I have probably had this symptom for 5 years (diagnosed 7 yrs ago). I may have had it initially but was focusing on other things. It has become more frequent and persistent in just the last 3 years...
I go almost all organic. I just don't think I can swing the gluten free. I know people on that one and I'm too worried about missing a slice of pizza and then being hit by a bus tomorrow...
Oh yes, this is one of my biggies, sometimes in my trunk area as well. (spent way too much time with GI doctor over that one). I call it my 'popcorn muscles'. Super annoying, sometimes painful,...
Haven't posted in ages...but just want to say that I switched from the pre-mixed Avonex to the old school "mix your own". For me, and several others I have talked to, the pre-mixed caused much worse...
Did they say why they want you to drink it instead of as an infusion? seems it would be rougher on the stomach. Try to remember too that sometimes lesions can come and go, or drastically shrink. But...
Hey Tink- good job being proactive and requesting other tests. MS has so many symptoms like so many other things. The MRI is probably the best test- I always get some valium for those and find that...
I do this off and on as well. It's not progressed to permanent foot drop over the last 5 years. I suppose it could change faster for others because this disease is so different for everyone. Shoes...
I had the bad post LP headache. Made me cry if I got out of bed, even to go pee. But not there at all when laying flat. Because it was still there the next day I went in and got a "patch" and it was...
Get your blood work done and make sure you are not anemic. Don't know if you are on any meds, but I was often anemic on one of the interferons- can cause bruising. Do you have numbness or parasthesia...
One idea is for him to get registered with his local Department of Vocational Rehabilitation office. An MS chapter could help you find it. They provide free testing, job re-training and other...
I get the Bengay thing to. And recently (to add some humor to the thread) get little small spots of the sensation on my rear end and am always reaching back reactively so see what I've sat in ;)...
Tim- I kept thinking more about your wife today. You mention that 8 months ago she quit talking. Is she able to write or type in order to communicate? It is important that you are finding ways for...
Hi Tim, Your wife is the same age as me. I was diagnosed in 2003 but have been fortunate to have a slower progression- supposedly RRMS. I get angry when I hear stories like yours. I could have been...
There's a great little pamphlet the MS Society has called "But you look so good". I've given it to more than a few people. But there are people that I have had to cut off unfortunately. Like Gretchen...
I get that too. And I've made it worse by daring to do too much yard work and stain a fence the last two weekends. Now I'm paying in a really painful way. I don't know why too much activity sets it...
I also started getting migraines much more frequently a couple of years into treatment on Betaseron. Didn't have a lot of luck with a couple migraine meds. There are more, I'm just stubborn to try...
Welcome- I think we probably all 'lurk' around a bit before we post the first time. And for me there are times where the hands won't type so well, so I mostly read and get a lot of information and...
Agreeing as usual with Gretchen- check in with your doctor- as this sounds like a big change from your previous 'norm'. I have developed really poor circulation in my feet, cold and kind of numb most...
Sorry you are having that- not a fun problem for sure. Like Gretchen mentioned, lesion location can play a factor. I have a brain stem lesion that caused the vertigo and balance issues at first....
Hi there- you are a good support person to try to help your wife find some answers. The new MRI may be useful but it sounds like it could be a bout of optic neuritis. I think you go to an...
Just a thank you for any of you who dedicate your time, or have family members who dedicate their time to teaching children. I am always anxious for the start of summer but by the end I am so ready...
Probably headaches and ocular migraines and way too much fatigue even as a teenager. Then little things through the years. At age 28 I spent almost a year with terrible parasthesia (burning, feeling...
I just want to chime in because I think it was brave to bring the subject up and there are some great responses here. For me fatigue is the issue. And so like you, I would avoid even snuggling in the...
Katie- You might look back through old posts as well, there are some good descriptions of how various the 'hug' can be. I also think that I was checked, tested, probed and prodded for other...
Rhonda- you may not be able to read this if your power is out again, but just want to say I am thinking about you! You sound like you know what to do, but I imagine it doesn't make it any less scary...
Thanks KM for the positive comment. Sometimes I feel very brave, sometimes not. Like Gretchen says, a slice of denial pie now and then might help ;) Thanks Gretchen for the info from the seminar. I...
