I was just informed by NORD today that they are canceling their patient assistance program. This medical food had worked for me, and getting cut off without an opportunity to taper - as to not shock...
For years now I have not been able to figure out a way of softening up the first few inches of feces without taking Mag-cit or some kind of stool softener before bed to keep the stool from becoming...
Its a ceramic floor heater, I live on a sailboat, and I usually bring the meds under the covers with me every night during the winter months, just for that particular possibility, and last night, I...
My heater broke sometime during the night last night, I had a few months supply of asacol in the room...Room temperature was about 50 lowering to 42 for two hours before I woke up at 7:00 AM, and...
Im sorry to hear your having such a difficult time...Im in a flair right now also (winter seems to be the time for my flairs)...I can say, for me, without a doubt, food has a profound effect on my...
From reading this post I have to tell you a liter of wine a day is way outside the what anyone can consume without hurting themselves, and as an alcoholic that has been sober 30 years now, I cant say...
My insurance will cover it, its the name brand, but man, the cost is so excessive...Ill be picking them up from Vons tomorrow...No blood or mucus today, 2 bm's...This is the strangest flair Iv ever...
Thanks for all the input..I am on VSL 3 double strength, and a strict diet.. I am picking up some rectal mesalamine enemas on Monday, the ins company is not happy about paying 400.00 for 7 enemas,...
Hospitalized with severe UC 4 years ago, went on Asacol after 4 months of Pred, and was doing fine, up until last week...First, some constipation for a feew days, then, a good bit of mucus, then,...
I treated my "Mild" Proctosigmoiditis for 12 years holistically, along with a holistic MD...and 4 years ago ended up in the hospital near dead because it progressed so fast I dident know how to deal...
Without a doubt, for me, the back pressure from playing saxophone (alto and soprano being far worse then tenor or baritone) always causes strain that will lead to problems for me, but I had another...
October seems to be the time of the year my bowel has the most problems, it starts with my stool becoming dryer then usual, even though Im still drinking a lot of water, my upper GI tends to get...
I have proctosigmoiditis, so the colitis is about 8 to 10 inches up the track, and when I lift heavy objects or even ride a bicycle my bowel movements are strained the very next day, if i continue...
Good point, But the TSH test just came back after 6 weeks of Methimazole, so it was a shock to her when she saw the test results....Everything else came back to normal CRP, T4 T3 and so on...I think...
Im tapering off the methimazole, and the new blood test back with my TSH being 104 with a norm of 7, so its pretty high, the t3 n t4 are back to normal, so now they want me to take synthroid to lower...
Proctosigmoiditis, it was extremely sever when I was hospitalized, but its been great ever since I healed form the last flair...Docs have been wanting me to try and get off the Acocol to see if I can...
My insurance company might be stopping payment on my asacol, (its 595.00 a month) I've been if full remission for 3 years now after being hospitalized with a severe flair that nearly took me out......
I had a thyroid storm may 20th with all the bells and whistles...They put me on 25 mgs pf Methimazole a day, and it worked like a charm. I gained back 20 lbs in 6 weeks and feel real good, but every...
Food, stress, environmental stuff, who knows...Its insane.......
Right post for me today...I woke up just this morning and had my 2 BM's, formed, but for the first time in 3 years saw a diluted watery patch of blood on my TP bout an inch round ...I just got over a...
Thats a given......
All started with a sharp pain in my neck in one tiny area... I lost 20 lbs over 6 weeks, was spiking fevers of 104 between the hours of 11pm to 3 am every night for a week...and was getting severe...
I woke up a few weeks ago with a pin point pain in my neck just above the collar bone and below the thyroid...I went to the doctor she felt it and sent me home...Two weeks later Im starting to get...
I have kept a food journal for 8 years now, and what that has clearly said to me is food is a major factor for my Colitis, but I have a friend that has the very same proctosigmoiditis as myself and...
I get the same pain in my right elbow, it can be very painful, and last for weeks...and sometimes I might get a slight campiness after a BM if I drank a lot of water right before the BM...Im always...
Have had many a cameras up there filiming the landscape...lol..., diognosis is proctosigmoiditis......
I have all kinds of allergies, and it always happens wile Im eating salted sunflower seeds, or hot foods...I might remember a few over the years happening wile I was sleeping...But it dose seem to be...
No...these are blood blisters for sure, Iv been getting them for a few years now, and haven't had a flair up at all......
It always seems to hit wile Im chewing on salted sunflower seeds or eating something hot...After the blister brakes which is a few minutes after it develops, I end up with 3 to 6 days of pain as it...
Ive been getting this for 3 years now, and its always right after I eat salty items, or hot foods...I get my blood checked regularly and its always ok so far....Thanks for the input......
I take 800mgs asacol HD 3 X a day, for 4 years now, and I have been getting blood blisters on my tongue, or other areas of my mouth that burst and leave an extremely painful week or two to deal...
I do, Im pretty sure I jarred it back out lifting a 50 lb bag over my shoulder 2 weeks ago...You would think Id learn......
Had a work up done at the ER, and the doctor said it wasent my heart, and my cardiologist felt confident my heart looks fine ...Esophageal spasms possibly......
Iv had a hiatus hernia for years now, but at 58 when I get chest pain I go and get checked out. The other day I went in and had 3 EKG's and 2 triponine blood tests done within 10 hours and everything...
The manufacturer of asacol suggests 1600 as a maintenance dose, but from what my bodies telling me, 2400 seems to be doing the trick for a few years now...Dont want to rock the boat..I did get a...
Good advice...Thanks....
I have been on asacol for 2 and a half years after being hospitalized and near dead almost 3 years ago now...The drug is working great, but the doctors have been weening me to smaller doses over the...
I have problems with oxalate crystals and tumeric can really cause these oxalates to produce crystals just about anywhere in the body, especially in the bowel and kidneys...Might look it up on line,...
No bubble to burst here, Iv been dealing with this illness for 30 years now, I consider remission to be not bleeding, no mucus, only having a BM 2 times a day, no weight loss, little to no pain,...
You know the old saying, better the devil you know... lol ... This is going on for you wile you are in remission?...
Iv been in remission a little over a year on asacol (2400mgs). Most mornings I have a BM right when I get up at 7:30 or 8 AM, then after an hour or so I have a second BM, and maybe a 3rd now n then,...
It seems every year from mid January to mid may, I get hit with exhaustion, low BP, migraine auras, very slight headache, scalp sensitivity, slightly weakened legs when walking, vertigo, slight...
It seems every year from mid January to mid may, I get hit with exhaustion, migraine auras, very slight headache, scalp sensitivity, slightly weakened legs when walking, vertigo, slight facial...
Thanks for the tip......
Its been 2 years since I was hospitalized with UC and the asacol has been a life saver, thank God. But I'm still having problems with my first BM in th morning, if I dont take 700mgs of Mag-Cit...
This time of year going out of winter into spring runs havoc on my system real bad...After a morning bowel movement (sorry) this morning, my whole body felt real sick, Stomach, body numbness, head...
Thank you, Ill look into the link...Sounds reasonable, and I also have dysautonomia,. so that makes it even more of a good possibility......
This time of year going out of winter into spring runs havoc on my system real bad...After as bowel movement this morning, my whole body felt real sick, Stomach, body numbness, head ache, had some...
I did have a carotid artery ultra sound and they said I could drive a truck through them...So here it is one year later getting the same symptoms, same time of the year...Docs think its a migraine...