It happened Saturday. I'm ok just feel generally bad. Nothing compared to what I went through with lyme. Since I posted this I read viper venom does not cross the blood brain barrier. Disappointing...
I got bit by a copperhead on the hand Saturday. 4 vials of crofab and a night in ICU. They wanted me to stay longer but I refused because of cost. I'm hoping to turn lemons in to lemonade and maybe...
What other options are tuere if Jemsek closes? Rachel is amazing. I'm seriously scared i will die without her. There is no competent care where i live. This has me freaking out....
Hi Girlie. So happy to.hear you have achieved remission. Congratulations....
I would have went straight to jemsek clinic and not wasted my time or money with anyone else. No one understands lyme like they do....
Hey all, been a long time. Still struggling bad and have added seizures to the list of problems. Started with Jemsek last September. They have helped my cardiac symptoms immensely. Anyway the point...
Loski yes still seeing Dr D L. Just curious I always hear people say air hunger with babesia and I'm not really sure what they mean. I just had a ton of tests done because I was getting out of breath...
Probably should have added that I have carrion's disease, a form of bart. The LDN was prescribed for pain and immune system regulation. I was bed bound for two years. I am finally seeing some...
Just curious how long everyone has been on abx? I have been on abx constantly for the last five years. First year was IV rocepherin plus orals and then after that three to five different oral abx a...
Hey all, hope you are well or at least on your way. Treating for four and a half yesrs. One year iv rocephin, and constant oral abx since. Two years BVT and herbals as well. After my dsf crash I...
Bro I was infected for st least two years before treatment but I suspect much longer....
Don't beat yourself up Cherry. You could have went and been blown off/misdiagnosed. It happens all the time....
Just in it's infancy but maybe a future treatment. Article talks about S Aureus and one other I forget now but not Lyme. However it was shown to stop bacteria from going into dormant phase and...
I've been treating Lyme and bart very aggressively with abx and herbs continuously for four years. No where near 90% but have made some progress. I was bed bound for the first two years. Not trying...
I wish people would just say the movements are raising your arms above your head and say this or whatever instead of everyone being so cryptic. Why not just share the knowledge? Why force people, who...
Cherylfelice how are you now? I passed on the vaccine this week but I am still considering getting it. It's available for everyone in my state. They emailed me to schedule an appointment for Friday...
That's my concern girlie. Just another wasted visit and money. This is so frustrating....
I'm thinking about going to a neurologist. Any thoughts? Anyone been to one for similar symptoms? Twitching, jerking, involuntary movements, heart arrhythmia etc. Did they help?...
Saraeli, It was DNA connections test I believe. Pvc is what made me go to cardiologist. It's an attention getter. I'm not any more stressed out now than I have been the last four years. The pandemic...
I believe it's the bart but not sure. Not related to dsf I wore the monitor and had the extra beats before I took dsf. This has been an issue for years now currently taking cefuroxime, rifampin,...
Many of my symptoms have worsened recently and the heart palpitations is one. I went to cardiologist and she said Lyme has messed up my autonomic nervous system and is making my brain randomly send a...
Sorry it didn't work out for you lymie. I know how disappointing it can be. Keep trying....
I'm doing somewhat better. Sleep has greatly improved. Quit dsf cold turkey. Started back on dapsone, azithromycin, rifampin, hydrochloroquine and cefuroxime. The biting has stopped and the twitching...
Thank you girlie and yancync. I contacted them and spoke to them but have decided to stick.woth my doc for now at least. I am going back on the cefuroxime, rifampin, azithromycin, plaquenil and...
I'm considering making an appointment at Dr J clinic in dc. My question is it really that much better? I really like my dr but even he has said that my case may be beyond his experience. Would it be...
Aink to my times article about ITP after vaccine. https://www.nytimes.com/2021/02/08/health/immune-thrombocytopenia-covid-vaccine-blood.html It does state no link has been established to the vaccine...
Now there are reports of people developing immune thrombocytopenia (ITP). "The condition develops when the immune system attacks platelets, a blood component essential for clotting, or the cells that...
Thanks everyone. I was in a bad place. My symptoms just got progressively worse on dsf. I lost ground instead of gaining. My mental state was not good at all, a first for me and I don't want to be...
Sorry to hear this. Im in a similar situation from my Lyme. Rapid heart rate, internal vibrations, brain shocks keeping me awake. Try a few benadryl to see if it helps. Hope you find relief soon....
thanks rainy. I've decided dsf is not for me. I have felt like giving up these last few days. That's not me for sure. The dsf is making me feel horrible. I'm going back to dapsone combo that I made...
When I was on dapsone I just took l methyl folate and was fine. I was trying to save money at the time and doc said it would be ok. Blood work always came back good. It wasn't the double dapsone...
I think he's on there but I will email you with it just in case he's not. He's a good guy....
Thank you girlie...
Dude I really appreciate your input these last few days. Thank you...
This is something my Dr ordered today. Anyone ever do it? What exactly is it testing?...
Talked to doc. Going to back down dsf to 250/day, add biaxin, and do some testing. Also some iv infusions. So that's where I'm at now. He may not be a world famous llmd bit I will say this, he cares,...
Thank you so much dude...
Skinny I'm 5 11 and 175 lbs. Thiings have only got worse. I stopped dsf and emailed llmd this morning. Office just called and I have an appointment at three today. I have to say he is extremely...
I don't know if this was a herx or what but last night was horrible. Pushed to the point that giving up seemed ok for a bit. I really don't know how much more I can take. Skipping all meds except for...
Thank you all for the responses. Fjdrill that is exactly what I needed to hear. WBF and Cignet I think it could also be bartonella but I've been treating it for awhile now too. Honestly don't know...
Started at 600/day now at 300/day. Yes I get liver pains but so far levels have been good....
I've been on rifampin daily for at least three years now without any issues....
so I started dsf on November. At first it seemed to help especially with heart palpitations and rate. I'm at 375 mg per day now. Lately a lot of neurological symptoms have returned or worsened....
Something else to consider. https://www.cbsnews.com/news/south-africa-covid-strain-resistance-antibodies-coronavirus-vaccine-latest-research/...
Cignet, you and I have ever really "interacted" but I would like to say thank you. Your posts and research have helped me as well as others I'm sure....
I think many if not most of is have felt like you Mitch. I know I have. I went from strong, healthy, very active breadwinner to weak, useless bed bound turd almost overnight. It can be hard to...
My wife had the Pfizer mRNA vaccine, at least the first shot, and did well. Sore arm and mild fatigue for a day nothing else. She's scheduled to get the second dose early February. She works in a...
I was hoping to get the j&j vaccine instead of the mRNA. I feel better about a traditional vaccine. Why shouldn't lymies get it?...
Hi all. Congrats on the success tickbite. 500mg three days a week proved to be to much so I backed down to 375mg. May try to go back to 500mg later but for now just want to get to 375 daily. I'm up...
Thanks for the replies everyone. Quin did it get better over time or was it like that the whole time you were on dsf? I'm twitching all over again. I think I'll stay at four days a week for at least...