I’m taking the oral drops. I had worked up to 8 drops a day but backed off after my stomach started getting irritated after taking it. I’m doing better with 4-5 drops. I think one drop is roughly 2mg...
Yes, I’ve done two hormone panels with ZRT. They are very pricey. I had one early 2021 and another early last year. But haven’t gotten another one done since experiencing this crazy low energy...
I have elevated thyroid antibodies but other thyroid numbers are good. I am avoiding gluten for this. I've had hormone panels done in the past that showed low cortisol and low hormones all around....
Hello everyone, I haven't been here in a long time as I joined several Lyme groups on FaceBook. IV Ozone therapy continues to be the game changer for me as I'm seeing substantial improvement in my...
Hello everyone, It's been a while since I've updated here. About a month ago, I completed 15 IV ozone treatments. The specific type of treatment I received is called MAH - they take some of your...
I get nightmares from melatonin, and also from B vitamins. I can take a methylated B complex supplement at breakfast, but if I take it at lunch I will have nightmares that night. I still have pretty...
A binder such as charcoal or bentonite clay may be helpful, but I’m not sure. Binders would help to ‘bind’ or absorb the stomach bug bacteria if that’s the culprit, but also help to get out other...
Thanks, Jerseyjill. I'm glad to hear it's doing something for you. What do you do for detoxing? Basic immune support/ binders? How often do you get the treatments?...
I've found a clinic that is about a two hour's drive away that offers IV MAH ozone therapy. It does not appear that they do 10-pass specifically, sounds more like 1 pass. It's $250 for each...
Update: Have hit another wall. Resting HR at night is elevated entire night. Intense fatigue and PEM, mental/emotional symptoms, worsened chronic symptoms (flu-like symptoms, aches, bad sore throat,...
Thanks Scroggins. I actually got the Toxic book and finished reading it a few days ago. I found it very helpful as I am one of those hyper-sensitive patients and have had a lot of trouble tolerating...
Thanks, saraeli. I have a bottle of TUDCA that I haven't tried yet. Hopefully I will be able to get on that soon....
I tried Osha Root extract for several weeks for immune support, and I think it is the cause of an allergic reaction I suffered during the time I was taking it. I took roughly 30 drops 2x day, unsure...
Thanks so all who recommended I read Dr. Neil Nathan's book 'Toxic'. Wow. It's been incredibly helpful and I'm learning a lot. I don't tolerate the regular doses of binders, and per his...
I did a little digging into Bella Hadid's story, apparently she's had it for 15 years and just recently completed 100 days of vigorous treatment. I saw the list of her symptoms and what she was...
Saraeli, I have looked into Dr. Rawls' website, and it was helpful. Marty Ross's website has also been informative. I also purchased the Toxic book yesterday and look forward to reading it and...
Thanks, Saraeli. I have not been diagnosed with EDS, but several doctors believe I have it. I did see a geneticist who said I don't have EDS but definitely have an unspecified connective tissue...
Thanks, Garzie. Is it a common occurrence for people who’ve been ill with Lyme & co’s for a very long time to take years to recover or see substantial improvement? I’ve read stories of people who saw...
So, to clarify what you said, Lyme does NOT cause MCAS/POTS but triggers/worsens them? It's just odd to me that my POTS and MCAS symptoms appeared not long after the other Lyme symptoms appeared...
If you don't mind me asking, how long did it take for you to see improvement after starting the Buhner herbs? I've had a hard time discerning how long I should stick with/take something before...
Taking Andrographis currently at 400mg daily, but no obvious herx. Mostly just taking that one for immune support at this point. There is Allicin in the Byron White A-L Complex -- hopefully it'll do...
I need to get that book, it sounds like it would be helpful. For detox, right now I am taking Glutathione, NAC for the liver, walking between 3-5 miles daily, and taking Spirulina/Chlorella. I have...
Hello everyone, I've been ill for 8 years with Lyme, only discovered that Lyme is the answer to my plethora of symptoms about a year ago. I have completed 9 months of the Cowden protocol, but am no...
Thanks, Bluelyme. Have you tried nasal ozone therapy at all? There's a local clinic that does a treatment where they dilute the ozone to make it less harmful to inhale. I have some mold in my lungs...
