John, I live in Upstate New York. Neuro's around here are few and far between. I have to travel on average about 60 to 90 minutes one way to find a decent specialist. I have asked my primary doctor...
I went to my primary on friday and she is gonna help me get in with a local neuro. She said that after 3 appointments, the other doctor shouldn't be recinding all of my dx's from a rhumey. He thinks...
my MRI's and he told me that they said the same thing as the last one. I asked for a lesion count and he didn't answer me. Now he has recinded ALL of my dx's including fibro cuz he doesn't feel that...
I took your survey. And I would like to ask you to post your results here when you get them done, if Peter will let you anyway. Heather...
Heather...
You could also get a list of doctors in your part of the state and check their names with the NYS Medical Board. From what I've been told these are all the records of complaints filed against any...
Becky, On a normal day, I want to sit down and cry. The weight of my clothes is uncomfortable and the thought of putting my feet on the floor makes me cringe. On a bad day, I want to scream from the...
Becky is right. I am in the same boat right now. I am waiting for my court date to be set. It takes 2 years to get a court date in NY. Social Security denies most everyone the first time through. The...
Prayer, Thanks for your thoughts. I really miss my old doctor. He was the best. He always listened and he never pushed anything I told him off the the side or ignored me. I have found a neuro close...
Kelly, Keeping yourself busy can be a good thing. Just try to not over do. At least keep your mind busy so that you don't have time to obsess over the neuro appointment. Did you hear when your...
You may have been having symptoms and just didn't realize that you were. The spells, I have a different type of spell. Mine are bouts of extreme fatigue numbness in my fingers and feet, and...
kelly, The best I can give you it this: bilaterally means that the lesions are on both sides of the brain. without midline shift is a good thing. My old neuro told me that means that both sides of...
Gretchen, I love you!!! You have just echoed my ideas. I have decided that I am going to the appointment in July and asking this doctor to explain to me why i have all these symptoms. I asked them on...
Hey, This new doctor wrote a script for copaxone. I have to get it from mail order and the company has already gone through my insurance company for approval. Now, I'm not sure if I'm even suppose to...
Hey all, I am at a loss. My doctor just called and said that my spinal fluid tests were normal. He had his nurse tell me that there is no sign of ms in my spinal fluid. I know that something is wrong...
If your doctor thinks it's fibro, then it's possible. I was dx'd with fibro by seeing a rhuemitilgist (sp?). I on'y go the dx after everything else had been ruled out with testing and blood work and...
I get where your coming from. My only difference was that my doctor left it up to me. Then he got sick and closed his practice. Now I am pretty much trying to get all this together on my own. I have...
Right now, I am missing the man my husband used to be and should still be. I miss talking into the wee hours of the night about anything and everything with my cousin. I miss living. Heather...
I am angry because I can't go hiking with my kids. I am angry that did laundry and cleaned all day monday and now on wednesday, I can still barely move. I am angry that my husband doesn't get it...
I do the same thing. I have taken to writing down the general directions back to my car in a little note book that I care with me in my purse. And I make sure that I go out the same doors that I came...
I have the hand tremors, but mine are causes by something other than fibro. My fibro is secondary to everything else that i have going on. As for the rest of your questions, no on both. Heather...
I had several different dx's before anyone settled on fibro. I was told that I had something wrong with my thyroid...which was fine. I also heard that I was pregnant so I was gonna be tired and in...
Piercings, In the last 13 years my husband has lost about 3 inches in heighth. He has disc issues. We feel that he has degenerative disc like his dad. And my mom just turned 60 in November and she...
I can pin point the date exactly. My fibro started August 5, 1997. That was the date of the birth of my first child. I went into labor and stayed there for about 24 hours. All of a sudden my heart...
I had an EEG a couple of years ago at the request of my neuro. He told me that I had a slowing in the T2 waves. Then the MRI showed lesions shortly there after. I don't know why he wanted it...
You whine all you want. That's what is so wonderful about being here. We can say what we feel and we don't get judged for it. I think everyone has been there. I know I have. My only problem now is...
