Anyone experience breaking out on legs, arms back when herxing? Mine look like bunch mequito bites....
Walking by faith…hate you deal with being puffy so long. Mine is swollen on the eye lid all way to be eye brow…all around the eye. We have killed 4 misquitos in the house this week. They are...
Anyone have swollen eye when herxing?...
Anyone taking or have taken Tafenoquine? My LLDM wants to put me on this drug for 6 weeks to treat Babasia....
Wonder if any doctors, PA or NP followed Dr J? Dr J seemed to have helped the most people. From reading stories, he truly gave really ill people better life....
Bro123….I agree with you. I am so disappointed in our medical system. No one should suffer, regardless if the illness. I am beginning to believe viruses and bacteria are the cause of Lyme and many...
Sdarrah…I sure hope your situation changes for the better. When I try to walk, feels like I’m going against a very strong wind storm. Also, my knees and legs feel stiff....
Sdarrah…do you use a walker for your balance issues? I also had mold exposure most my life, 44 yrs young) at various levels. Our home was professionally sprayed to kill all mold and mold spores....
Quin… what happened to you when suppressing your Immune system long term?...
Thank you Garzie for the info. I just want be able to walk without a walker….look and be semi normal. This is why I was curious if anyone took MS medication and had success with symptoms since Lyme...
Has anyone been diagnosed w/ MS and taken MS medications…Lyme symptoms improved? Such as balance issues, memory and nerve tingling? If so, which medication did you take? I read on here some have...
Running wild…you got this!...
This is so sad. I watched couple his videos last year…he kept fighting for his patients....
Rainy Cloud—-keep us posted about using topical Ivermectin. I’m reading more and more about Ivermectin being a cure for 1,000s of illnesses. Could this be the key for us Lyme folks?!?!...
Lovefishing…did you notice any improvement when taking Ivermectin?...
Wisco Woman- sorry to hear you had difficult time taking Disulfiram. It is a very difficult drug to tolerate. Have you tried slowing coming off the drug? Took me 4 months get to 75 mg daily. My skin...
Sunflower1920- can’t see your pic. Bet it is from herxing. When I was on Disulfraim I got rash along ribs and under breasts. Wearing bra made worse. Coconut Oil helped a bit....
Hello again DcD-2103- hate to hear you have serve neuropathy. I will also read up on IVIG. I am clumsy, other issues are cognitive. Unable to work. I often get frustrated operating my phone. Memory...
DcD2103…ARA-290 you are referring to only an injected? Did you personally use this method? If so, how quickly did you notice a difference? What differences did you notice?...
DcD2103- thank you. I am reaching for anything that might help me walk without a walker. Thinking if I get inflammation down, maybe pressure that’s on a nerve control if my balance issues will help....
Anyone had success using Celebrex for nerve pain or better nerve function?...
So glad we all can share “TMI” stories…those are the areas we really need help. I found all natural deodorant, only 4 ingredients. Made in Texas, on Amazon. Magsol. It does pretty good. I did not...
Girlie: Running Wild made comment you caught potential problem early. Do you mind sharing more details of this situation? I want to know what to look for…I certainly don’t want more problems as my...
I noticed my sweat smells like Ammonia. Recent blood tests indicates Bun/Creatinine is 29 (high) others it was always 18 (normal). I’m on Dapsone. Anyone experience Ammonia smell? If so, what did you...
Running Wild…I find all this interesting that we are all so sick but yet we have to constantly look over the doctors shoulders. Recently I started looking closer at my lab reports. My LLMD keeps...
Thank you Girlie for all the additional information. I will keep an eye on my blood tests. Plan to do testing again in 2 weeks....
Girlie…thank you for explaining. Glad your kidneys are doing better!...
Girlie- what does gfr mean? I did not see it on the abrievation list. I’m also blonde! LoL...
Thank you Girlie for sharing....
Anyone had High Bun/Creatinine Ratio while taking Dapsone? If so, what did you do. I am having this issue and on 100mg per day of Dapsone. Thank you for any input....
I am also interested what others have to say about Rife. I never heard about this treatment. Bekah81: I bet your fatigued is coming from toxins dying off…same elements of other treatments. Please do...
Have a fun and relaxing trip!...
Trkane- what does “ox” mean? Interesting about you eating too many nuts and greens, thought that was good for you. I’m very curious b/c I do the same....
Walkingbyfaith -Thank you for sharing about the Knotweed. I am learning so much from everyone on here, truly takes a village. Wow, possibly Babesia since childhood, same here!...
Lymie24- currently on 100mg of Dapsone daily along with other meds (need do a signature like you and others). After 3 weeks at 100mg daily, weaker, hard to breath, increased fatigue. Blood test...
Thank you Girlie for sharing! Now I know if this happens to me to tough it out. Last place I want to go is hospital....
Girlie… How much were you able to recover from initial treatment....
Girlie… Do you mind explaining rough shape on Dapsone? How long did you take it?...
Thank you Garzie and Girlie…. We know it is the Dapsone. My dr had me stop Dapsone for 4 days to try help my RBS and Hemoglobin. O2 sat back up. I will ask him about the Methylene Blue and dosage....
Garzia: Noticed your response included “Immune Modulation via Ivermectin and LDN. What form of Ivermectin do you take? Pill or Paste? What is LDN? Thanks!...
Walkingbyfaith….curious why will you use Japanese Knotweed for life? What co-infections did you endure? I’m new and currently being treated. Trying to learn more as I’m finding out this disease is a...
Anyone used Oxygen while on Dapsone due to low Oxygen Saturation? If so, did the supplemental oxygen make you feel better? More energy, breath easier, etc. My RBC and Hemoglobin are low. Was put on...
I just found yesterday a discussion on Telegram, Dirt Road Discussions. This guy talks about using the paste. He got really sick from Lyme and co-infections. Started using Invermectin paste and now...
Girlie ...thanks for advice. I really don’t know why I have been taking really hot Detox baths (epson salt). Guess I assumed really hot bath is good like a Sauna. I drink about 50 oz of water while...
Does anyone’s headache get worse when taking hot Detox bath?...
Anyone use Ivermectin Paste to treat your Lyme/Co-infections? I read something recently about people using this method. Just curious if any of you have done the same. These people once feel all...
Saraeli- thank you for sharing your story and tips too. My balance issues started with a slight limp. Then noticed I was limping on the other side. Thought was odd, but maybe due to pain was worse on...
Forest, hope you are improving with hope and your health. I am new here, thought be great place for support and information. I will say a special prayer for you, truly mean it....
Anyone else using a walker? Have balance issues? Did you get better? If so, what did you do to improve? I’m 44 w/ Serve Neurological Lyme, Bart, Bas. Just started treatment. Seems I may have had this...