...
thanks. I did both doses Friday and again yesterday. I slept some Friday night and even better last night. I've used Serrapetase for a long time and would occasionally substitute with Lumbrokinase...
check out this site: https://www.ticklab.org/ I had a tick tested a few years ago. It was negative. I was still on heavy ABX at the time, so I'm surprised the tick lived....
Garzie, I had read that ramping up slow was recommended (maybe I read one of your earlier posts). But Infuserve filled the Rx as 50mg capsules, which will be harder to divide. Maybe I could take only...
years ago I read an article by Dr Tim Jackson that talked about old vs new infections and he says that there are caveats with the IgG and IgM antibodies. Might want to search for this as well. Here,...
I'm joined the Meth Blue protocol this week. After 4 months of Rifabutin, Bactrim, and Plaq with no significant progress, last month I suggested clarithro, MB or even going back on cipro to know down...
How did I miss that. 8*(...
Pioneering Lyme pediatrician Charles Ray Jones dies at age 93 https://www.lymedisease.org/charles-ray-jones-dies-at-age-93 2 days ago · Pioneering Lyme pediatrician Charles Ray Jones dies at age 93....
I think Dr J was just into his 90's....
I only said "some" will need treatment forever. My estimate is that is less than 5% of us. My reference was to Borriscanno , not Horowitz. I had been avoiding posting here for the past year to avoid...
Most regular PCP's get around $135 per visit from the insurance company. Your co-pay varies based on policy. Specialist get more $$ per visit. A typical office visit will last between 10 and 12...
MN, I never was a patient of Dr P. But, he was my first choice when I started treatment back in 2010. Got in to see Sam Donta instead, which was a much less driving distance given my condition. I...
Dr P is not a quack and has helped many many lyme patients get well. Like anywhere else, front office help is very difficult to find and retain. Also all this Covid tele-treatment crap has broken the...
Update from recent LLMD appointment. After stopping rifabutin from Bactrim/plaq combo, I added Doxy until I could get my cardiologist to approve Meth Blue and/or clarithromycin . After a week or so...
you could consider maybe taking tetracycline with the dsf to provide acne control....
Many of us with Lyme should have regular chiropractic adjustments. Lyme for some reason effects our alignments and need frequent adjustments. I'm overdue for a visit myself. Look for a Brimhall (sp?)...