That's some good news for ya!!! I am hoping that this is taking some stress off your mind. I don't think you need to worry about anything more. You have enough stress from the sounds of your posts so...
I found something that has high heels but they don't hurt me as much....I found boots as wal-mart that have a thick heel so that I have the support and still look good.....lol!...
Absolutely...My whole body hurts like alot of the time. Some days just the weight of my clothes is so painful that I just want to scream out. Those are the days that I wear as little as possible and...
I miss getting down on the floor and playing with my family and the dogs. I miss hiking. I miss working 40 hours a week. I miss who I used to be. I miss everything I've lost from this. Heather...
I'm not sure what the vitamin tests will mean. I have both fibro and MS and sometimes it's hard for me to place my symptoms into catagories. The pain I can sort of tell the difference, but as for the...
I get what your feeling. I am in the same boat. The only difference for me is that my husband made me go file for SSI almost 2 years ago. I was denied the first time but the wonderful man that helped...
Andy, I am so very sorry for what your going thru. MS takes it toll. My husband and I are having a tough time right now too. I hope everything works out for the best. (((((hugs)))))) Heather...
Hey, I was only taking 30mgs. I couldn't get past the sickness to get it up to 60. I am thinkin it's to controlled release part of it. I my stomache can't handle that part of any meds. My PCP gave it...
Hey, I have a quick question. My PCP wanted me to try Cymbalta. I took it for like 2 weeks, but every time I took it, I got sick. I couldn't tell you if it works for me cuz I couldn't ever keep it...
That is a good list....it made me smile when I needed to the most!!! Heather...
I've done the key thing and the glasses thing too.....my husband just laughed with me and told me how silly I was... I have also done the work thing tooo. My kids loved it cuz I got them up on a...
pink is breast cancer, red is for HIV AIDS, yellow is for supporting the troops along with red white and blue ribbons. I found a site a while ago. I will see if I can find it again tomorrow and let...
Sorry, my computer froze before I could ask my question....... Have you ever got in the car to go somewhere and as your driving along...forget where you were going in the first place??? Heather...
The purple ribbon is for lupus, fibro , and MS. I think you could consider it a general medical research ribbon. I actually have one tatooed on the back of my right leg with some life altering dates...
I know how it goes and it stinks. I have 3 boys ages 11, 7, and almost 5. I couldn't hide my being sick but I didn't tell them the whole ugly story. And I won't until they are old enough to...
Yes. I was drinking pop!!! That burns!!! LOL!! One of my brothers was playing with my neice. What he didn't know was that she had just finished a bottle. She was about 6 months old and he was holding...
Gretchen, I had to find a new neuro when my old one got sick and had to close down. My old doctor didn't make me do one bc he said that all my other tests pointed him in this direction. So now I have...
Hey all, I just had a quick question. My doctor talked me into a sinal tap to be done in his office. I get there and he can't get the neele into the right space. He tried 4 times and missed every...
Jirish, I have the same problem. I have just gone quite lately trying to come up with words that I know, but can't seem to remember. I mess up my animals names. Normally I just laugh it off cuz...
Kerri, I know how it feels to not have a lot of money for Christmas. This time of year is always stressful for me. I love Christmas, but at the same time I dread it. Right now is the time that I try...
JCgurl and Maz, Try heat. I have terrible neck pain and no matter how hard I try sometimes I can't drive for not being able to look over my shoulder. I have found that I hot bath or shower works...
Austin73, Nobody's list of symptoms with MS is the same as everyone else. Like Gretchen, I am not a doctor. I have most of the symptoms that you have listed, but I also have more than just MS as...
Sickboy, Have you seen ENT doctor? My neuro told me that I should have my veritgo checked by a different doctor to make sure that it wasn't something else that could be causing it instead of blaming...
LOL!!! I have had that happen.....ALOT!!!! At least you had a good cover it being at a party and all. It's really funny when you do it at work and your boss finishs your sentence... I have had that...