Oh Cindy. I hear you on FM! This disease is a flipping roller coaster. Some days I feel just fine and other days staying upright is just asking too much. And it's so easy to feel alone...because...
I was on Copaxone for nearly two years until I started having a bunch of IPIRs. My doctor took me off two months ago, and now feels we better go with a different treatment. I chose Copaxone because...
Being diagnosed with MS has significantly impacted my marriage....but in such a POSITIVE way. We are so much closer and stronger than we ever were. It's one of those things that made us look at what...
Hi all! Lately I have been experiencing random choking. It happens when I am not chewing or drinking anything. I have nothing in my mouth...I'm not talking or laughing or anything. I just suddenly...
Thanks for all the advice. What you have all said makes sense. I know that I should try to be there for her regardless of how she treated me, because I don't want to have any regrets in the future....
It's been 14 months since my official diagnosis, and my sister-in-law and good friend (or so I thought) doesn't want to talk to me anymore. She has told me that she is uncomfortable being around me...
I thought I would share this site with everyone, as it always brings a smile to my face and hopefully it will bring some smiles to you too! I am a lover of animals, and I sincerely believe in their...
You know, that is a good point you both bring up that I didn't really think about. Perhaps it's not the Copaxone that's brought on my anxiety, but just the stress of having MS. I too am a bit of a...
I have been on Copaxone for year now. For the most part, my side effects have been very minimal and I just had another MRI to see how it's working up there in the ol' brain (still awaiting results on...
Hummingbird, I also have these neck spasms, almost exactly as you describe. Don't really know what causes this, or if it's MS related or not. I suspect, however, that it's muscle spasms or simply...
I've been stewing about this all weekend and I just had to get it out! I've seen my fair share of jerk doctors, but this guy takes the cake. He runs the MS center here in Salt Lake City, so this guy...
Thanks so much for starting this thread. I have really been struggling lately...letting everything get to me. I've been so down. I really needed to read this. It made me stop and think that, yes, I...
My husband and I are contemplating starting our family. Any moms out there care to weigh in on their experiences with pregnancy and MS? How were your symptoms? Fatigue? Were you allowed any meds? I...
I've been on Copaxone since February with little problem. Last night I had my first reaction....tightness in the chest with a bit of dizziness. It was mild, and passed within 10 minutes. All the...
I have experienced this before, but it was a few months before I started Copaxone so perhaps it's just an MS thing. I have been on Copaxone for about 8 months and haven't experienced this again....
I lost about 10 pounds after my diagnosis, which I attribute completely to stress. I was in shock, depressed and having panic attacks. I ate, but my body was in panic mode and I dropped pounds like...
I have been practicing yoga (with meditation) for a while now and I find that it helps in several ways. It's a great way to stretch my muscles and to relax my body as well as my mind. It helps my...
Neurogirl~ I feel your pain! It took me almost a year and a half to get a diagnosis. I understand completely what you mean about it affecting your quality of life. So many scary and sometimes...
I did a ton of research and talked to my doctor about the fluid leak thing.....it's not very common, though it does happen. Everything I read said that the best way to avoid it, like Gramps said, is...
I totally relate with your fear!! I was terrified to have my spinal tap done too. I had it back in January just after the holidays. I had a crippling fear of needles and my doctor says she wants to...
Hey thanks guys. Yeah, I've been doing my hips, thighs and tummy now...rotating to a new area 5 times a week. I don't want to do my arms, mostly because my arms are visible. The nurses just freaked...
Okay...I've been on Copaxone for 7 months now and I've been too chicken to try my arms. One of the first nurses I talked to scared the crap out of me, she told me how some girls have just been in...
Hi Barb, I've been on Copaxone for 7 months now and I have to say that I have not experienced the chills. I have, however, had the chills (to the point of shivering) during flare ups...although based...
It's not my bladder that's causing the frequent bathroom trips. It's the, uh, other end. :) If this continues through today, though, I probably should get in to see someone. I probably just have a...
Not sure if this is MS related or not....let me know if any of you have experienced this: It all started Sunday with an extra dose of fatigue and an ms hug in my chest and torso area. I've had these...
