Thanks everyone! I do feel better today. Yesterday I just felt like a total fool! HA! Hope everyone has a good week. Cindy...
Me too Gretchen. Who needs optic neuritis. My husband and I are both laughing about it! Thanks again for always being there. Cindy...
Hi Gretchen, Ok....I have cured myself. My husband said "did you leave your contacts in?" I, of course said NO. Then I went in the bathroom and found my contact case empty. No wonder it got a bit...
Thanks Gretchen. It has actually gotten less foggy since I got up this morning but is still blurry. Even when I put my glasses on, it's like the glasses aren't my prescript ion. I will be calling...
Happy Easter Everyone, I woke up this morning with foggy vision out of my right eye. As I have been up and had my first cup of coffee, it seems I have adjusted to really blurred vision out of my...
Hi Woodswalker I have to say that the raceway sensation has been gone since I was taken off the rebif. The rebif not only had terrible side effects but it shot my liver enzymes way up. Now when I get...
I also switched Neuro's and have a wonderful doctor now. She has put me on Cymbalta for my neuropathic pain which consists of burning in my feet so bad that I can't wear shoes or socks some days. It...
Columbus Mom, I have a correction to my post. It wasn't a bone marrow transplant the guy had after the chemo, it was stem cell transplant. So sorry I told you the wrong thing. I still wish you and...
Hi Columbus Mom, I just saw, this week, on one of the national morning shows a man in his 20's that went through this exact thing. He had chemo (they didn't say what kind) and then the bone marrow...
Hi Andy, Hang in there. Those IV steroids work wonders. You are in my prayers. Cindy...
Hi Sunny, I am right there with you! I have actually had a nurse practitioner at my GP's office try to give me the recommended dose of something. When I told her I wanted the lowest dose, she laughed...
Thanks Rhonda I appreciate all the input. I will keep you posted. Cindy...
Hi Rhonda, Ok...so you are taking the Cymbalta at night before bed? I wondered about doing that because I took it yesterday morning and was fine until about 5:00 and then got jittery and then...
I am trying Cymbalta 30 mg. Day 2 by evening I was a bit shakey and kind of hyper. This led to very little sleep last night. Can anyone tell me, does this pass? It seemed to help with leg pain almost...
Hi Niki, I was on Rebif for about 3 months. I had a lot of the side effects they talk about but they took me off because my liver enzymes went up. I am getting ready to start Copaxone in the next...
Thanks Niki, I appreciate the kind words. It is everything to know we are not alone and that this site provides exchange between others that understand. Have a good rest of the week and weekend Cindy...
Thanks so much for the input. I am hoping the Copaxone will be no problem. As for the steroids, I quit taking the prednisone as it was giving me terrible stomach problems and I am already feeling...
Best of luck Barb. Keep us posted. My Copaxone should be on the way in the next 2 weeks. Hang in there. Cindy...
Gretchen, I plan to manual inject as well. The only thing I will have a problem with is under the arm. I might have to have my husband help me with that. Thanks again for all the kind words. It is...
Hi Gretchen, You always know the right things to say. Thank you so much. I think that Flexeril works in a different way than the Baclofen and Zanaflex. Both seem to upset my stomach. The doctor had...
I did 3 days over last weekend of Solumedrol and started the prednisone taper on Tuesday. My doctor had also told me to try Zanaflex instead of Flexeril. By Thursday night I had reflux so bad I woke...
Thanks Andrea, I appreciate everyones input and kind words. Have a great week. I hope it's warm where you are. Cindy...
Thanks Chuck for all your input. I am going to go ahead with the Copaxone in a couple of weeks as soon as it is all set up through insurance. Have a great week. Cindy...
Hi Gretchen They had me on Pepsid in the hospital and I am taking Prilosec OTC now. So far so good. I just had my first straight 2 hr 1 gram infusion and it went ok. Since my doctor suggests no...
I just got home yesterday from a 24 hour stay in the hospital for my first solumedrol treatment. They did 250 mg every 6 hours for 24 hours for my first gram to see how I would do. Other than my...
