I have this also and have learned first of all not to sleep on the side or limbs that go numb. Might sound silly but I have a tendency to move alot so I try to start out sleeping right first. I use...
Katie, you're not alone by any means and it's most frustrating when our health is freaking us out, our spouses don't take a major interest in being there for us like we most likely would be for them....
I am primarily right sided on most all my numbness & spasticity issues. However recently I've developed left sided foot drop which is a peculiar thing....
Looking back now, my very first symptoms were right after my son was born and my pupils of my eyes were unequal and I had extreme headache issues. Multiple cat scans and dr visits couldn't find a...
dear Colee, you ARE a brave lady and one I am grateful for bringing this up! I have wondered for a while how to broach this subject as I have been dysfunctional for several years now due to the MS....
It's wonderful when the big 3 tests confirm right off the bat and say yes, to a firm dx but from what I understand there''s a lot of us out here with the nebulous, multiple symptoms chronic issues...
Ok, I'm seriously confused here (and that's so easy to do these days! /community/emoticons/turn.gif ) Is WillyWee and Momof6 the same person? Just wondering ... Nonetheless, follow Gretchen's...
Hey Tertle, I'm at 200mg daily right now in the morning and some of the fatigue still sets in late in the day, but that's ok, because then I can sleep and wind down at night. But I understand some...
Hey KAS... meant to say your most welcome... anything to help others realize it's a journey. Trust the process, trust your neuro. When you don't trust your neuro, find another you can. It's already...
(clapping) Bravo Gretchen! Misdx's happen... but they're not encouraging when we know what we're dealing with and others are seeking....
Hey Gretchen, sorry about that... yep, had the appt and yes, we're on the wait and see. His thing is this: one more flare in the next quarter and we will go on copaxone. That is the one he wants me...
Hey Kim They're right here... the neuro's gonna have to tell ya if that tells you anything because I can tell you from experience I had the same kind of results but it was from the viral meningitis I...
Ah, Kid, run from the steroids while you can because eventually the steroids will rob your ability to run (I know the MS already did that probably at least for running per se) but Steroids will...
Hey KAS, Happy to share my story, though I often feel weird cos it doesn't "fit" the expected norm of definite routine... lesions and obands. I wish it did sometimes but then what difference would it...
Absolutely agree, Casinokid! Provigil is my personal godsend! I wouldn't and couldn't go without it without feeling like molasses on a freezing day! Awful slow, Provigil makes up for all of the...
Not like that on my face... I have that deep itch in the middle of my back on the left side... same exact spot every day. It's crazy......
Yes, larae, I am one who has no lesions (that they've found yet) and no Obands via the LP... however, by all accounts thru a neuro exam and nerve conduction test and Optic Neuritis, my neuro has dx'd...
Excellent post Gretchen, you just explained one of my most embarassing symptoms in the most dignified way! and yes, too, I was as you can dx'd before the MS, but then everyone was ignoring that part...
Barb, I have a lot of numbness but it not inclusively head to toe. Mine is my right leg, part of my right arm, part of my right face, my left big toe, sometimes both hands... and they all fluctuate...
Like I said I'd stll suggest the supplements, it's alleviated the severity of the constipation for me, the other half of the pendulum is probably compounded by the stressors of MS so I just deal with...
Hey Sand, I wondered the same thing about "flares" ... until I went thru a couple in a row and now that my body has "calmed down" I know the difference. They are very intense. For me one was a bad...
Welcome Dennis you've found a great place for info and support. I do have IBS and MS. I was dx'd with the IBS back in '96 just about the time the MS symptoms cropped up however it's really hard to...
Looks like this is going to be something to monitor closely. Since I'm so new to the whole progression therapy treatments, it baffles me alot. So I'm just listening to all sides and learning what I...
You're most welcome Joan, it's alright to keep asking questions though and it's great that your PCP is so good you've got a good trusting relationship with her. I'm sure she'll get you checked out...
Welcome twin, taking that first step to trying to figure out what's changing in your body is a huge challenge! But congratulations for facing it! I can tell you like Gretchen pointed out, this is a...
Man, Gretchen you've said all the things I've feared in trying to decide on this... I'm gonna be listening alot to my doctor, I guess but he's in the in between thing... I think he's torn on the...
