Thanks for this info Garzie! So interesting. Have you decided whether to give it a try? I am tempted for sure. I too had a huge improvement years ago when I switched to desiccated pig thyroid and...
Hi All, Last November/December I tried to get through the 9-week Horowitz double dapsone protocol but had to stop about a week and a half after reaching double dapsone strength (6+ weeks in) when I...
I am in Northern California. After all that I did decide to try an order from Apex. I just couldn't pass up the great deal for a first time customer of 35% and they did put together a convincing...
Thanks Garzie! I remain undecided on whether to try Apex Botanicals. The cost savings is meaningless if not the same quality. I guess it is safest to stick with the Buhner approved vendor for now....
I have been using Green Dragon LB Core liquid for some time but the expense is quite high. I recently came across Apex Botanicals which is more reasonable and sells larger quantities, and has a good...
Thank you all for the great responses, as always! It is so hard for me not to try to force some kind of systematic logic that will clearly lead to the right answer for what to do next. It’s the way...
As I am recovering from failing to complete the high-dose dapsone protocol I am trying to decide next steps. Part of that is guessing which infection might be dominant at the moment and thought some...
Hi France, I wanted to make sure you saw my response in your other post requesting info on the protocol with a link to the paper that gives very detailed instructions. The Dapsone is a slow increase...
Thank you Girlie! Are you still on maintenance as described in your last paragraph despite being in remission?Or was that from an old post, and if so, how long were you on maintenance? Did Dr. J.’s...
Hi France, Horowitz’s 2023 paper in Microorganisms has the protocol spelled out in detail in tables 1 and 2. You can find the paper online https://www.mdpi.com/2076-2607/11/9/2301 (click download to...
Hi Garzie, Thanks for being so supportive and encouraging throughout this journey. After my experience, I completely agree I do not recommend trying this unless one is working with someone explicitly...
Thank you for sharing your experience Girlie. During the worst I also had severe head pressure and a new kind of dizziness I have no words to really describe, maybe some similarity to nitrous oxide...
Hi Quin, Thanks for sharing your thoughts and experiences. I am on the hydroxychloroquine because I am trying to follow the protocol exactly as outlined in the paper (except for not taking...
Hi all, I decided to start a new thread on my ongoing experience with the high-dose dapsone protocol because I am at a crossroad decision point and need help deciding what I am going to do next....
Well, I must have been channeling Girlie about the ER and ended up spending the day there on Wednesday, after two days of reaching the double dapsone level. I had a very scary episode of feeling like...
After testing negative using the typical US insurance-covered western blot testing for Lyme, and antibody testing for bart, and Babesia, and subsequent gas-lighting by my primary care that made me...
Good morning to all. Here’s my Horowitz protocol update. I am now halfway into week 4 of the dapsone (week five of the protocol including the first week of onboarding the other antibiotics), so I am...
I am in the second week of the Horowitz dapsone protocol and thought I’d give an update. Last week was all about getting the other meds on board before starting the dapsone (added hydroxychloroquine,...
Thanks for that info on your successful protocol Girlie, very interesting, and so wonderful that you are in remission! Was that a single round of the 3 or 4 weeks or did you follow the protocol...
Thanks for your insights Garzie. Yes, looking more carefully at the patient chart there are a few Babs positive other than FISH who did well, and it really is such a small sample size for drawing any...
I will be taking everything listed in the protocol tables in the paper, which is a lot. But I am thinking about adding some babesia herbs too. I was FISH negative for bart but did have a minor...
I finally got my Igenex FISH test results and am trying not to be too discouraged. I am positive for babesia and negative for Bartonella. Unfortunately, none of the Horowitz subjects in his paper who...
Thank you Girlie! It is always good to hear encouragement to be wise and listen to body because I am one to push through and ignore too much. I have al lot of good intentions at the start of this....
Thanks so much for the supportive response Garzie! I will definitely provide updates and let everyone know how it goes. Yes, the plan is to follow all the recommendations for testing exactly. I...
I am working towards trying this protocol very soon, next week if I can get necessary prescriptions filled by then, though I would not put myself in the category of someone who has tried everything...
Hi Garzie, Thanks for your thoughtful reply. I completely agree with everything you say and have experienced frustration with not trusting my scale, or having it work fine for a while and then...
Thanks Garzie! You’ve inspired me to do a bit more symptom refinement and I love your suggestions for objective measures for quantification. It’s too bad it takes a certain level of functionality to...
My doctor mentioned that Horowitz said one way to determine if you still have active Lyme is recognizing a monthly cycle of symptoms. I have been keeping a journal of symptoms but nothing...
Yes, I am excited to be growing some veggies! We recently moved into a home that already has some raised beds with good soil and plenty of sun and it has been pretty easy to put in some plants. It is...
Thank you so much to everyone for your great ideas! I do have a pressure cooker, but know nothing about air fryers and will definitely research that. There is something about seeing all this written...
I’m looking for some suggestions on how to maintain a healthy diet when I have no energy or motivation to prepare food and difficulty even deciding what I want to put in my mouth. I think it might be...
Thanks! I’m really hoping short-term disability won’t be as difficult to get as long-term or SSI. I’m going to get the paperwork filled out tomorrow and we’ll see where it goes from there. I’ll let...
Does anyone have any experience applying for short-term disability for chronic Lyme? I was initially diagnosed as acute by urgent care in January, but reclassified as chronic since then. I did not...
I was lucky enough to find someone selling a really nice wood one for an amazingly low price on NextDoor. It was some work and pain to disassemble and pile on and in my car and reassemble at home....
Thank you again for all the responses. This is so incredibly helpful to me to hear the commonalities and differences of everyone’s experiences. The willingness of so many to spend time helping others...
Wow, thank you all so much for the replies! These are so useful to me. Saraeli, your words are so thoughtful, thorough, poignant, and incredibly on target for what my personality needs to hear. That...
If you could start over from the very beginning of your diagnosis with chronic Lyme and coinfections, armed with all the knowledge you have now, what would you do? I am newly diagnosed and...
Thank you Girlie! I am trying to learn everything I can and want to make all the right decisions even though I can’t think straight and stress over every choice I make. Do you think it makes sense to...
Thank you for this forum! I recently went through a very stressful period in my life and after that settled down I developed severe brain fog, migrating arthralgias, fatigue, and anxiety. I am one to...