Wait a sec....I thought the needle was short enough so that it didn't go into the muscle. I didn't actually think there was a chance of this happening. I can't do manual injections, and I have my...
I've been on copaxone since February and I too had problems with huge welts like you are describing. Are you using the auto injector? If so, what depth setting are you using? I was told for my height...
I too am still having problems with this. Personally, I think it's the syringes because when I've manually injected, I do find that I reach a point where I have to apply a bit more pressure on the...
I am the biggest baby in the world. I always cried when I had to get a shot. Then someone tells me I have to get a shot every day!?! And I have to do it myself?!? No. No freakin' way I'm thinking....
I saw Lorenzo's Oil years ago when it came out. It's an amazing story, definitely worth a watch! Makes me wonder, though, if anyone out there has thought to research if this oil helps with MS. I'll...
I just had to share these links with all of you! They are about "Laughter Yoga", a real health practice that is becoming increasingly popular in India. They say that laughter is the best medicine, so...
I went and did a little more reading on this too and that does make total sense now. However, it doesn't really say what NOT to take or how much is too much. I don't take anything unusual...vitamin C...
I'm confused. Why wouldn't we want to take vitamins that strengthen our immune system? All the research I have read has suggested just the opposite....
I too am surprised that your doc took you off Copaxone after only 4 months. I was told by my doctor that they will watch me for 6 months to a year to see if it's working. Maybe a second opinion is in...
She worked for a neurological group of doctors, and just referred me to "anyone else" in the group. Not specific at all. I don't know where she transfered my records to, but I have a copy of my...
I'm walking around like a drunk lately. I'll be walking along and suddenly walking a straight line just doesn't work. My feet cross over each other, trying to correct my walking, and I just end up...
Oh Lysha, BIG HUGS!!! I hate to hear that you are experiencing these symptoms, but if they have prompted your neuro to look deeper maybe this MRI will bring you closer to some answers. I know exactly...
Hey Lysha! :) Yeah, I get this as well. Like MS doesn't give us enough to put up with, now it has to follow us into the bedroom? Sheesh! I've noticed, though, that I get a nice dose of numbness...
Hey Buckeye! Thanks for your thoughts. How are you doing after 4 months of injections?...
Debbie, I actually have experienced this lately. It happened a few times on my last box, and it's happened one time with this new box. I haven't called Shared Solutions about it, because there has...
Hi Anthony, NOT a stupid question! When it comes to MS, I don't know that there is such a thing as a stupid question. I experienced some mild hearing loss a few months back. I had a hard time telling...
Kas, I have been on the pill for 10 years, but was only diagnosed about 6 months ago. I have not noticed any connection, but I have never stopped my pill. Can I ask where you found this information?...
Cecelia, I'm glad to hear that you have reached a point where you can begin moving forward. The "lets wait and see" game is not fun to play. I hope your treatment goes well. Do you know what kind of...
It was only recently that I learned that the tightness and squeezing feeling we can get is called an MS Hug. What an adorable name! Adorable and slightly ironic. :) Anyway, I have had these before...
Thanks Kimber! And thanks to everyone for their input. I honestly think the best (and only) thing I can do right now is to just calm down and don't panic. It's a frustrating situation, but being...
Sassafrass, I would love to talk to you and find out what alternative methods you are using. Your email address shows as unavailable, would you like to email me? Mine is listed in my profile. Thanks...
I have been on Copaxone for 6 months and I have had extremely good luck with it. The only side effects I really got were skin irritations, lumps, itching, etc...but have found some really simple was...
Lorna, I would like to hear more about your experience. Feel free to email me if you like. John, My local MS Society Chapter does not offer financial assistance for medical bills. Although it may be...
I'm actually not considering stopping treatment due to any pain or side effects. Surprisingly, those have been minimal for me on Copaxone. The problem I am facing is financial. We are sinking under...
Has anyone out there who has been diagnosed chosen to not get on an MS modifying drug? Or, has anyone been on one and chosen to stop drug therapy all together? If so, I would really like to talk to...