Thanks Gretchen, you nearly made me spit out my coffee...good chuckle...yes I'll get right on the phone with the neuro to ask for another LP. The brain stem was really doing a number on me and when I...
My first MRI showed a couple of lesions (one in the brain stem that corresponded wickedly (yes D) well with my symptoms) but my LP was negative. So that wasn't enough to get the DX. But I kept...
It does sound like the MS hug to me. It can be different for everyone, but I think it's due to all those little muscles around the ribs and trunk spasming. I felt like the neuro thinks the MS hug is...
I finally asked the neuro for something for pain. He prescribed 10 mg nortriptyline and then possibly go up to 20, maybe 30 to the point of getting relief. I will take it at bedtime and not the...
Just a quick response to say that I have had some hair loss- thinning- not any real bald spots, but definite thinning- and I attribute it to either the interferons themselves or the anemia that I...
I get facial pain and itching and tingling. Spent a lot of time at the dentist and the sinus doctor before I figured out it was the MS. Sometimes I scratch my cheek to the point of getting...
My computer has been out of commission, at least for me to reply for a few weeks. But glad to be back and I'll throw my two cents around a bit this evening. I did Betaseron for 4 years. Had no new...
Hey kid- I did very well on Betaseron for just over four years. I did experience stronger achey, fever chill, flu feelings when first starting it. Even at the low doses. But it was always bearable...
Sorry Granmom JB, That's a crummy place to be. I did go off of Betaseron once and Avonex once as well and didn't wean off, just quit. I felt like it took a few months, but then I did notice more...
One of my sons had an EEG test, but in office, and they were looking for seizures. Haven't heard of the test for MS. I hadn't heard of a halter EEG either, but have had a halter EKG. I think that's...
Totally perfect and I'm going to attempt to cut and paste for sharing. I would have replied sooner but I used up all my spoons too early Saturday and borrowed some from Sunday and Monday apparently....
Hi Granmom- well you may be onto something about my system needing the boost- I had missed an injection and was 10 days in trying to get back on schedule. So I may have trouble this week, but will...
Hi guys- I was thinking about this post for two spastic days and wasn't going to revisit it...but since it's back up there... Gary- while it's probably not your uterus ;) causing back pain, for sure...
I really don't know how else to describe this. When I think of muscle spasms, I think they last for a little bit. Or I certainly have muscles in my right arm that have more chronic spasticity. And I...
Thanks Gretchen- these are helpful. I have found the little Metamucil wafers to be easy to carry and use especially for travel, but there's a lot of great fiber options. This year I bought a half...
Thanks for checking in- The headaches were all but gone by the following evening. Coincidentally I had a dentist appt and maybe some of those stabbing pains near the temple could be TMJ? It would...
So I did a shot last night (though it's been 11 days because I messed up my meds). The 'ice pick' headaches in temple and behind eye woke me up twice in the night and still there this morning. Caused...
I don't know if the BAER is the type of test I had. But, if you have anxiety, heads up they might put you in a box! Someone might have warned the claustrophobic me that for my hearing test they would...
My hearing was an early sign I think. Full hearing test totally normal(not to mention useless trips to dentist and orthopedic for bursitis (not). I can't have multiple sounds going on. There's a...
I was just looking at a battery operated little push sweeper. We have a lot of wood floors with pet hair. My son saw this thing on TV. "As seen on TV" and keeps saying that's what I need. I think I...
I'm glad that you both liked the story. I didn't want you to feel crappy about complaining though- I thought about that after I sent it. It was such a reality check for me at exactly the right...
Heather- I just want to say I'm sorry that you are struggling with this. Gretchen did give the best advice. Journaling helped me tremendously. And eventually a self-help group, although I think you...
I hear ya...I forgot to order my refill in time, so I missed last weeks and I can't say I'm so sad about that. It will probably mean I'll get the aches and pains this week though. How long have you...
Thanks Gretchen- good to know they are more mainstream and I don't suddenly have to become handy with a sewing needle. I think I'll get a few for summer. And yes, the vest is a 'life jacket', hee...