https://www.npr.org/sections/shots-health-news/2024/06/10/nx-s1-4992276/once-called-nantucket-fever-this-nasty-tick-borne-illness-is-on-the-rise ...
Noxon: My blood tests did come up abnormal fairly often, but a lot of it would come and go, and I was surprised at what showed up and what didn't. The white blood cell counts did change when I was...
White blood cell counts change during a Herx reaction, but this doesn't identify the specific pathogen. It shows that the immune system is reacting to something, but it could be anything....
The stench is really bad, and I suspect it is due to valproate. I noticed some neuro effects recently that felt like valproate even though I hadn't taken any for several months. I've noticed that the...
astroman: My T3, T4 and TSH were all in the normal range, and I didn't have any symptoms that would specifically indicate hypothyroidism (as distinct from adrenals, or something else. My adrenal...
MedicalNerd: You've mentioned adrenal problems before, so I'd suspect that again. Were you taking only sulfamethoxazole and azithromycin, or the trimethoprim/sulfamethoxazole combo?...
I've gotten the hot flashes and sweats, and my thyroid is fine. I generally attribute it to CYP3A4 breaking down testosterone and estradiol. When I had my hormone levels tested, the numbers were up...
This theory explains why I got clots from a Herxheimer reaction. If the bacteria were hiding in the endothelium, then the inflammation from the die-off would release clotting factors...
This article claims that long covid is associated with microclots. Do these patients really have Covid, or do they have Lyme or Bart? https://undark.org/2024/05/20/bad-blood-microclots-long-covid/ ...
Is that what I got? I have been sleeping that much. I tested positive for B. burgdorferi on the DNAConnexions PCR test, but it was a few years ago and back then they didn't distinguish the different...
Three weeks later, I am still herxing from this, and I haven't taken any more valtrex. Most of the bruises have gone away, but I still have some poor circulation in my fingers, which feel a bit...
Borrelia was found to be susceptible to several antiviral drugs in this screening: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4790293/ This seems to be a relatively unique vulnerability of...
Valproate is known to be active against several microorganisms, eg https://pubmed.ncbi.nlm.nih.gov/12755481/ https://pubmed.ncbi.nlm.nih.gov/34339265/ AFAIK no one has done a specific study on...
So as we all know, many common antibiotics such as amoxicillin or doxycycline will not cure Lyme disease. It just goes into a dormant (persister) state and then relapses when you stop the...
This can be due to low carnitine, which is often secondary to depleted vitamin C and B6 due to adrenals. You might want to look into that?...
I don't know what the difference is between petechiae and purpura, other than the size. I have in the past gotten a few of the red or purple spots, but not very many. Now I am just getting bruises....
I am getting bruises associated with borrelia herx. It looks a bit like thrombotic thrombocytopenic purpura, ie https://en.wikipedia.org/wiki/TTP_(disease) However, the bruising is only in areas...
I know the feeling with the herx. The vertigo is a bit unusual. It's not so much my ears, but the muscle aches make me feel unbalanced, as if someone is tugging on my arm or leg. I got that from...
No. I had images taken at the eye doctor, and was told that the retina looked fine, at least on the surface. They couldn't see anything wrong, but my vision was really messed up in that eye, certain...
Lyme disease (borrelia) did this to me. The bacteria would form cysts under the retina, and cause areas to be out of focus, or become especially light sensitive and have spots that looked like...
The dark urine and asparagus smell is very distinctive of bartonella die off. https://www.healingwell.com/community/default.aspx?f=30&m=4103513...
Lyme arthritis is a bit different from typical arthritis, as mentioned here: https://www.healingwell.com/community/default.aspx?f=30&m=4338204 For me, it did resolve with antimicrobials....
I tried rifampin and it didn't work for me, the bartonella infection was resistant to it. However, others have reported success with this drug. So rifampin may or may not work depending on what...
RobWireGuy: Yes, but my immune system is reacting very strongly to the die off (herx) so I actually need to reduce that a bit. Hydrocortisone is the right choice here....
