Well, Deb I've been out of the loop for a while, and came back to check on you.I'm confused.Nothing on your MRI.Hey?Well I can sort of relate,when my son had every symtom of a leision in the brain...
Thanks Deb, Yes indeed one week of bliss................How are you, and what's your update?...
Things are going fantastic,my son started on the Neurontin and he doing fantastic.Those are his words.Has slowed down the eye,,Nystagmus. given him energy, and took away some of the pins and needles...
Well, just got home from the meeting with MS professor.He said the MRI is stable,no changes, in the 6 months.He said he would leave it up to my son,about useing the Rebif with Copaxone again, it was...
I can barely explain how wonderful it was for me to get all your responses.I leave my computer on most nights, so I don't have to go threw the whole jazz of turning it on.I had no time to send a...
Deb, Are you Ok.. I quess your still feeling puny..I"m thinking of you. :)...
Thanks Grethen, Your note helped me sleep last night, I forget, how to give this to God,sometimes..not sometimes ..alot actually.I felt better today and happy, I just forget how..and I carry the...
He's setting aside the contacts for a few weeks, Friday we go to MS professor.Hes wanting to go back on THe Rebif & Copaxone combo.Thats when he felt the best,just being on the Copaxone is not enough...
Hey Back Deb, Well they rushed him in for another fitting tommorrow, he called his vision Dr. @ Uof M and she squeezed him in @2:oo.She said well, the fitting I gave you was very silimar to what you...
Ajustments have to be made to contacts.They fitted son in the office, contacts were great.Well what they did was customized for his eye size, and that is the problem.They fit perfect.Makes NO sense...
Didn't know that Rhonda! Interesting. May have to look it that..Thanks...
Gosh Barb, I'm sorry to hear that.Your in my thoughts.Keep strong.Deb...
Gosh Barb, I'm sorry to hear all this. Please know my thoughts are with you.Deb...
Thanks Deb,(& everyone else) I'm feeling really good today & so is Rick,One more day..one more day...I always seem to have feelings that always seem to be on target.I'm feeling great.God is lifting...
Yes..I do have the MRI's on CD..Alsos the reports, The last one was hard to read cause it said something to the effect that the one leision showed some progression.I didn't want my son to read that...
Made it though the MRI today he went by himself,drove the hour to get there,had head neck spine area done.Two more days till he gets his contacts, hes so excited.God Bless him.Praying for good...
Welcome Christine, I don't know much about Tysabri, there has been suggustive under tones from MS doctor,for my son. So all I can say is (my wishes are the best for you). I'll be looking for your...
noted...
Ya know,my son carries a cane, he ordered it on line, from the TV program HOUSE.Its got the flames on it just like Dr.Houses.Even though he seldom needs it,when he does, hes got it there for support....
Deb, Deb,Deb,My goodness. I can't help you with any of my thoughts, I know nothing about these kind of symptoms, but I just wanted to tell you I'm thinking of you.Youv'e been very kind to me. I have...
Good for you!!!!!!!!!!!!!...
Ya Deb, I'm excited too..I hope everything goes well.We should get them next Friday. There is always that nagging doubt if it will work in the long run, that troubles me,cause everytime we get...
Yeah Deb, been busy....Yes yes yes yes yes...The contact lenses is the answer...we did a test @ U of M..ya know a fitting..anyways It worked,STOPPED IT..it will be a little difficult cause they are...
I am.....
Good for you!!!!!! Our family doctor told us, to take meditation classes..(The closest ones are an hour away), Or to try yoga,when hes up to it.His beliefs are that you need to connect your mind &...
Hey Keira, Neurontin & Balcofen does help with the eye jerky, for most,I am told..We tryed Neurontin for a short while, but it made Rick dizzyer..How do you take it? We had to do the ramp up...
Well I can certainly relate to this issue.When my son had his relaspe his bowels stopped.Urine was darker..Dr. gave him prescript ion liquid..nothing.....days went to weeks..His stomach poofed...
Ya know, alot are suffering with this eye problem...What a nightmare..My son gets no relief, only by meds..he stuck with it always.So we will do permanent things to fix it..now.Its been so long.Hope...
Thank You Deb....It's hard to believe at times,ya know.Its alot to deal with,for both of us.He's a strong young man with lots of hope and faith. I pray for a cure..for all..Deb...
Thanks Shar,Good, stay home and relax,plenty of time for work...I'll let you know,upcoming news.Deb...
Dear Shar, I was thinking of you..u..ok...
Yes, Hes ok, getting tired with the eye thing..It takes alot of energy to cope with that all day.Monday is U of M day for contact lenses.Hopefully we get them that day,already saw the nero op, but I...
Dear Numerously Blessed, why do you take Provigil? How does this help you? Does the Lexapro make you tired or sleepy?How do you respond to the Trysabi? Were you on something before that?...
Hey Deb. any news on the MRI's yet? How has your week been?...
Please try and stay positive, I hate when people say that but...we're all out here hoping the best for you..Try and rest and don't stress to much about it. Maybe you over did it alittle..,and...
Hey back, Ya me too..52. VIEW IMAGE I'm glad your having your MRI today.Rick has had episodes,but instead of migranes,the vertigo came with the eye tics....they thought maybe it was mirgranes, it was...
Shar, my son is also 30 years old.Starting into the 4th year now.1 year dx was brain tumor then CSI.2nd year 1 more leision=dx-MS.he never really has any relaspes until last year,it hit his brain...
I'm so glad I met you here..How old are you Deb?...
That is also my sons saying.WOW,,that too ironic!...Almost scary:) Your awesome Deb. But, the thing thats the most awesome is: my son has found the Lord, thru all of this...when things have gotten...
I'm so happy for you!! I don't know your history, can you enlighten me ?My son started with Rebif,(2years) but still had a severe relaspe, they switched him to Copaxone , now its been a year,,,will...
Dear Keira, Thank you, for saying that,but, its not me thats the inspiration.. It's you, that inspires the people you touch....
I hear Ya...Life changes in so many ways...How can you plan a future when you don't know it? I just put my trust in the Lord.He'll take care of me and mine....
Keira,You have touched my heart and many other people I'm sure,God has given you that gift in your writings, I will add you to my prayers,and if you pray the rosary,or don't know how,there is a...
Me too..I fall aslept praying.....
I have a first cousin with Lupus, and also...first, second and third generations..with MS.(also my son).All from my moms side.None of my family history had both together. That we know of...
Your awesome.....he reserchs everthing before he takes anything,,,so I told him to get busy,do the homework.The 24th we go to U of M, for his fitting with contact lens,(no precription inculded.)They...
Thanks Deb That's great new for you...Well I did go to CVS yesterday...I saw a few diff. kinds..i was unsure of what the MSM was about[b] (so I didn't buy it)..Waited to hear from you. Not cheap...
Hi Deb Well, My son explains the days(which have been only a couple of)and hes starting his 4 year with MS, he calls the few days of weightiness..his sandbag days...he explains it as carrying a body...
Hi, Deb..its Deb..(funny)..I don't know anything about the pain that comes with MS.I have not had to deal with this issue.I'm living this illness second hand.I rarely have a day, that I don't spend...
Welcome, and your welcome, I don't know if that's your problem, but that what Ricks problem.is..he has to take the drugs, cause his bouncing has to be sedated...so he can focus...he gets the vertigo...