Hello all, I am in the process of considering what route to take next in terms of treatment for active Lyme. I've been ill for 8 years and discovered my issues are Lyme-related close to a year ago....
All four wisdom teeth will be extracted, and all four are still completely under the gums. Bottom two are growing sideways. I have had Lyme for 8 years.. just turned 20. I have put a pause on...
Glutathione helps me when I have mental symptoms like depression or feeling discouraged over nothing. I get the liquid from the company Seeking Health that has several other things in it to aid with...
I'm diagnosed with Lyme disease (Borreliosis) via Igenex testing, and muscle testing (kinesiology) showed RMSF and EBV. I've suspected EBV for a while, along with mycoplasma pneumonia (have had...
I don’t believe that Banderol can actually damage something in the body, but I’m definitely not an expert and can’t say yes or no....
They are not currently causing issues, but both my dentist and oral surgeon said to go ahead and get them out because if the roots grow more, they will be much more difficult to remove, and there is...
I took Banderol off and on as part of the Cowden protocol, 30 drops 2x day. While I didn't have those side effects, I definitely had herx issues (intensified joint pain, chills, weakness, etc.). In...
Thanks, Magoo. The wisdom teeth are not infected currently, but am certainly concerned about getting an infection after the procedure and also having infection in the jaw cavitations....
I am set to get all four wisdom teeth extracted on June 28th. I have been sick with Lyme disease for 8 years now. . . only discovered my symptoms are Lyme about 7 months ago. I have the whole...
My story is long, but I will try and condense it as much as possible. I have had Lyme symptoms since 2015 (none of which made us think "Lyme disease"), the most debilitating of which has been a 24/7...
I recently started using the LMNT electrolyte packets. 1000mg sodium per packet, also has magnesium and potassium but can’t remember the mg. Sweetened with stevia. Have not researched extensively on...
For nearly a week, I've been dealing with muscle pain in my shoulders and neck. The tension is often so bad it makes my head hurt severely and can't move my eyes without making them hurt too. I have...
Definitely recommend Unlocking Lyme by Dr. Rawls. It’s been super helpful and is very clear!...
I don't remember where I bought the Ancestral Supplements (it's been a while since I've repurchased), but I've always thought they are high quality. I've taken the multi-organ one but also liver and...
Thanks for the advice. I think that the tinctures on the protocol are definitely hitting something, as I have felt significantly worse since starting it. You're right, it is hard to tell whether to...
Thanks for the input. Can I ask why you recommend TUDCA over a different binder?...
@saraeli, thanks for the input. I’m on a beta blocker and Midodrine for the tachycardia and low blood pressure, but sometimes with the combination of all that I’m taking, I end up with a drop in BP...
Hello all, I’m at the end of month 5 of Cowden protocol and feeling no better. I’ve been taking about 500mg of Liposomal Glutathione daily, and while that helps my mental symptoms (sadness,...
In my own case, my Vit. D level goes up when I take significant doses of it. I took hefty doses when I had covid last year, and it was like 98/100 when I had blood work done not long after I was...
Thanks for mentioning this. I have had pneumonia as a young child and walking pneumonia about five years ago. I wonder if my body didn't get rid of all of the infection....
Thanks for the recommendation to look into mold. When I was younger (maybe about 11-12 years ago), I lived in a home that we believe had mold. Myself and several of my family members experienced...
I have found little to no information on lung symptoms in correlation to Lyme. On a daily basis, I have lung "soreness" (like I've been coughing non-stop for a long time), bronchial irritation (feels...
Thanks... I am taking a lot of turmeric which seems to be doing the trick for the blood thinning. Also resveratrol. I remember the first few years in my illness I bruised very easily and always...
Thanks for the input. My body is incredibly sensitive to die-off and detoxing in general, so my best guess would be to just continue with Cowden before trying to increase anything. Especially since...
Thanks for the advice. I have had a CBC panel ordered several times throughout my illness, and each time my thyroid numbers were within good range. I do take a bovine sourced thyroid supplement to...
Hello all, I am hoping that someone who is doing / has done the Cowden protocol for Lyme treatment will be able to give some guidance or just share their personal experience(s). A bit of my...