Get a colonoscopy and biopsy otherwise hardly conclusive. Also irritable bowel SYNDROME can be extremely painful on its own. Even if you don't have crohns or b/f moving forward with additional...
Sounds like hemorrhoids. Not all hemorrhoids are painful or uncomfortable, many reside high up in the magical rectal nexus. I am on remicade and this is my current situation. If blood is dark or...
No previous problems with my shoulder, arm, nerves, etc. I thought was sleeping funny but it doesn't seem at all related to the way I sleep. Also, I have a bit of a swollen throat. I am currently on...
My doc just called and he said he wanted to setup an appointment b/c my liver enzymes were high and I'm on remicade. Past few days I've had a really stiff neck that's just been getting worse. I'm a...
After initial diagnosis it will take a bit for your body to adjust to meds, so be patient. I'd also suggest you keep a food diary and try and stay away from anything that will cause constipation or...
Feeling better now, but we'll see. Kind of counterintuitively, ate alot yesterday. Seemed to work as I have had two well-formed bm's today (tmi). Definitely some rectal issues. I had hemorrhoids a...
Thank you! Got some intermittent sleep last night. Had an almost normal bm today. Thanks for the word dikid. Tenesmus. Nice to put a face to it. Thanks for the support : )...
I don't know why I'm still going! I have this incredible urge to go and...nothing. Every twenty minutes in the bathroom dry-heaving. I don't know if I'm complaining or asking for advice but this is...
It is absolutely not his prerogative to judge you or tell YOU how YOU feel. His job is to administer treatment and get you feeling better, he has no business telling you how tough or not tough he...
After a bad flare about a year ago my iron levels were very low, hemoglobin was hovering around 10. After a series of iron infusions, iron and hemoglobin went to normal. I take 45mg of iron to...
I agree, don't be too quick to ditch the remicade. If there are no antibodies or adverse reactions, remi is too valuable to give it up so easily. Remember, once you go off for a prolonged period, the...
I currently take vitamin d, iron and c (for absorption) for low levels. I also take 400 mg of b12 for migraines. So far I've had a really good experience with these vitamins and I'm looking to: a)...
Yep, I get them too. It really sucks. I work really hard to keep my kp (chicken skin) on arms and legs in check with all kinds of products and what do I get...freaking buttpimples....
Here's an encouraging thought: Me and two family members suffer from crohn's disease and we've all been anemic at some point; friends, extended family w/ crohn's - same story. Like scifigal said, it...
I had a doctor (not a US doctor) suggest a liquid diet; I believe he wanted me to try a product made by nestle. It was a couple years ago and I can't remember exact name of product. Although there...
Has anyone had a good experience with a migraine study? A bad one? There's a study run by a local Dr I'm thinking of trying, not sure what drug yet. Typically I take Rizatriptan and Tylonel three for...
I'm definitely considering going to the emergency room for iv fluids, etc, but for now d has been less frequent. If d becomes worse again it's straight to the emergency room for me. Thanks for the...
Was having a bit of a flare two days ago, mostly d not much pain or cramping thank g-d. A day or so in it started to get ridiculous, I was going to the b/r five-six times an hr. So I took a VERY...
I've had bad gas, sometimes really painful fetal position gas. My doctor recommended I take semethicone. Diet though is probably your best bet; a basic elimination diet can do great things for...
I have a stricture. Really that's a very broad question; how bad is the stricturing? Is there significant inflammation? Is it getting worse? Affecting motility? It really depends on quite a number of...
You're on prednisone? Eat up, that's my advice; if you have a poor appetite now just wait till you taper. Whatever you can pack down the ole gullet. Try not to eat too much junkfood :wink: Best of...
This may not be so helpful...but I've experienced a significant uptick in heartrate and anxiety a few years ago when on prednisone and was also worried when the side effects stuck long after I...
It certainly can be internal hemorrhoids. I had similar symptoms and my diagnosis was internal hemorrhoids. Fistulas are bad. Boo! Here's to hemorrhoids, lol....
