Yes, that does sound like vitiligo. That is common place for it to be and is as you describe. My daughter has it. You should go see a dermatologist right away. They can confirm it and help maybe slow...
Hello there! I am so sorry for all you are going through. It sounds very difficult. I don't have experience with the same exact thing, but my daughter has gone through a lot and maybe some of her...
I am so sorry you are so unwell. But YES, plaquenil takes months to start feeling the effects. Wait 6 months and I think you will feel a big difference. It has helped me so much. Also, if it were me,...
Jason, have they tested you for celiac disease? My daughter was just diagnosed and she also has fibro....
Ditto Sherrine! I could have written the exact same words!...
My daughter was diagnosed today. First question, are there ever any false positives with this? Before we go gluten free, I just wanted to hold on to a little bit of hope. Also, do any of your get a...
So very helpful JKN! As I read and try to understand more things, here is something I can't seem to make sense of. What is the difference between mono and epstein barr? And do all people with CF have...
Huh, I always thought EBV was mono. Do you need a specific test for EBV? If you were to take an antiviral, can people who have lupus take that? Anyone know that info?...
I so appreciate you responding to my post! I check all of the time because I need help helping my daughter. So many doctors over the past two years. I find that if I drive the process, instead of the...
Hi everyone. I have been on several of the other sections due to health problems for both myself and my teenage daughter. Lately, over the past year, I have seen a number of symptoms that arise over...
I am trying to help my daughter who has been having a lot of migraines over the past year. She also has cyclic vomiting. We have seen two neurologists and the last one suggested we try migra-eeze, or...
No abuse for me. I had a wonderful childhood, and I feel very blessed and fortunate. I am sorry for those of you who who have experienced abuse. I wish that were not the case for you....
I have this too. It has been the worst part of fibro for me. Sometimes it's everywhere, this heavy dull pain in my rib cage and back. the worst is when it is concentrated in my upper chest and collar...
I also have this, and I have lupus as well. I know it is fairly common for people who have lupus to have costo. It is so painful isn't it?!...
Sounds like it to me! I hope that you can get some answers and that perhaps your doctor will put you on plaquenil to get things started. In a way it's a good thing so that you can truly try to help...
That sounds like mono to me. We have just been dealing with that for my daughter. Other idea is strep. When my daughters get strep, the symptoms you describe are just what my kids are like. My...
So my daughter has discoid lupus. We are also fairly certain that she has mono. I found a lot of things that said that using extra virgin coconut oil helps to get rid of mono very quickly. I read...
I've been working on the slings slowly too. Now I want to do a last time bathroom clean, pick up a bit from the kids and their basket messes this morning and I have to make dinner later. Luckily it's...
Welcome Tabmom. I can relate to you because I have four children and I used to homeschool for a time as well. It sounds like a very difficult time for you. As I was reading your symptoms, they sound...
I only have a moment, I will think on this more. I am so sorry that you are having such a difficult time. I am praying for you Bunny....
I know for me, when I start to exercise again, it starts off a flare. I can usually work through it, but sometimes it just doesn't work. Walking does not seem to set it off, but other types of things...
I have had times when I feel like that as well. It is very hard not to feel well, and sometimes it just gets to you. Try to take it one day at a time, or even one or two hours at a time. Also, try to...
What are your symptoms?...
My daughter has discoid and for a year she was told by several different doctors that is was excema. Finally a biopsy showed it was discoid. Has the doctor considered that at all?...
I have nerve pain and I don't have diabetes. It is a symptom of my lupus. i get it in my arms and feet and especially the tops of my feet. I don't have it all of the time. It comes and goes, so I...
Have you or your doctor ever considered lupus? All of your symptoms look like lupus symptoms to me. Have they done bloodwork and gotten a positive ANA? Something to look into....
So what do you think onewish? I've been thinking about you!...
I love that. Something to think about in a new way....
I found it! I have been trying to find this information since way back when my daughter was first diagnosed in the fall. There is a website that is : stopchildhoodpain.org. It is really great and...
Something else I just found posted about RND What is RND? RND developes when an abnormal reflex developes in the sympathetic nervous system. The sympathetic nervous system is responsible for...
Hmmm, I can't seem to get the link to work. Try googling RND parent handout....
http://rsds.org/4/youth/pdf/AMP_RNDparentHandout.pdf Here is an article that explains it nicely that I found online. It is the same one that our doctor gave us too....
Hi Miraculous and welcome! I have fibromyalgia and I have a daughter who has the very same symptoms as you. After a lot of doctor's appointments she was diagnosed with Reflex Neurovascular Distrophy...
Yes, my daughter was considering being a nurse as well. And after this physical therapy she has been going through that has been a thought too. I think it would be less physical work as a physical...
I didn't have a chioce. My fibro came as soon as my last child was born. I have managed just fine. It's been hard, and very hard at times, but my husband is very supportive and I somehow manage. I...
Also, a list of possible symptoms with RND: headaches stomach pains chest pain painful menses poor concentration memory loss insomnia ringing in the ears swelling skin color changes skin temperature...
I thought of something else I wanted to share with you. RND also has two other names, but they are the same thing. CRPS and RSD. Our doctors all called it RND. There is a site with some info you can...
I know if it were me, I would be there ASAP!!!...
I'm back again. After occupational therapy she would do physical therapy. They do all kinds of things there that were really neat. And cardio is a key component. She has to do some sort of cardio...
I'm not exactly sure how long they have known about it. Maybe 10-15 years, but I think doctor awareness is really growing during the last couple. My rhuematologist had never heard of it, and I know...
Hello one wish! I wish so much that I could take your pain away, that really stinks. I know how your Mom feels in a lot of ways, and I know how you feel too. I have fibro and lupus and I am 41 years...
The only thing that helps me is clyndomycin foam. It really works for me!...
It sounds like it may be chostocondritis. Check that out and see what you think. I have that too. My pain started on top of my shoulder and and collar bone and sternum. But it does change now from...
Hi Texas, Your symptoms sound a lot like mine. I even get the severe weakness and dizziness when I get upset or highly emotional. I think that is really weird and I do NOT like it. I'm sorry about...
Well, it sounds like you're getting some answers and that is a good feeling. It is so hard when all of these things are happening to you and you don't know why. And a good feeling to know you are...
I don't know why that little angry guy is at the top of my post. Anybody know how to fix this, or what happened??? Thanks!...
Hi Hailie! I have both fibro and lupus as well. It all came out after I had my son. Things have been hard, but over time (six years now), I have learned how I need to live. I am still active. In...
I want to bump this up so that lazyunicorn has a chance to read the article that was posted....
I have heard that drinking carrot juice, or eating a lot of carrots or sweet potatoes can cause the skin to turn yellow/orangish. And I know it happens to babies who eat a lot of carrots and sweet...
Annabananna, that is what I was just describing! My daughter just went through a similar program that was outpatient. It's RND. I know I keep telling people about it on here, but when children and...