Hi, I hope you all are doing well. As you know I am not on here much anymore and when I am not many respond. I am saying goodbye and wishing you all well. It has felt as though there are "cliques"...
Hi Jennifer, I havn't been here for a while but just saw your post. I would love to help if you would like to speak with me, my email is in my profile. I am one of the rare few my doctor has seen...
Hi Bekkah!! I am glad you found healingwell. There is some great info and support here. I have met some good people coming to this forum, of all ages, and backgrounds. I can definitely relate to some...
Hi, I randomly cam in here today and read your post. I too have fibro and I am sorry for all the problems you are having. I am wondering if you have seen a rheumie and if so, have they tested you for...
Hi Boston, I am the same age you are and 5 years ago I had to stop using hair dye. I was determined to find something so I went to the health food store and found Henna. It has been my choice ever...
Hi Redrose, I am sorry to hear you have fallen. I am the queen of hurting myself, walking into door frames, and our chest of drawers in our bedroom, door knobs. We have found Salonpas. You can google...
Hi Bek! I was going through this issue too. I was wondering if you could list what you have tried, so I can then make suggestions without listing something that does not work for you. Thanks, Leta...
Hi Lynwood, I am sorry you are suffering with the dry skin. Itchy, cannot reach, eeeek. One thing that is cheap and I use is extra virgin Olive Oil. I had an old Rheumie recommend it along time ago...
Hi Redrose, If there is anything that is difficult to deal with it is nausea. Oh my coupled with pain and other issues it plain sucks. I was on Zofran but they give me issues, Medicare. LOL so my...
Hi everyone, I am usually on the Lupus boards, but I do suffer tremendously from migraines, and have for years. I am in the process of trying to get pregnant and have been taken off Topamax. I didn't...
Hi Barb, I am so sorry you and Nakita are having a rough time. :( I remember being dx at age 8. It sucks you two are struggling and I am sorry for that. On the good note, there is much research in...
Hi Redrose, I am so sorry about what that darn doc did. I have looked up some things and you are so right about what your meds can do to your baby's bone density while you are pregnant. I am...
Hi Renee, I live here in Mesa, and I am from St. Louis. I honestly love it. I am miss the seasons, it is harder with the sun but honestly, the lack of cold is easier. We are still making adjustments...
Hi Renee, I too here live in AZ, outside of Phoenix and I am having horrid migraines right now. I am also one of the most photosensitive patients my Rheumy has ever seen, and that Mayo Clinic ever...
Hi Melissa, I am glad you are doing much better. Wow such relief huh??? :yeah: Dancing around yet, well maybe a tad. :wink: I am glad you got the tablets. You can always split them then and try it to...
Hi Melissa, I have been reading your post for a few days trying to figure out how to respond to you. I am sorry you are having such a tough time but feel for you too. I have been in the same boat, as...
Hi kelly, I wanted to let you know there is an alternative that sometimes they dont tell you about in the E.R. that is not a narcotic called Toradol. It is an NSAID and it is used for pain, I have...
Wow, something brought me to this area today and I am usually on the Lupus forum. I am so glad I came here as I am in the same boat you ladies are and I am working out at the gym right now. Phew...
Hi Redrose, I have been doing some research and a few things come out about infant rib fractures. One thing is have you been in a car accident with Alexander? If so that would explain some of the...
:wink: Awww Lynnwood you need to put your feet up. Well you pointed them in the right direction. Rest up and get yourself feeling better. Get your headache gone and take care of you. Once you are...
Wonderful, I am glad you are taking care of you!!!! That is the best thing you could do for yourself. Enjoy. Leta...
I was wondering how you were doing. You had seemed overwhelmed and I was hoping things had calmed down a bit for you. Hope you are doing well. Leta...
Hi Lynnwood, I don't know if I can be of much help or not. But I can certainly relate to many of the symptoms you have mentioned you are going through and I am not on the prednisone. It always seems...
Hi Hippi and everyone, As you can see I havn't been here for a long time. Sorry about that. I try. Man I have been messing up if I don't put my meds in the case. I messed up today I think as a matter...
Oh my where do I start. LOL I plan on so much. I had so many changes this past year, foreseen and unforeseen. One this past year was just to make it to Arizona and get through the Mayo Clinic. And...
