Thanks Jamistarr :) No, however I have gone undiagnosed for a long time and I am in the process of ruling out one of two syndromes. Then, sadly I think I'll be having surgery which is something I...
I thought I was imagining things but yes, this has happened. On the For Michelejc thread that I made, I made a post, after her last post several days ago that disappeared. It outlined that, companies...
No harm, no foul lol :)...
Apart from saying "clowning around" I didn't say anything else. I'm not one for insults if I'm honest. I did ridicule some pretty spurious statements though. I've said my piece and said sorry. EDIT:...
Hey Jamistar, Please don't worry about what they're saying. There's a lot of despair all over the place and quora is known to be a bit of a terrible place for advice. I'd steer clear of it if I were...
I am sorry then. I must have been mistaken. I apologise for saying you were clowning around as well....
That's hard and understandable. Please don't worry about it. I gathered from the way you were typing there was some kind of issue going on. I know that these withdrawals can cause seriously intense...
how familiar are you with computers? It's possible you could upload the results to a website like drop box and someone could view them from there? What is WDS is it, Worster Drought syndrome? I had...
Hey Jamistarr, I'm not very useful these days but I'll try. For the nerve pain, there are drugs like gabapentin and lyrica. You could ask your doctor about those. EDIT: I just saw you're withdrawing...
You're right Bailey. It should be a place where all of that stigma is irrelevant. I know I've been one of those people making threads here in absolutely dire straits - getting support that doesn't...
The Dude Abides made some very balanced points. However I beg to differ. You are being disingenuous. I posted the rules and it emphatically states "THREATS" not, "I feel down and depressed and wonder...
It's okay to be wrong and say sorry. I'll say that much. How would you feel, if you talked about your existential angst. Went away to fix things for a few days and saw a potential lifeline was...
Hey there. I just thought I'd remind you rule number one. 1. No discussion of any illegal activity or threats of violence (ie. threats of suicide, self-harm, or physical harm). Discussion of medical...
I just remembered that it's also becoming common, that Candida is becoming resistant to fluconazole as well as ketoconazole and the other azoles too. So this will hopefully be a solution to people...
Hey Destiny, That's tough to hear. Chronic illness, not just lyme is really, really a lonely and often harrowing place to be. I'm actually the same age as you. I'm still battling stuff - I don't know...
If you're taking it, you should take it some time after or before the antibiotics. Some people recommend taking them 2-3 hours apart from each dose of antibiotics, to prevent them from being wiped...
Palermo. I'm no longer a part of these groups, more so because I lost access to my old account than anyhting. However, it was used by several people I briefly spoke to in the Babesia Buddies group....
That's wild dude. I hope you recover swiftly. It's kinda whacky that something like this has cost as a dictating factor as to whether or not you have a better/more comfortable recovery. A chap...
You're welcome I think I may have seen Nauclea mentioned once or twice before. Brucea smells like chocolate - which is really nice but oh my word it's one of the most bitter herbs I've ever tasted....
Buhner recommends these in his books and they've proved successful for people in the facebook groups. They're noted in an offhand way as he hadn't had first hand experience with them. I think that...
Neem is also used in SIBO treatment just as a headsup. I think it can be used in Methane or Hydrogen SIBO but don't quote me on that. I have some from my round of treatment last year. I don't think I...
Welcome to our group, Leonardo. You can contact ILADS for suggestions https://www.ilads.org/patient-care/provider-search/ [/quote] Hey Girlie, long time, I saw your son got married! Congrats, are...
There are a few nearby. I have document that I can share with you but I do not want to post it here. There are several doctors - none in Italy unfortunately, but in surrounding countries, not very...
I guess I feel a bit odd posting here as I've concluded that I don't have lyme so I feel like I'm not of much use. However, your frustrations are understandable. This life comes with so many...
Thanks guys for the input and stuff :D Just giving things a little bump....
Hello guys. I don't post regularly, but I thought I'd post a useful resource here. Given that it's been a bit precarious with the Healingwell situation, a new forum has been made, named after our old...
