Thanks Garzie I listened to the whole interview between doctors Patterson and Horowitz. I have a layman's understanding of the cytokines and things such as VEGF. Immunology as a whole is way over my...
I'm listening to Dr. Patterson talk to Dr. Horowitz during this Lyme Summit talks and I'm wondering if anybody here has went down the Bruce Patterson path? It looks like there are two lab tests they...
Is her hypothyroidism adequately controlled? I see where that can be a risk factor for high triglycerides. High sugar or carb diet? Sleep apnea? Diabetes, Liver, or Kidney issues? "Some medications,...
I got super Lyme brain right now Garzie. Help me understand this finding. Is this saying that a person who is on a very low carb diet that is using fat for energy had a dramatic decrease in LDL from...
From my understanding he lives in North Carolina which is where he used to practice before his medical license was revoked. I though I had heard he lives in DC during the work week but his home is...
Speculating of course, but, I can't help but wonder if those that worked under him saw how precarious their employment situations were if their jobs depended on a 74 year old man's health. They would...
It'll be super fascinating to me who they get as a MD to supervise the practice. Will it be one of the big names in the Lyme world or perhaps a lesser known doctor?...
Thanks for the update. I'm confused about Rachel and Danielle. Are they trying to get the same office space Jemsek had or are they trying to secure a new office space in the same building as the old...
Thanks Garzie! Yeah, going from 100mg a day to 200mg is a big jump in the Disulfiram world. I have bee building up slow since Feburary. Started at 25mg every third day, then 25mg every other day,...
I meant to type that I was taking NAC twice a day for a long time. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8308327 Go to table 2 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4127955/ ...
One other thing I wanted to add, in reading about histamine intolerance, MCAS, etc I learned that a common antioxidant used in Lyme patients, NAC, reduces DAO. DAO is a digestive enzyme used in your...
Thanks everybody for the suggestions. Per my doctor I'm going to try low histamine diet, DAO before meals, histamine, HistaminX from Seeking Health, and H1 and H2 blockers. A few days ago I raised my...
Recently I had a bunch of blood work done through my LLMD. My plamsa histamine in my blood was nearly four and half times the cap of the reference range. 9.1 ng/dl when the top of the reference range...
I've been trying Soverign Labs Liposomal Colostrum for several weeks now based on my doctor's recommendation when I asked him about how I could improve gut health. I will say I like the way it tastes...
I'm back trying Disulfiram as that is the only therapy that has had a noticeable significant benefit for me in the past onc ein chronic stage. This time I started real slow, like 25mg every third...
Interesting! So one or more of the PAs/NPs could take over the business. An issue I see there is would one of them even want that? It's quite a change to go from employee to business owner. Taking...
Here is advice from Marty Ross's guide. https://www.treatlyme.net/guide/mitochondria-dysfunction-repair-lyme Other than methods already listed here my doctor has also advised NAD although I have not...
I took this years ago when reading your previous posts about it to try and help acid reflux and it worked great....
Without understanding all the intricacies it would seem a major hurdle could be that the clinic would need a MD to continue practice. All the PAs and NPs have to work under a MD's supervision. Would...
Lots of great suggestions. I will say I have been at this a long time and my experience has been that while lots of these "detox" methods do help, especially temporarily, I still herx badly during...
Got this message in an e-mail this morning: "Attention JSC patients, It has come to our attention that false information has been circulating regarding the status of Dr. Jemsek’s health. We assure...
Ugghhh I'm sorry that happened to you. I was prescribed a drug that had a super small chance of Steven-Johns syndrome and passed on taking it after I read up about that syndrome. I wasn't convinced...
According to the NHS the serious side effects if Cipro happen in less than 1 in 100 patients....
It's okay. There are no guarantees with this crazy disease! I have went back to my first LLMD. I am going to try Disulfiram again with him and maybe add on some additional things down the line such...
The response to antibiotics does seem all over the place. Personally, my response has been varied at different times of my journey. * My first antibiotic treatment was standard doxy in Jan 2016. I...
Oh, I agree. We are all human and have our days. I know Jemsek has been struggling with his health and I know he has went through much strife in his life with his daughter having cancer etc....
Hey Garzie, Yeah no problem. I have been sick a long time and my treatment before Jemsek is worth mentioning in relation to Jemsek so I'll go through that briefly. * Bit by tick in July 2015, had...
Yes, I had received an email from a month or two ago stating that Jemsek was taking time off due to what sounded like long COVID. However, to hear the whole practice has shut down is surprising due...
I have been a prior patient of JSC although I am not currently in treatment with them. I have received emails from them starting this past Monday and continuing today, Friday, that they are not...
Thanks Dude!...
This past weekend Dr. Liegner gave a presentation regarding his experience with Disulfiram. The first presentation is Dr. Liegner discussing his experience. Link below...
I've watched a bunch of her videos and am apart of the FB group she helped moderate. Her videos made learning fun. She was passionate about researching and helping convey information. I'm super sad...
I have found becoming chronically ill is akin to social death. I'm lucky that I was with my girlfriend, now wife, when I first became infected. I am lucky that we really loved each other before this...
I have noticed in the few anecdotes I've seen over the years is that those who get benefit from it seem to relapse down the line....
Garzie: Thanks for the reply. Yeah, I agree that progress can be incremental and it can be hard to notice day by day. I agree that tracking symptoms and how one is feeling day to day is a good idea....
For context, it has been over EIGHT years since I found a tick on the back of my knee that had probably been there for 24-48 hours. I became sick in coming months. Again, EIGHT YEARS AGO. lol. I've...
It's not called Methlyene Blue for nothing!...
One thing about the study that interests me is how did they measure dysbiosis or microbial diversity? As garzie pointed out nowhere close to all microbes in the gut can be measured so what does the...
This thread reminds me of the thread earlier this year when we discussing the usefulness, or perhaps uselessness, of probiotics especially after antibiotics. It's assumed probiotics are good after...
I've tried it several times. Every time I have tried it I never noticed anything of note. I had read how some people don't see results until 6+ months so I'm trying it again. I finished my first 3...
All of them. The side effects from the drugs plus the constant flaring/herxing is completely miserable....
If you use, or are willing to use Facebook, there are two bee venom for Lyme groups on there that probably have the most discussion and experience sharing....
Thanks for your response. Are there any good resources on how to get started making your own tinctures?...
I'm with you on the super sensitive issue. My sensitivity issues seemed to have worsened significantly over time. When I first began treating I could tolerate quite a bit....not so much anymore....
Garzie, informative post! Looking at your herb protocol. Are you saying that you are taking 6 droppers of JK a day, 4 for Gou Teng, 3 for Cordyceps, and so forth? If so, are you making your own...
I tried it as a supplement a couple years ago. Read something off hand about how it's not effective in supplement form. I'm not sure how accurate that claim was. I tried it a few times as broccoli...
Saccharomyces boulardii is supposed to compete against C diff bacteria. Many LLMDs will recommend it during abx treatment....
The cardiologist I saw two years ago had nothing really to say about my chronic tick borne illness (not that I was expecting him to say anything worthwhile), but, he was surprisingly receptive and...
I believe I have had this, but I associate it with illness symptoms. When I am not feeling well, e.g. very symptomatic, for days/weeks/months on in I will withdrawal instinctively. I compare it to a...
Sometimes, chronic illness can come with issues like reactivated viruses like Epstein-Barr. Some evidence exists that IV Vit C at high doses can decrease IGG and IGM EBV antibody levels....