Hi marji, Its leta, Please email me!!! I went through the same thing until they put me on meds for inflammation of my nervous system!!!! I think I can have some answers for you!!!! I had very similar...
Hi Genie, I noticed quite a few things that caught my attention about your daughter that just seem odd with symptoms and my own experience and I feel for you all. I hope you do not mind if I just...
Hi Lynnwood, I had it really bad. Had to treat it naturally for a year. I changed my diet, took an enzyme based product with enzymes contained protease and cellulease called Candidase, Oil of Oregano...
Hey Rosie, Good thread, wow as things with the economy get tighter I am glad you are posting this stuff and we have really been watching our money too at home. Lord knows my disability doesn't cover...
Boy did this one sound nice for the dry skin. SATIN MILK SCRUB :idea: 3 cups of powdered milk 4 Tbsp of almond meal 1 cup of oatmeal Several drops of preferred oil you like to scent One small muslin...
Alwaysrosie, so sorry. Sounds good. We will just stick to good money saving ideas then. Marji maybe we should have you edit the post. Leta...
Hi Serenity, I am sorry to hear that you are having problems with your Plaquenil. But then again I am glad to hear I am not alone in the issues you hare having at night. I just started back on...
Hi Marji, Yes please I would love the site as I was up until 2am last night looking for something like that. My skin is so sensitive I wanted to be able to use the stuff I made for others. I believe...
Hi everyone, After lurking for months and reading Alwaysrosie's money saving idea for dinner, I thought maybe we could list ways we could save money and still do things for gifts, dinners, etc for...
Hi Marji, Man do you sound like me but with the other medical stuff!! I am sorry you are having such a tough time. Hang in there my friend. Be on top of them and make them check your labs. After all,...
Hi hester, One thing I can also tell you is it depends on your medicare part d plan you are on. you need to look up your plan and see which meds your plan will require prior authorization. There...
Hi redrose, Man I had been wondering where you were. So glad to hear you are doing ok. I had been concerned like you dropped out in a black hole. Glad you, Alex and family are surviving. I would say...
Marji, Call the Mayo Doc and call your doc. You need to check your liver enzymes. If it keeps up you need to go to the er and have things checked during the attack. Leta...
Hi Margi, I forgot to ask you what antibiotic they have you on for the TB? If it is that strong along with the prednisone it could really make you super sunsensitive. I have found Neutrogena spf85...
Hi hippy, I noticed you have been on prednisone for quite some time. I do know that one prednisone it is known to make you much more sun sensitive and heat sensitive on top of the Lupus. So although...
Hi Marji, I am so pleased you are doing better. Glad you are back on the plaquenil. My experience with Rheumie at Mayo not the best when it comes to autoimmune as they blame fibro on all when labs...
Long term every day use Vit K rocks. Also Clinique under eye stuff has a caffeine base that perks up bags and purple. Green tea bags work, A&D ointment, and then concealer. I use Vit K almost daily...
Hi Marji, I just finished up much testing with Mayo. I must say for myself when it came to them with my lupus, I was very disappointed. I would continue to let your Rheumie treat your autoimmune...
Hi Babs, Thanks for always being there and I hope you are able to return soon. I have found some dial up for $4.95 but do understand. Wishing you well and hope you can access us through the library...
Hi Big, I just went to Disneyland for the first time in March. I had a blast. My boyfriend took me and I am one who is super sun sensitive and tires easily. We paced ourselves. He had been there...
Hi Hippie, I remember you saying that you were burnt a bit bad the other weekend by your son's baseball games. When I am exposed to sun time and time again, if I go out for a few minutes I get the...
Rosie, thank you for doing this link. It is great to know how everyone really is doing. I hope to post more later. Leta...
Hi, I am here. I am so so. I am still at Mayo clinic. It has been 5 months. The one doc would not listen to me, he said all was psychological, and would not listening. Come to find out 3 months...
Hi redrose, I am glad to hear Alexander is doing better and showing some improvement. I hope you get the answers your family needs from the pediatrician and the Metabolic clinic. Keep us posted...
Hi Rose, I know I have not responded to many posts here lately but I do read them every few days. I am sorry your son is having such a difficult time and you as well. I would definitely call his...