I got very addicted to klonipin years ago and it kind of scares me now. This was before I was diagnosed and it was prescribed for anxiety. Funnily enough in that time period I did well but that was...
Thanks Gretchen! I am just so confused i don't get what the pain is.... Hopefully it will disappear soon!...
So I had ON in Feb. The doc said the pain should be gone w/in 12 weeks. Well here we are 12 weeks later and i still feel like I have brain freeze behind my left eye. I'm just wondering if those of...
totally normal. sorry. it gets better for some... i am on avonex and i medicate to help the side effects....
I saw it and was really depressed by it. I think it was a poor interview. They kept on saying the "life threatening disease" MS and I know that is true but I don't need it rammed into my brain 1000...
i'm too scared to get the test. i am just pretending this is not possible. every article i have read is pretty accurate to me. The only thing is I have NEVER had ON. So hopefully that is what is...
So it looks like I might have Devic's. My neuro wants me to got a blood test sent to Mayo to look for it. Apparently my lesion which is considered a longictudally extensive transverse myelitis looks...
Thank you so much everyone!! I am trying to be well read before my MRI doc session tomorrow. He has actually suggested I go to a pain doc but more like he was saying- I can't help you, you need to go...
I need some serious help. Whay do you do for your MS pain?? I have recently had a serious relapse, the pain has been off the charts and I feel like I am being brushed off by my neuro. I want to know...
Thanks folks for the advice... Willowmom I was on Avonex for 2 years. I came off of it 3 months so me and my husband can start to try for baby number2 and I had a huge relapse- torso numbness, neck...
Gretchen I so rarely get on these days.... But I know what an impact you have on this forum. Take a much needed break!! I hope to see you on again soon!!!...
Ok so I have 4 new lesions in as many months. The doc has decided that I should go on steroids. I HATE STEROIDS. Any how I wanted to put out there what he suggested and see if any of you who have...
How far into Wisconsin are you? I livein Chicago and have a great neuro. He would be about 45 minutes from Milwuakee. Email me if that would be helpful and I can give you his info....
Hey Gretchen I missed you!!! I was having such a good run comin goff my MS meds (which made me sick) that I didn't even want to think of MS!!! But just when you think you have got it beat it comes...
I am off of all my drugs. Interferon and everything b/c i want to try for a second child soon. But I am definitely having a flare. Anyhow, the newest symptom is the inability to feel temperature with...
ooooooh i so had this all last week and we were having a lot of ants in our house and I kept thinking it was an ant. But it was not. It is definitely a weird nerve missfiring but it is soooooo...
yeah I have had some IB issues and I have recently read an article connecting MS and IBD. Basically to summarize it said that if you have IBS or IBD you are a little more likely to have MS....
hey I am weaning off avonex and so far so good! It just seems such a waste to be throwing away half my meds when there are so many out there that can use it! Anyway, I am doing a half shot for 3...
Ok any help would be wonderful. I am weaning off of my avonex (under doc supervision) so I can try for one more baby (I know I am CRAZY!) So I don't know if one has anything to do with the other but...
Gooster- you are from the UK I take it... not Irish are you? Anyway I am 31 and the symptoms you are speaking of are very familiar to me. I cannot stand the MRI and when I was first diagnosed and did...
Mom, I am so sorry you are going through this. I was diagnosed at 28 but my neuro reckons I began to have MS when I was 17 when I had my first symptom. He did tell me that the younger you are at the...
what a great hubby! I am glad to hear you are doing well!! Now I have to tell my hubby what your hubby did for my neuro appointment on Monday!!!LOL!...
Willowmom..... I am on the old school avonex. I mix it myself. My neuro made me do this from the get go b/c he truly believes the side effects are less. However, in my case I was not so lucky. It is...
I am an avonex girl! It does get better and for a whole bunch of people the side effects go away entirely (not the case for me). Take it at night, and for your next shot you will probably be a little...
uppity...thanks! Ya know I have been on lorazepam for a while and I fought my doc in the beginning saying I did not want it b/c I knew it was addictive and what not (I used to take klonipin years ago...