Thanks to everyone. It does help to know there are other people out there that know what I am feeling and talking about . This forum has been a wonderful thing for me. Thanks again. Cindy...
Hi Chuck, Thanks for the kind words. I hope we are both there to see the day of a cure. Thanks again and have a great evening. Cindy...
Did any of you , when you were first diagnosed and learning what your body was actually doing, think that you were on a sinking ship and there was no one to throw you a life preserver? I will go a...
Hi MOMOF6ANGELS My husband and I had the same exact experience but this was all while I was waiting for my diagnosis. Once I got the news that I had MS (yes this neuro was also highly recommended) I...
Lindz, I was just diagnosed Sept 2008. The neuro I had (I have since changed) diagnosed me, told me rebif would call me and said he would see me at the end of January. Everything I learned about...
Hi Lindz, Hang in there. I am off 23 days now and my ears are still ringing but at least now its off and on during the day, not constant. I believe your vibration will disappear but gradually. I have...
Hi Barb, Glad to hear that this doctor has been encouraging. It is terrible when you are going back and forth on what to do regarding meds. I hope the Copaxone works this time. I have been off rebif...
Hi Gretchen, I have been thinking about the future should I not be able to work at all. Right now I can still manage my practice. The chiropractor is what I am worried about continuing. I have other...
I have been feeling very discouraged lately. I have been off rebif for 19 days due to elevated liver enzymes and at first felt much better. As time goes by, some things are much improved like the...
Hi Jerrehow, I was on Rebif for 3 months. They start you at 1/8 of a dose for 2 weeks, then 1/2 dose for 2 weeks, then full dose after that. I am off the drug because I have elevated liver enzymes...
I have been off Rebif injections now for 14 days. about 2 weeks into being at full dose I noticed a small red spot on my right cleavage area. As days went by I noticed it getting larger and redder,...
Hi Chuck, I am sorry to read that your ears ring all the time too! I am hoping in my case it's the interferon. At 1/2 dose they would start to ring about an hour after injection and then stop within...
Well I have been off Rebif for 12 days and my ears are still ringing. I thought a couple of days ago it seemed to quiet down a bit. I noticed breaks in the ringing. I had also been feeling better all...
I agree with Gretchen on trying not to sweat the small stuff. I have definetly over done the sugar this holiday season, but now that I am feeling better I am going back to walking a mile a day at...
Hi Meche, Now that I have been off Rebif for 9 days I can tell you that there are lots of improvements for me in every day life. One huge difference is that my feet are no longer burning so bad I can...
Thanks Linda, I will look up the info on that. Happy Holidays! Cindy...
Thanks Gretchen. I am trying not to freak out about the whole thing. I really felt terrible on the rebif but at least I knew it was helping. Thanks again. Cindy...
I thought I would be stopping Rebif temporarily or I would be trying another interferon but my neuro called today and told me my liver enzymes were way up. She wants to see me in 2 weeks and discuss...
Gretchen, We both have a lot to be thankful for. Not everyone is as lucky as us. I feel very fortunate. Thanks again and Happy Holidays. Cindy...
Thanks Gretchen, My husband always makes me keep my sense of humor. This morning I said "what if my ears don't stop ringing?" Without missing a beat he said "well then I will take you to Walmart and...
Thanks Gretchen for all your advice. I will probably go with the Avonex if my symptoms go away and it is the Rebif. At least I know what I will be dealing with. If I can't do the Avonex then of...
Hi Gretchen, I don't know why that freaks me out so bad but it does. I will of course do whatever the doctor suggests in February. I am really hoping it is the Rebif and not the MS. As always thank...
Hi Dennis, Did you ever have the heart attack symptoms thing happen? To me that is scarier than flu symptoms. I have been told there is not much difference in the Avonex and Rebif except with the...
Thanks Sunny, The doctor just called and did take me off the rebif until our next visit which is Feb 3rd. I am both relieved and upset if you know what I mean. The thing that scares me about Copaxone...
Ok everyone.....I need some input please. I have been on rebif for almost 4 months now. After 1 month at full dose I have constant ringing in my ears, constant muscle pain with some weakness and am...