Hi all, apologies as I posted a similar post before. I'm thinking of switching doctors as mine seems to be out of ideas - I'm currently testing negative for tickborne diseases but still symptomatic....
I had bart pretty badly and did not have any problems with HBOT - in fact it seems to have helped me in general more than anything else I tried, particularly for my energy levels. It's hard to say...
Hello all, I'm considering switching doctors, and at the very least plan to have a consult with a more mold-focused doc after almost three years with my LLMD. I was wondering if anyone has switched...
Hi everyone, It's every lymey's favorite game - guess the herx! (Apologies for my attempt at humor, it's a coping mechanism :)) I think I'm having a herx or some sort of acute episode but can't quite...
Hi MedicalNerd, I'm sorry to hear about what you're going through. Like you I find the brain fog /dissasociation to be the worst of all the symptoms I've had, and I've had a lot of symptoms. At times...
Thanks for all the suggestions. I'll definitely check my thyroid. And yes, it could be anything in the lyme family, I do realize that's the most likely culprit, it's just weird that it's so constant...
Hi everyone, I'm trying to make sense of my constant spacy/out of it feeling that I've had since 2020 when my symptoms became terrible. I had bart and I think mold/mcas for a decade before 2020,...
Thanks a lot for the replies - Overall I've been feeling much better in the last couple months, which is the strange thing. I think my improvement is mostly because I went on babesia meds about two...
Thanks for the reply. The weird thing is that literally nothing is different than it was when I took my second test and my levels had dropped - same car, same house, same job, etc. The only thing...
Hello all, I have high levels of mycotoxins per the Realtime test. I've done three tests, one in August 21, another in February 22, then another a couple weeks ago. My levels were quite high across...
Hi Saraeli, Thanks for the reply. I had significant mold exposure a decade or so ago when I worked at a very moldy record store and spent time digging record collections out of basements. Lately I've...
Thanks Garzie, I'll look into the Brucella for sure and try to get tested. The reason I think bartonella for the pelvic pain is the onset pattern - nocturnal and definitely histamine related. Not...
Hello all, Has anyone else had intense visual/vestibular disturbances that they've been able to attribute to babesia? I'm dealing with this (at the moment) disabling suite of vestibular symptoms...
Updating my own thread here in case it's useful for someone down the road: LLMD suspects that these "viral" type flares are babesia related, despite all my negative test results. Starting babs...
Thanks Lymie24, I appreciate the thoughtful answer....
WalkingbyFaith, Thank you for the reply, I really appreciate it. I'm glad you don't have any lingering effects any more. It's helpful to hear that others on here used it as well for Covid, thanks...
Hello all, I just got Covid last week, called my LLMD who had said to let her know if this happened. She put me on Ivermectin. Overall fairly mild case but I did lose my sense of taste and smell and...
I had high levels for everything on my mold test and got my numbers down across the board with a mix of optifiber lean, chlorella, bentonite clay and charcoal. Charcoal gave me a bad reaction. I'd...
I started taking glutathione along with oral antifungals and ampeceritin B a few months ago to try to deal with my high mold numbers, after just using binders for several months prior due to my high...
Thanks a lot, I appreciate the information. Good luck. I think something similar must be happening with me as my bart symptoms are bad with this thing as well....
Thanks. Did you do a covid test? And what type? I took several and they were negative but this would make a lot of sense. Thanks again....
Yes, I did the plates, my house is ok I think I got it through work several years ago when I was working at a very moldy record store. Thanks....
I should have added that the flu-liuke/viral presentation also includes a bad cough - a first for me through all this. Thanks!...
Hello all, I'm trying to identify a possibly viral herx/flare that has laid me out for most of the summer. I'm in my second year of treatment for mold, bartonella and corresponding histamine issues....
Hello all, I just wanted to update this thread in case it's helpful for anyone going through something similar, and thank everyone who replied initially. After several more months of treatment from a...
Saraeli, Thank you for the reply and the input. My best guess is MCAS as well, perhaps in combination with some musculoskeletal factors, and now exacerbated by a feedback loop. I've thought about the...
WalkingbyFaith, Thank you for the reply. I was taking bentonite clay and activated charcoal as binders. The 75% improvement with antibiotics was mostly for my brain fog/fatigue/migratory pain...
Sdarrah, Thank you so much for sharing. I'm so sorry to hear about your ordeal, that sounds really difficult. I will post updates on my progress. I am lucky in the sense that I do not have the same...
Hello all, Long time lurker, first time poster here. I'm a man in my early 40s from New England who has been dealing with some iteration of lyme/bartonella/mold for at least a decade, and dealing...