I'm getting remicade infusion in a few weeks, so I will do all my bloodtests then. I'll ask my doctor to check vitamin b levels as well. Does anyone find it strange though that I'm tired only AFTER...
You seem to have all the symptoms of crohn's disease and your doctor confirmed it by finding ulcerations in the small intestines. I certainly sympathize( I and many family members have cd) but do you...
Ok, so I had iron and vitamin d tested about three weeks ago and they were fine. Sorry, I should've included that in the initial post. I haven't observed any blood in my stool or anything else that...
My bm's have been good lately(fingers crossed), going about once a day or so, but I'm so tired! Lately after a bm I feel completely sapped. No energy at all. If anyone has any suggestions I would...
Yeah, please stop googling. I've been through periods of significant anxiety in the past, both with respect to cd and not, and trust me, google + anxiety = bad. Not a good mix. If you feel like your...
Staying informed is good, reading up on rare side effects...not so much. Try and avoid reading frightening articles; there's a lot of information out there and it can be pretty overwhelming. About...
Yeah, sry, you're just gonna have to try it to find out. Personally, incense sticks will give me a bad migraine about 80% of the time. I too, am pretty good with scents and fragrances, I actually...
I remember during an intense flare in college, I had a bad accident, snuck into the dorms like a spy and dashed into a b/r when the coast was clear. Sometimes it just comes with the territory....
Incredible! What a beautiful baby boy! Feel good and best wishes for you and the little guy....
Has anyone had success alternating medications to avoid rebound headaches? I had a major break through migraine last week and now I'm getting small headaches almost daily. I can manage them w/...
Thank you for the helpful and encouraging reply!...
I find that those startling and frightening epiphanies we sometimes have are perfectly useless. You smack your forehead and astonish yourself by reflecting on the situation and come to some wild...
Try not to get on hung up on what's 'best'. Believe me, the story on remicade hasn't been written yet. Imuran on the other hand is very thoroughly researched and generally considered quite safe. I...
I've had similar issues in the past. Often diet can correct it. I know myself, I'm sort of on and off w/ dairy products; sometimes I'm sensitive, sometimes I'm fine w/ them; same w/ greasy foods. I'd...
If you haven't been on imuran previously, it's certainly worth a shot esp. considering ur circumstances. When I was first diagnosed w/ crohns about five years ago I was on imuran for about two and...
I posted a few days about a bad migraine I was having then. The headache lasted around 3-4 days. Since this was probably the worst migraine I've ever had and meds didn't work I made an appointment to...
I agree, it's good to commiserate. My migraine seems to be fading a bit now. After two days in bed, lots of water and a good bit of codeine, I'm doing much better. Hopefully will be able to see my...
Haven't posted on this board ever, so hi I guess; anyway here it is: I've been having migraines probably since childhood, some years are good and some, well, not so good. First med prescribed by...
Thanks so much for the great replies! Am making an appointment with my gi asap....
As I've mentioned in a recent post, I haven't been doing so great these past few weeks, I think I'm having a bit of a flare up. Anyway, here it is; for a couple days now I've been having heartburn...
That's interesting; stopping and starting remicade is usually avoided unless absolutely necessary. A reaction following a long period away from remicade is practically expected....
Scar tissue can and does get worse. In fact my most recent colonoscopy showed a stricture which gi said was scar tissue building up on the walls of the intestinal tract. As to dr saying sedation...
Depending in on the condition of course, mt. sinai has some of the best gi's in the world. An immediate family member just had surgery on illeastomy site that had become blocked w/ scar tissue. Based...
I think it's the lesser of two evils. Yeah, you might get a bit carried away sometimes but I can't tell you how many times I've found it useful or necessary to know what my lab numbers were....
Thank you for your thoughtful and informative replies! It's great to be able to talk w/ fellow crohnies(?) about these issues. Does anyone have any good ideas for the fatigue? Sometimes I sleep 10 -...
For the past year and a half I've been on a regular remicaid regimen, getting an infusion every eight weeks. For the most part it's been going pretty well, occasionally some cramps b/f an infusion...