Since this is all new to me, I thought I'd follow up with the info from the MS Society.... Here's a link to their report: http://www.nationalmssociety.org/news/news-detail/index.aspx?nid=260 What I...
I know this sounds silly but since discovering Provigil, and I believe it came from y'all's suggestions... I feel like a Provigil cheerleader! /community/emoticons/smile.gif ...
Oh yeah, sometimes it's good to be quiet... as long as it's not a depression hole you fall into and it's just a quiet recoup time, I don't see any wrong in it... I think everyone needs that to...
ooh, Gretchen now that's a great idea! Gotta go find hubby's socks and then snitch his rice from the freezer... he already keeps a bag of it in there but it's already open ... with my 5 cats around...
As I mentioned in a post below, my neuro appt is next week and we'll discussing progression therapy. My neuro has already talked about Copaxone as an option he thinks would be good... but then he...
Hey Totem, this is one time, I kinda differ with Rhonda on pushing for that LP... I'd wait for the neuro appt for that LP... for one thing, you need a neuro to do it right, or someone very qualified...
Oh excellent idea, Rhonda thanks! I shall get my bag of rice tomorrow and do that! I know I just love that feeling and man, I'd give anything to have a "cooling" pad like they make heating pads! :)...
That's weird James but neuro has specifically told me chiro is out of the question for me anymore unless I want to intensify my pain, which is what I was doing with the treatments I was getting. So...
Well I just googled it cos I didn't have a clue what PML is and it's downright frightening! Good thing it works so fast and definite I know it can't be my problem... but man, that'd be a nightmare....
I don't think it's a for sure... from what I understood from my neuro, it's a tool to get a reading. If you're throwing o bands then it'l confirm it, if you're not, you can still have MS and not show...
Hey Rhonda, yeah I think the vacation thing helped alot on that... but with me I'm kinda weird... I have remote access on my second job so I still did some work in the afternoons and evenings while...
This is a happy post. I think I've hit a "peaceful period". It's kind of odd because for most of the month of June I thought I was at war with my body in just about every symptom going nuts on me and...
What a lovely thought it would be to have MS without pain... but yes, I've heard of folks with it without the pain, their symptoms run in other directions, not so much in the mobility pain modes. So...
LOL, thought I was the one running behind here, Gretchen! (Besides, slow down is not in my vocabulary - as I'm sure you've noticed) :) I always fear there'll be a day I'll be TOTALLY slowed down! And...
Hi Sanddune, I can totally relate to your fatigue and Rhonda's right on about the Provigil, it's my godsend! I tried the B12 and alot of other supplements and didn't get much success... but the...
Hey Amanda, welcome to the board. You'll find great support around here and lots of good information. It sounds like you're having a really rough time of things emotionally which can cause alot of...
hey Gretchen haven't gotten it yet... but hey, Olivia's mom... my email envelope is available to mail here on the site... email me and yep, let's get in touch! Would love it... this is so wild......
Well said, Gretchen, thank you and Rhonda for your limitless patience. Ditto on Kitt's note....
Whoa, 20 pokes? OMG! You had to be a hard one... he checked me and was so late getting there and so flustered cos the office negleccted to tell him I was waiting at Blake for him... that he ran in,...
Hey Willy, It makes perfect sense, it's a fine balance and it takes a lot of trial & error to figure out the right limits for your body. I know I get all energized & determined & then I...
OMG, this is too funny! McElveen did my LP too but I'm a "leaker" and got the headache stuff... the LP though was the easiest I'd ever had! I haven't met Sinclair, I got dealt Gonzalez for my Nerve...
Goodness gracious, same town! McElveen. At least I've been very happy with him, he's thorough, came highly recommended years ago for other stuff during a meningitis bout, and really put me thru the...
I felt an initial "rush" sensation, but not jittery stuff... I'm not on any major med for MS either though so I don't know what it'll do with that. For me it's leveled out, thank goodness....
Gary, why in the world would Canada ban Flexeril? That's downright silly to me as it's non-addictive, simply a muscle relaxant... Soma is addictive... but can you get Zanaflex? Supposed to be sorta...