Hi Saraeli, I don't have RA but I have all my joints swollen internally, though it doesn't show externally. Ankles, knees, wrists, fingers... I went to an immunologist who thought I had RA, but...
Hi Eric H., It's very difficult to diagnose precisely, and even if you do, it doesn't matter 100% because the key thing here is treating the underlying cause. If there is no improvement in your...
Hi everyone, I wanted to update on my treatment, as last week I took my second round of IVIG. I did it for 3 days, 40 grams per day making a total of 120 grams (2g/kg). Infusion rate was very slow...
Hi dcd, I've read many of your posts about neuropathy, glad to read that you are still fighting and that IVIG is helping you. I can imagine that using Rituximab is a bit scary, but probably is the...
Good luck with it. I've read that some people have no improvement with IVIG, but when they are asked, they are using 1gr/kg/month for autoimmune issues. Let's hope it brings your improvement with a...
Running wild - I've read that for autoimmune issues it's recommended between 1,5 and 2 g/kg/month. Have you tried those figures and see what happens? This could be an option that would make your...
My neuropathy problems also increase with food. There are many things that I have discarded and I only eat white meat, eggs, some fruits, olive oil and ghee. If I eat something different, symptoms...
Hi running wild, Haven't you had some improvement at least with the IVIG? Sjogrens is autoimmune, so it should help. What dose are you receiving of IVIG? High enough dose? Immune diseases are a...
Let's hope you can find it soon. Anyways, being Lyme and coinfections involved, that would be one of my first candidates for sure....
Yes, it's a very high dose. So far, the herx that I've got from this is like a flu, I have my nose blocked, feel a bit tired, sore throat and a stomach a bit upset. It's very important to hydrate a...
Hi Astroman, For immune deficiencies, the dose is usually 0,5-1g/kg of bodyweight and month. For autoimmune conditions is between 1,5 and 2g/kg and month. If you have the chance, don't chicken and...
Do they know what is the cause of your neuropathy? Because if it's not something autoimmune, I don't know what can be the cause for that....
I've done an EMG, which tested negative. No biopsy. Autoantibodies negative, but by clinical judgement from doctors, they agree it's autoimmune. My insurance doesn't cover the IVIG, only the...
Hi WalkingbyFaith, Thanks for your reply. Yes, I've tried doxy and it gives me neuropathy, too. Ivermectin, which doesn't cross the BBB, does give me neuropathy too. Everything that is bactericidal...
Hi Emma, the diagnosis I have from my neurologist is polyneuropathy. I've looked for autoantibodies and the only one I tested positive is anti-parietal cells, but many times you have autoimmune...
Hi everyone, I haven't seen in the forum any post of someone telling their experience with high dose IVIG for autoimmune conditions related to Lyme and coinfections, so I wanted to share the story...
Thank you Garzie and loski01 for your comments. Considering what Garzie has said about cross reactivity between EBV and other infections, another way to see if the infection is active or not is to...
Hi Rainycoud, Yes, problems arose with that combo. Still, I don't think they are responsible for it. Fluconazole is very good against bartonella and minocycline helps, too, so I hope it helps you...
I'm not using any mast cell stabilizers, that's why I have decided to start with the LDN, let's see how it works. Regarding diet, I'm doing a strict paleo diet with a lot of meat, so that shouldn't...
I will look into it. I'm in Spain, so will have to check if this way of treatment is available here. They key is, as you say, find the root cause of the problem to attack it while doing remedies at...
Thanks for the suggestions. I haven't tried any of those. I will give them a look....
I have one of those at home, though I've never thought about using it for nueropathy. For something small, like a foot, is fine, but for the whole leg, seems more complicated. Still, I'll give it a...
The fact that herx subsides doesn't mean that abx or herbs have stopped working, it means that there are less bugs available for the killing. You just have to give them time. Careful with pulsing...
Hi guys, I've been reading this forum for quite a bit but I haven't participated much, so I wanted to introduce myself and tell you about my case, in case there is something new or useful to you and...
Thanks for the info, will look into it :)...
Hi Girlie, Thank you for your welcoming and for your suggestion. Yes, I've tried rifabutin. After a month I ended up totally red with an allergic reaction, had to stop it. Its little cousin,...
Running wild, I think my reaction is caused by the infections, same as yours, they drive the immune system crazy. At rhe beginning I thought it was due to the medication, but after having tried so...
Hi Running Wild, I'm in a similar situation as you are. I've tested positive for borrelia, bartonella and babesia, and for the mayority of the medication that hits borrelia and bartonella, I get...