I know you can't smell it, but a lot of other people can!! https://www.healingwell.com/community/default.aspx?f=30&m=4182332 https://www.healingwell.com/community/default.aspx?f=30&m=4148545&p=4 I...
Garzie: I do know what infection is causing what. Bartonella attacks the red blood cells, causing hemolysis and bilirubin, and I am not getting these symptoms. Also bartonella has a very distinctive...
Yes I did try treating possible babesia, but I found that the mepron just hit bartonella. I also ran into problems with low folate from malarone, but mepron was fine....
I am finding that as I kill off borrelia and break up the biofilm, the remaining bacteria seem to be more exposed and I get increasingly bad herxes from small doses of meds. One day last week, I took...
Some suggestions here https://old.reddit.com/r/Lyme/comments/1c30hqr/lyme_disease_forums/ ...
Omadacycline (Nuzyra) is very expensive, if you can even get it. It's unlikely to be any more effective on borrelia than any other tetracycline. It was designed to work around ribosomal changes and...
Low blood pressure?...
I decided that dapsone (and also disulfiram) was too risky for me. I did a different protocol which I recently summarized in this post:...
Yes, I found that the Herxheimer reaction showed a distinctive pattern on a complete blood count (CBC), typically with increased neutrophils and low eosinophils. The eosinophils aren't gone, but...
You might want to read this person's experience with dapsone https://www.healingwell.com/community/default.aspx?f=30&m=4334810 ...
Yes, research in vitro found that borrelia burgdorferi is vulnerable to several antiviral drugs https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4790293/ The good news is that valtrex can kill borrelia...
Lyme in particular seems to be susceptible to Valtrex. I herxed pretty bad from it. https://www.healingwell.com/community/default.aspx?f=30&m=4304866...
Bartonella is known to cause hemolysis and to affect VEGF, so there is an obvious risk there. Even though borrelia does not directly affect the blood in this way, the large aggregates that these...
I got symptoms of microclotting. Many bruises, and poor circulation that felt like I slept on my arm. People often blame bartonella for this, but I got it from borrelia too....
Yes, the test I had done was this one: https://requestatest.com/vitamin-b12-and-folates-testing The results came up borderline at 5.4 ng/mL, but I felt awful. When I had it re-done a month later it...
I tried many different treatments for Lyme. Over a dozen different things. Out of all the things I tried, two drugs made me herx the most, by far. These were sodium valproate (Depakote, Epilim) and...
I got low folate from malarone despite taking folate supplements. So I just stopped using malarone. I've taken mepron with no problems. I described my experience with malarone here:...
So, as you are aware, the Lyme arthritis is not like normal arthritis where the cartilage breaks down. Instead, the bacteria build up layers of calcified material that causes the joints to expand....
Someone posted about this on reddit https://old.reddit.com/r/Lyme/comments/1b7tj7x/turning_back_the_immune_clock_imatinib/ ...
An obituary was posted online, but people are saying it's fake. EDIT: Removed the link...
You get the prescription filled in the USA. Some general suggestions: Try using a non-insurance pharmacy such as blueberrypharmacy, they generally have better pricing. If you get the prescription...
None of this applies to Lyme treatment. All of the drugs that I took were generic and generally cheap. The only thing that was moderately expensive was atovaquone, and the price of that has come down...
The obvious suspicion is that it's infected. Does the knee pain flare up with herx?...
The swollen hands and feet is from borrelia, and oddly a lot of it was a lump on the top of my foot. I kept buying different shoes, now I have many shoes that are slightly different sizes. It has...
I am curious what treatment worked for you. I have found that treating these infections requires very specific combinations of antibiotics, and that just taking random abx usually doesn't work, so...
Clarithromycin did mess with my blood pressure a bit. Azithromycin doesn't have this problem, but there is still the risk that bartonella can be resistant to it. Some other suggestions on bartonella...