I was just reading about surgery one another message board. Several of those folks had been through it. If you haven't seen, google NDPH forum. I'm curious about it as well. I'd love to hear others'...
I'm sorry that the relief you felt upon discharge was not permanent. It's so frustrating. I'm now considering a first inpatient stay at Jeff myself and wondered if you have any advice. I've had a...
Hi everyone! I've had a headache since March and tried many different treatments with no success. I'm going to Jeff and they tried Botox today. I was aware that this was a treatment for migraine but...
Have you been checked for a sinus infection? It sounds like it may be sinus-related. How long have you had the pressure? I would get it checked out with your primary doc just to rule out any...
I've been on increasing dosages of propanolol for a few months due to daily headaches. My diagnosis is different than yours (I was given a New Daily Persistent Headache dx), but I haven't found it to...
Right now I'm on Elavil and Propanolol, but I'm not finding any effect on my headache. My BP has always been low as well, so my doc said to increase the beta-blocker slowly and to monitor my pulse....
Call your neurologist and/or go to the ER! I don't mean to scare you, but it's possible that you could have had a mini-stroke or other neurological event. A CAT Scan and MRI would rule anything...
My doc said that it could still be one-sided, although it's less common. None of the other diagnoses fit my symptoms, so I think it's as close as we're going to get! I'd would mention it to your doc...
It sounds very similar to my headache - one sided, in the areas you described, starts in the morning and gets worse throughout the day (although I wouldn't call mine mild - it gets very bad). Mine...
Is everything okay, Sara? I'm so sorry that you are having a hard time. Hope it gets better soon! Amanda...
Hey Krista, I know that several people on this board have done the IV Lidocaine treatment, which is inpatient and most likely continuous for the full hospital stay. If you search IV Lidocaine, you'll...
I'm so sorry you're going through this, especially at a young age. Your pain sounds very similar to my headache (except mine is on the right side), which I've had for five months now. I've tried all...
I know how you feel, Sara. It's been a long several months, especially for someone who has never had bad headaches before (other than short menstrual ones). I'd love to break the cycle. The doc put...
Isn't Ultram a narcotic as well? I don't know much about it. I go to the headache neuro. tomorrow but I'm not optimistic. Beta-blockers didn't do much. I don't know what he'll try next. Amanda...
I tried indomethacin because my neuro suspected hemicrania continua - he wanted to use it as a diagnostic tool, since indo completely cures HC. Unfortunately, it just gave me a wicked stomachache. I...
Thanks for replying, Sara. I've tried: the IV cocktail of DHE, Benadryl, Toradol, Zofran; a lot of IV and oral steroids, trigger point injections, Topamax, Indocin, Cymbalta, Nortriptyline,...
I've had a headache for 4 months and feel like I've been through hell and back with tests and treatments. After ruling out other diagnoses, my headache doc thinks it's New Daily Persistent Headache....
I had a relatively rare reaction to Compazine while pregnant - it was called a dyskinetic reaction. I felt completely agitated and couldn't stop moving my body. But I could tell after one dose, and...
Good luck with your treatment, Ben! Please keep us posted - I'm interested in seeing how it goes. I'll be at Jeff for an appt on Tuesday, but don't plan on hanging around much longer than that!...
Another update: I had to go in the next day after I posted because the blood patch failed, causing another horrendous spinal headache. I went to the original hospital who were on the fence about...
Here's my update: For those that didn't know, I had a spinal tap on Thursday to check for a cause for my migraine, and I had bad complications. The Dr. S. sent me home way too early and gave me no...
Rooster - I'm curious what you think it is, especially if the HA is better lying down....
My migraine has been constant for almost 2 and a half months, so I doubt there would be any triggers. I have my LP in a few days, so hopefully that will give us more info. once he sees the pressure....
I definitely don't want a spinal HA on top for everything else! The doc found stenosis in a blood vessel in my brain on the side where my HA is. He's doing the LP to see if pressure may be a cause or...
Hi everyone, I'm going in for a spinal tap this week in order to find the cause for my over 2 month long migraine. I've never had one before, and the doc's office was supposed to call to give me...
I agree, Ben, that it is a good sign that they found something in order to find a cause and possible treatment. I just don't know how serious it is or what they do about it. The "what ifs" are...
Thanks for the response. After I posted this, I saw the doc, who found stenosis in a blood vessel on the side of my head where I have pain. They are now looking for the cause and will then discuss...
Sorry for not posting sooner, but I still feel like I'm in the thick of it. If you saw my new post, you'll see that last week Dr. S. found stenosis in a blood vessel on the right side of my head...
Just got back from the Headache Center, and my neuro found stenosis (narrowing) of a blood vessel on the right side of my brain, which is exactly where my 2 month long headache is. The next step is a...
I just found this diagnosis on the internet, and it sounds exactly like what I have. I've posted before about my headache - it's been two months since the sudden onset of intense, one-sided pain in...
So for anyone interested, I had my Jeff appt today. It was a great deal of waiting to see medical professionals, and not a lot of time actually seeing them. But Silberstein seemed committed to...
Hey Ben, I've actually received that IV cocktail when I was first hospitalized for my headache and it didn't work. It also made me very nauseous and I generally felt horrible (which I suspect was the...
Thanks so much, Ben. That's great information and it helps me know what to expect. I think I got into see Silberstein because my step-mother put in a call (she knows him), so I'm definitely lucky....
I have white spots but was diagnosed with MS 11 years ago. Now my new neuro says he's not sure if it is in fact MS because there has been no progression or new spots. He wondered if there was some...
After a constant, horrible headache for 5 weeks, I decided to call Jefferson Headache Clinic and was surprised to get an appt for next week! I'm so happy I got in, but I'm not quite sure what to...
Have you looked into Horner's Syndrome? A friend of mine has this, and one of her main symptoms was a droopy eye. It can be caused by several different things, some of which are serious. I'd get it...
I also feel like you've described my pain exactly. I've experienced the same one-sided headache for almost a month now, and no one seems to know the cause or how to treat it. I'm on several...
I definitely believe that changes in weather affect headaches, and there has been a great deal in the news about this lately. There was a research study that came out recently that said that there is...
Thanks! I ended up back in the ER but got seen quickly thanks to friends that work there (it was the only way to get seen). I had an overnight stay where they managed my pain then saw the neuro the...
Hi everyone! I'm new here and desperately need some advice. I have had an intractable migraine for almost a week now and can't seem to find relief. I was discharged from the hospital after a 2-day...