I believe the average age of onset is 33, and it often takes several years before a person gets diagnosed. I know of only one other person diagnosed at a young age. SHe started another forum...
For the first three days on indocin, my husband's headache "rearranged" itself. This was difficult for him. After three days, his pain was greatly reduced. After awhile, the success was diminished,...
Wow, what a great answer!!!!...
Hi, Gracie, Currently my husband is in a medication induced remission. It has only been about three months. Prior to his remission, he suffered from a unilateral (one-sided) headache 24/7. This is a...
Good news....after three days of pain, it has subsided. We are suspicious that a stressful event triggered the relapse, but today he is doing fine. As you know...every day headache free is a good...
Gracie, I too am the wife of a man with a chronic illness (hemi-cranium continua). My husband, too, spends a lot of time in bed, and I often feel like a single parent. And it is so very hard. My...
Sorry you are having a tough time of it. Have you tried Lyrica. So far, it has been by far the most effective medication my husband has tried (three months). That being said, the effectiveness is...
Yes, I will keep you posted, and I hope you will do the same. The one person I know of who has had the implant really loves it. Of all the people I know (5) with this diagnosis, she is the only one...
Hi, Ann, thanks for your reply. Yes, he has a great Nuero-pain specialist here. Oxygen has not worked for him, nor have the nerve blocks. His current drug cocktail is lyrica and indocin. He uses...
Hi, I am new to the forum. My husband suffers from hemi-crania continua. It is a unilateral migraine. he has it 24/7. In his case, at its worst, it travels down the entire left side of his bady. It...
I am new to the forum. My husband suffers from hemi-crania continua, a unilateral migraine that he has 24/7. He was put on Lyrica several weeks ago, and it has been very helpful. He tried Nuerontin...