It’s honestly terrifying and defeating listening to this and having the disease....
Under recommended terminology “The condition where patients experience prolonged symptoms due to Lyme disease is called Post-Treatment Lyme Disease Syndrome (PTLDS) and its cause is currently...
Trust me Blazer and others I want to believe you. I’d rather them not be spirochetes , but the similarities are perfect between those light microscope pictures and what I see down to detail. I agree...
This is exactly what I see in my eyes https://www.researchgate.net/figure/Negative-staining-of-cultured-Borrelia-burgdorferi-spirochetes-and-their-membrane_fig1_7367312...
Does anyone else have these? With all of the gas lighting we get I’m not so sure about the explanations that they are debris when they look like the dormant and round body form of spirochetes....
I have been wondering about this too. I think sinus pressure or stuffiness is a symptom. I just started full spectrum enzymes, and herxed. On the other side of the herx my sinuses have never felt...
Leaky gut is nothing to mess around with- so much of our immune system responsiveness is impacted by the gut. Moreover, the bugs that leak in can colonize your liver. You may have to take your...
Sorry to hear about this experience- Doing anything different? My last big Bartonella die off came with those types of symptoms. You can do some blood work to check your urea and creatinine levels to...
Yeah I love cats but they can transmit pathogens - best known for delivering Bartonella by scratches. I’m sure that’s just one of many types that could be transmitted. Edit- ‘cdc’ provides a brief...
Adding organic tumeric to the mix is also done...
Wow this is a game changer for fatigue and brain fog. Organic coffee, light roast....
Thanks Garzie good info as usual- what essential oils should I read up on for this? I use oregano oil already fwiw...
Anyone here still using this product? How important is it that it has EDTA as far as efficacy? I saw that the EDTA can be hard on kidneys and they have version with out it… it seems like it gave a...
Where are people getting this stuff? I haven’t been able to locate anything manufactured in GMP facility. The USP stuff seems a little risky to me, but I would love to try this to see what happens...
I’ve used both oral and injectable BPC-157 in consecutive cycles- for a combined total of 3months. The oral form was actually most notable for lasting improvement. It ‘cured’ my GI discomfort and...
CBD + THC balm was something I used to find relief from these weird skin lesions I was getting - they would blister and then harden like a callus- about 70% better good texture but some discoloration...
I use L Theanine daily- this worked so well that I could get off most Rx anxiety meds. I suspect anti-psychotics inhibit Bartonella metabolism (serine metabolism?)- so i went back on them (zyprexa)...
Just to take it into the notes: I never caught any cold since i got sick. Today I caught my first cold since 2 years. Maybe that means something good, maybe it means something bad - I just wanted to...
How is your circulation? This could be a result of not enough blood flow and oxygen delivery to the extremities, in that case vasodilation is your friend, recommend enzymes and arginine ( which will...
Blazer mentions some Good options. I didn’t do well with Clarithromycin either- strangely it seemed my infection was resistant to it. I do better with Azithromycin + Rifabutin than...
Been dabbling in this too. Used a cycle of oral BPC-157 to heal the gut and then next cycle injectable version for systemic effects. This stopped my daily vomiting (suspected damage liver) and really...
Check into MTor inhibitors (my pref) or naltrexone to limit autoimmunity while treating your infection but while on stick with antibiotic so while you are resetting your immune system the pathogens...
Perhaps look into MTor inhibitors to shut down inflammation while on antibiotic? Borellia hyperactivates this inflammatory pathway and seems to thrive in this context....
Currently struggling w these symptoms as well. I think they are due to Candidiasis and Bartonella tag teaming the liver . After a week since initiation- reducing symptoms from adding Fluconazole ,...
I know this isn’t exactly an answer to your question but if I remember correctly pregnancy increases the production of interferon and antibodies which protect the baby from infection. I know of...
Is anyone able to get methylene blue that is GMP certified and pharmaceutical grade? Sunflower would you be willing to DM me the compounding pharm? The stuff on Amazon claims that it is...
I have had these symptoms and in my case they were caused by viruses and alleviated by antivirals. I think Bartonella plays a role in these types of neuro symptoms too so that could be another thing...
Is this something that you can pulse on occasion and benefit from? Or requires continuous use?...
Thanks for sharing your experience- did the neuropathy ever subside? I am doing so much worse ever since LDN + plaquenil was added to mix. I have been in intense pain and worsening every day for the...
Bumping hoping for participation...
Hi- I am having the same reaction plaquenil and am having trouble figuring out what is happening to me. Ever since start therapy I have had a huge increase in stiff neck, racing heart, air hunger,...
Hello, Looking for help finding a LLMD in West Michigan / Grand Rapids area....
Thank WBF and Girlie, this forum is lucky to have each of you :)...
I am starting to gather that bands and test results by assay can be informative, but I still don't exactly know how to interpret these data the way I have seen others do on here. Hoping to get some...
That’s an odd dosage. Way too low It should be 200 mg twice daily (Some non LLMD’s prescribe 100 mg twice daily)[/quote] I think they set it low because of my genetic testing results predicting that...
Hi. For the B vitamins and folic - are you using methyl forms? Also, I learned that some probiotics contain PKS+ E Coli, which is actually quite a bad bug with the ability to cause mutations in crypt...
It is 20 mg according to the bottle....
Thanks Garzie, you read correctly, my regimen of dox is 20mg. So far, the frequency and severity of the shooting pains in the scalp, heel, and shins are reduced, but not gone. Not much improvement on...
Hi, started treatment for bartonella and borrelia. (20 mg DOX 2x daily , 250 mg azithromycin 1X) and am 1 week in. I do notice a reduction in the symptoms, but they are not gone. I have a follow up...
Just had my suspicions confirmed and was tested/diagnosed with Bartonella and Borrelia coinfection after more than a years worth of tests and bizarre symptoms. I hope that I have the right LLMD to...
Hi I was wondering if anyone could link me to some of the essential books or guides on living with and treating Lyme and coinfections. In particular, I wanted to get Buhner’s, but quickly found he...
Epson salt bath gave me a headache last time. What would that suggest- anyone have this?...
What’s the thought/logic on red light therapy for Lyme? I can’t make up my mind whether it would help or hurt. Would love for someone to shed some *light* on this for me :)...
Has anyone tried these to aid with their symptoms? Joovv or other red light therapy devices? Ultrasound therapy? Theragun?...
https://biologixcenter.com/our-method/induced-native-phage-therapy-inpt/ Apparently there is a center in Tennessee trying this for Lyme patients. (Linked above) Also, this story covers one person who...
It’s UCSD (San Diego) but they are not yet trying this on Lyme. This seems like a promising approach but I wonder if these phases are able to operate on biofilms?...
Seeking a sound diagnostic approach. Background: 1 year of phantom come and go pains. Started with 10 days of fever. Months later in came the sharp and strange pain: Heels, ribs, neck, throat, shins....
Thanks for the replies :) SaraEli and WalkingByFaith Is there is a strategy for breaking up biofilms and killing/limiting persister cells? I was thinking of toggling biocidin with knotwood,...
I have an appointment with an LLMD in a few weeks. I do not know how soon they will start treatment, but I can see my symptoms advance each day lately. I would really like to do what I can now to...
Ha sounds good. Are we able to DM on here? Would like to hear your story dude....