Very hard when you are reacting to everything you are trying to treat with. I see you did recover to 85-90% for awhile, that is certainly good news and shows opportunity! I strongly believe in...
running wild, I had a ton of symptoms when this hit me like a bus. Started with minor migrations with visual symptoms right before it hit. Just figured I had low blood sugar and ate something. Then...
I have adapted quite well, through a PICC line. Was on 8 weeks Rocephin/Flagyl combo then switched to Doxy/Flagyl combo. Week three into the Doxy/Flagyl combo I felt like I was hit by a truck for a...
"One of the things that throws me is I have never had night sweats in all the years I've dealt with this. But right now, very weak feeling legs, neuropathy, fatigue, dazed, dizziness and sometimes an...
Oh yes, completely understand. I pointed that out as my babesia was positive in all regards in prior igenex testing. Kind of exciting to see some changes however:)...
I was on Malarone, Azithromycin, crypto plus and Artemisinin for quite a long period early in my illness. I actually found the malarone and azithromycin tolerable. It was the crypto plus and...
Interesting point Quin, I do try to add electrolytes to my water but I do get lightheaded when I get up. I guess I chalked it up to borderline anemia going on. How did you supplement? Better...
Well, I switched LLMD's early in the year. Minimal progress from prior. My new doctor ordered an Igenex tick panel and results: IGG positive for lymes (CDC and Igenex) IGM borderline Igenex, neg CDC....
I will add my prostate was fine on inspection and PSA level was excellent. The symptoms regarding pelvic floor dysfunction vary widely....
Mine I attribute to a sedentary lifestyle (due to lymes and job). The pelvic floor dysfunction can lead to a lot of strange pain and symptoms. I have since taken up stretching twice daily and walk...
I have many of the same symptoms. Pee like an 80 year old man lol. The pain and urges mirror mine, triggered by sexual activity. I would urge you to at least investigate this. But above all know that...
I am going to offer a different potential cause. And it should by all means give you hope in this fight. Overnight last year I experienced similar issues. Constant need to urinate, bladder just...
Cael, I would be interested in the bladder symptoms you experienced. I too experience bladder issues/ pelvic pain on a daily basis. I am undergoing treatment for neuro lymes. My therapy for bladder...
I certainly respect each person's view on this hot button subject. I can say that I was certainly shocked during the covid mandates of year's past. I wouldn't call my health great lately, and do seem...
Still in the midst of battling lymes as we speak and I've been wrestling with the question do I get the flu vaccine. I know my immune system is compromised, but certainly don't want to throw things...
Cripes, at that level I would look like a smurf. As for mood - I'm pretty even keeled and I'm not geriatric (44). At what point do you question moving from one LLMD to another. There is another...
Quin, at the time I was on methylene blue: Azithromycin 250 mg once daily Ceftin 500 mg twice daily Malarone 1 tablet twice daily (01/13/2023) Probiotic daily Crypto-Plus 20 drops twice daily Boluoke...
Interesting, we have been focusing on babesia since I started treatment through LLMD. I have mentioned bartonella a couple of times but they seem convinced babesia is present. I have been on boluoke...
Girlie, I have been reading on Dr. J's pulsed dosing and am interested. The initial plan was to stop for a week then resume for three. Then stop for two and resume for two, ect. Clearly I am not at a...
Agreed on the changeup - my LLMD changed from Ceftin to Minocycline after about four months - but I went back to the Ceftin when the bladder went haywire. Perhaps I should have stayed the course....
Well I made it a total of six days without Malarone, Ceftin and Azithromycin. I am throwing in the towel today - and resuming antibiotics. Last two days have been very hard, exhausted, headaches,...
Noxon, I can relate to your circumstances when I started the Minocycline as well. Had very similar symptoms, and it felt horrible. I slowed things down substantially and it eventually abated - and I...
Well I am on day 2 of LDN 1.5mg. Day one had headaches and eye pressure. Day two much better, a little sore but not bad at all. I am taking it in the morning after all my antibiotics and it didn't...
I met with my LLMD today and am making some changes. One, I am starting LDN 1.5mg in the morning as opposed to evenings. Will see how that goes... Also, we will begin the weaning process from...
I started down that route initially - tried histamine blockers and a number of other items. Funny thing is it doesn't matter what I eat or drink - has no impact on the symptoms. Very tight muscles...
Quin, I haven't tried depakote and valtrex, nor have I tried Dapsone. At times I do see Horowitz and his work with dapsone and do consider it at times... Don't believe I am at that point as of yet. I...
Garzie, I can indeed echo those sentiments - a month of Rocephin was a walk in the park compared to Artemisinin and Crypto Plus. Very interesting indeed. I really appreciate the support folks! Will...
Garzie, you are indeed correct on the herxing effects from Oil of Oregano. I took one capsule yesterday morning, experienced headaches and aching eye symptoms all day. It really had an effect on my...
I will go every other day for a week or so for the oil of oregano, just to be careful. I will discuss the LDN with my LLMD provider next week as we meet again. Obvious goal is to get off the...
Garzie, I will do more research on the LDN - I was hesitant based upon my initial reaction - and the fact that I didn't want to just cover up symptoms. They had me starting on a dose of 1.5 mg I...
No mold exposure and all this kicked off with the initial lymes infection. Although the bladder symptoms came months later. I was on Methylene Blue 50 mg twice daily - and like I said no herx...
I really appreciate the feedback everyone. The artemisinin definitely packs a punch. I just finished my three day stretch and will begin another three day stretch in one week's time. I do pulse that....
Oh, and I forgot - no exposure to cats of any kind. Never was a cat person, I pretty much assumed if I had bartonella it came from a tick - but that hasn't been proven fully yet from what I can tell...
Garzie, I really appreciate your feedback. A couple of other notes, I will be starting oil of oregano shortly - will that address possible bartonella? Also interesting is my very hard herxes from...
I was considering the same thoughts - looking back I was tested for babesia and bartonella- from Mayo. Tests were listed as: Babesia PCR, Parasitemia Reflex (microti, duncani, divergens/MO-1) Sept...
Today marks about a year since I came down with neuro lymes tested positive through Mayo. I was on a month of Rocephin and it cleared my joint issues for the most part. Felt awful otherwise however,...
Without mentioning names there is an excellent one in Waukesha, also one I would recommend in Woodruff, wi. I am currently under the Woodruff clinic care and it’s been quite good. Price wise very...
Hey Girlie, I appreciate the input. Given the recent weeks I will be treating Bartonella - I was on a business trip a couple hours away and came down with awful UTI symptoms - odd for a man? I have...
I met with my LLMD yesterday and made a couple changes to the medications. She believes it's not only lymes but babesia right now. I was positive for Neuro lymes through Mayo in Oct 2022. - I started...
Good morning WalkingbyFaith I appreciate you reaching out. There is so much I left out but wanted to be somewhat brief. I actually started getting the auras in spring 2022, then they accompanied the...
Good morning, I have been reading this forum for awhile. Perhaps a good resource to share ideas and support. My fight began in September 2022 as we began a large remodel of our home (go figure?). I...