Medication doesn't work and the symptoms are disabling. As I said, I can't walk around, without being short of breath, which could be the MALS or the constipation, I am unsure and it's incredibly...
Hi Emma, that's the diagnosis I have. Slow Transit/Colonic inertia, they're the same thing. I'm currently taking prucalopride but it's not doing all that much if I'm honest. I have linaclotide but I...
Howdy Girlie, how have you been are you still working in the kitchen? I hope things were stable/improved for you! :) Hey Andreas, I'm pretty gluten free right now in fact and it doesn't seem to help...
This is a very salient point you make. Too often, it feels like there's a power imbalance, brought about maybe, by the limited time that doctors are now given with patients - in the UK at least. 15...
Thanks astroman. You're absolutely right. Sometimes it's good to be able to take a step back and look at the bigger picture and explore other possibilities. I guess in that respect, it could be a...
Hey Garz you're right and I wish I had put this caveat in there as well. It's true they're not mutually exclusive! A very important point. It being a diagnosis of exclusion, I guess s the problem....
Sorry about the relative. That's rather sad. You make great points! I think a lot of the LLMDs do it from a place of wanting to help, same for fellow chronic illness sufferers with Lyme as well....
Hey folks it's been a while since I last posted here. I've still got a lot going on and I feel pretty ghastly most of the time. I thought I'd pop back in here just to let people know how I'm doing....
Hey Trav, it's been a long time! I sent you an email. I hope you and the goats are okay. I haven't been on healingwell in a long time and I changed my name lol. Would be nice to hear from you!...
Ocra powder is also a good binder if you're concerned about detoxing. It's nearly as affective as colestyramine. Bartonella babe on youtube is also a good resource for MCAS and other such issues....
I'm really sorry to hear of your circumstances. I myself am currently struggling to deal with my own health issues now, which are of uncertain origin so I am not sure how much I can help but I will...
Nope it has been a chronic problem since I worsened 4 years ago. I don't take licorice and I do have a penchant for licorice tea but I have abstained from it and all hot drinks for some time. (This...
Thanks From my bloods, my cortisol is normal but of course it has loads of variability throughout the day and I don't know the bigger picture.. I guess ashwagandha will do no harm I suppose. Hawthorn...
If you are taking vitamin d supplements, you must take it with Vitamin K2 alongside it. It prevents the calcium from going into soft tissues and places that are undesirable and going to the bones...
Hello. Does anyone know of any blood pressure herbs that are effective? I'm eating about 2000mg of Hawthorn berry caps per day maybe 2 or 3 times right now. I've ordered some Ashwagandha and maybe...
This is an interesting case of a babesia patient in Finland being infected with B. divergens and experiencing streaks that seem similar to bart. Adds a new thought to it all. The symptoms are all so...
Ahh, sorry. My lyme brain is clearly not so healed and making mistakes. I recall you mentioned you were in Sweden so I was confused. So it all started for you in Canada. Keep lifting dude. Take care....
That is good to hear that you are enjoying your life more. I am glad that you are lifting weights and hope that you will enjoy it to the fullest extent that you previously did. I have heard of the...
Nice find. very helpful....
Garzie, Thank you so much for your input. I still have your number and whatsapp. Maybe we could talk things over further. I do recall we spoke last year I believe. When you have time? I have plenty...
Thanks Garzie. Arminlabs test for it. I forget the NHS "tests" but frankly I consider the NHS as a nonentity with respect to TBD. The 14 day figure for Igenex is valuable. Thank you for that. I will...
Hello. I was wondering, if anyone has resources regarding how long one should be without antimicrobials, prior to testing for the pathogens? I say this as I am weary of the poor quality testing. The...
Thanks Garzie, good to hear from you. With regards to the efficacy of DSF vs borrelia + babesia? It's all Lehman's speak here, but do the studies bear it out? My depersonalisation, makes me doubt...
Quin Thanks for the reply. I have more symptoms. I'll list them. They are; - Tingling in feet, hands, face, chest - Fasciculations - Spider veins, on hands, feet, wrists, chest etc - Reynauds in...