Thanks ladies! Gretchen you are right I am on year 2 of Avonex. I miss chatting with you!! Maybe I should go for copaxone. My doc always strays me away from changing. I take vicodin for the pain it...
I just read a post about this and I want some help and advice. I am thinking about stopping my interferon altogether. I had to come off of it for a week b/c my 2 year old was sick and I could not be...
I totally hear you D'awesome.. I have been diagnosed for quite a while now and I think my neuro is annoyed with me b/c there is not much he can do. he can say "yes you are numb and have a nice day."...
I know you are right it is a flare.... I just hate admitting it! But I guess this is ok b/c my last MRI was with no new lesions, even though I had several flares.... So flares are ok. I often wonder...
oh my.... i don't want to go back to the neuro I think he is sick of seeing me!! The life side of my chest from my belly button up to my neck is numb. It is such a strange area for numbness. I don't...
Ok I just read everybody and i was totally repetitive. I guess I want to say- don't give up! It sucks but give it some time, it gets easier and you get better at dealing with it. I (secretly) look...
I have talked extensively with my neuro about this. They say when you get pregnant is key. Do not get pregnant while having a flare. The theory is how you feel when you first get pregnant will be how...
are you switching legs every week or spots that you inject? I shoot in my thigh and I have had this happen. I started icing before hand and that helped a bit. I think it is a nerve you are hitting....
I have asked this of my neuro just recently. They don't know a lot about avonex and babies. He thinks it is safe while pregnant. The thing that avonex can do is cause a miscarriage in early...
forgive me if I repeat anything...I don't have enough time to read all the responses!! I take avonex and yes the flu symptoms can be with every shot or you can eventually grow out of them. Most...
I am having some scary heart accels every hour or so. Like my heart is in my throat and it kind of feels like I have had 4 cups of coffee....has anyone had this? I don't know if it is my MS or...
Thanks Gretchen!! I am so happy you are loving your job. It is a must for teachers!! My beautiful baby is gowing up before my eyes she is almost 3!!!I keep checking in on you all!!! How are your...
Thanks! It is nice to know that fellow MSers get my annoyance. Gretchen my thoughts immediately went to the thought of children getting sick. They don't bring that on themselves with negative...
Ok I need fellow MSers to chime in here! Everyone tells me to read this book like it will cure me. It basically is all about the power of attraction and what we think/covet we will get. (ie we think...
Happy B-day and I have to say Feb is an unlucky month for me too!!! I am glad it is a short month!! I got my diagnosis in Feb too. I really hope this February treats you well!! It sounds like you...
I was diagnosed at 28. Oh my god I am 30 now!! I keep forgetting!! Anyhow, I don't have any MS friends in my age group :( I began to have symptoms at 17....
I went through this process and it was surprisingly easy for me. i think my neuro is pretty awesome and was good at letting them know how bad the health situation was getting for me. what I know...
I am so sorry to hear this!! My neuro has always warned me just b/c I have MS does not mean I can't have other things happen to me so to always keep my eyes and ears open for new or weird symtptoms....
Ok I am on avonex and for one reason or another I have to switch my shot day every so often. What is the risk if i just skip it for a week? I really don't want to take it this week, I have never...
John you have said it all!! Now can you go explain that to my husband!!!!...
Gillian i am the same as you and think that I am on the "lucky" side of life! 29 is so young and unfair. Is that the person you are taking care of? That must be so hard. watch your stress levels and...
great (weird to say that) post Gretchen. Ok so Fatigue, backpain/migraines, memory loss. I think not remembering stuff that i knew so well is very hard for me. I was a sociologist and LOVED the...
I went to a neuro when I was 17 for MSish symptoms and she told me to "quit smoking" and that there was nothing wrong with me, and off I went... I did not quit smoking until I decided to have my...
Ok I have talked extensively about pregnancy and MS with tons of docs. I got diagnosed when I had my daughter she was 6mos at the time. pregnancy hormones protect your body for the most part from the...
Ok I know MS is supposed to be autoimune. I NEVER get colds and I did not take my avonex last week b/c my two year old had an awful cold and I could not leave her be sick (my shot makes me too sick...