Insurance (HMO) turned down request. Their reason -- I can walk independently with a cane. That is not an indication (according to them) that I have a gait problem. How can you walk independently if...
LYNN --- HI!!! That is great that it is helping. My neuro sent in request for ampyra about two weeks ago. Nurse told me she checked with my insurance and it will cover it 100%. I hope she is correct....
I was dx with costochondritis prior t ms dx three years ago. It is just on my left side. Some days are worse than others, but it has never completely gone away. I think in my case it is the hug....
I also went to our health department on Thursday and got one. Neuro recommended it and my pcp told me to go there since they did not have any supply. Other than a slightly sore arm for about 24...
As Gretchen noted it does get better. Your partner will most likely experience both physical and emotional ups and downs. I have been dx for 2 1/2 years. I still fear the unknown, but the fear does...
Individuals with MS should not get the nasal spray form of H!N1 as it is a live virus. See web site for National MS society. My pcp told me to get the seasonal flu shot, but she is not sure if I will...
Well, I have finally gotten over the neurontin withdrawl. It took about 5 weeks to get over the nausea. At this point, I am not going to try lyrica. I did not really have any problems (other than...
Andy -- I am so sorry. Hang in there!...
Thanks Lynn! Hope you are doing well. I spelled it incorrectly. It is elavil -- I think. I may have to consider lyrica, but hoping that I can avoid another new drug for now....
Barb, I am sorry you are having a such a rough time. I know that the thought of tysabri is a bit scary, but I would still be on it if I could. Hope you get a break soon!...
I was on 2700 mg of neurontin; nine 300 mg per day. The burning/tingling feeling that I experience on the top of head returned in early June. I did not want to increase the dose once again as it has...
Andy, You brought me out of hiding. I am so sorry. Please find someone to talk to about what you are going through. Barb...
I miss being able to get down on the floor to play with my niece; or running outside with her. She says my legs are broken. /community/emoticons/cry.gif I miss being able to get in the car and drive...
For those individuals who are all new to this, I just wanted to mention that there are other forums such as MS World or Neurotalk where you can receive alot more information from individuals who have...
Sorry, I haven't been around much. I have been dealing with some major pain and spasms in my back. My back has been aching for several months off and on, but now it is 24/7, with frequent spasms....
Thanks G for the advice. Although I am pretty stubborn and I am not ready to really take it:) I am not sure I am ready for a walker (have never experienced this before) and I am definitely not going...
Well, I experienced my first fall Friday night (actually early Saturday morning--1:30 a.m.). I woke up and had to use the facilities. I felt a tad bit dizzy when making my short journey(about 10...
I was also scared of the lumbar puncture, but overall it was not big deal as G pointed out. A bit of discomfort during the procedure and then having to lay flat in bed throughout the rest of the day...
Andy, I am sorry you are having such a rough time. I have not been on here for awhile so I did not know what was going on. I understand your relunctance to go on tysabri, but it seems to helping lots...
I just heard from neuro and he said the same thing G. I told him I no longer knew what to do. He said as long as I remian stable -- no treatment. He also mentioned if I go on imuran or something...
Gertie, that is great news! So who did you anger in the district adm?...
As I stated in the other thread the injection went fine. But around 6:00 I began shaking and was really cold. I also am aching all over -- probablyf rom the shaking. At 7:30, I called Shared...
Thanks Lynn! It is good to see you. Hope you are doing well. We have missed you at chat....
Hey G! How did your appointment go?...
Well the manual injection went fine. The new needle did not hurt at all -- the burning and pain afterwards is another story. I had forgotten. I injected in my arm because that is the area that scares...
The copaxone is being delivered on Tuesday and a nurse is coming on Wednesday afternoon for training. Wish me luck!...
I have not heard of this one. I definitely will ask my neuro if he knows anything about it next month at my appointment. I have my doubts that he will have any information. G, make sure you let us...
Good idea Sunny!...
I am not sure when I will be strarting. She was sending a report back to my local neuro and then I assume they will put in the order. I imagine it will take at least a few weeks to set the whole...
Met with ms neuro in St. Louis. Found out that 1/2 of her time is spent seeing patients and the other 1/2 is devoted to conducting ms research. She believes that there will be oral meds for ms...
My resolution is to not eat liver, brussel sprouts, or lima beans. /community/emoticons/rolleyes.gif Seriously, I need to work on being more patient with others and myself....
Debbie, I know that there is some type of injection that you can receive if you are on ongoing chemo. I am not sure if it would relate to your situation. Have ginger ale and soda crackers stocked at...
Hi Debbie! I also wanted to let you know how sorry I am. Make sure you still come to chat as we need you, and I like to discuss books with you. I hope the treatment will not be too bad, and that ice...
Welcome wicks! You do need to be careful. Dicuss this symptom with your neuro. I have read that drinikng something cold as you eat has helped some people with this problem....
Thanks you guys! Yes, I am going to ask her about LDN when I get an appointment to see her. I am not really considereing rituxan at this point. I want to also ask her what she thinks about imuran....
Lee, Glad the adderall is helping. Let us know how the exam at Georgetown goes. I am looking for a new treatment/trial....
Linda, I am sorry that you are having more problems. I hope the baclfen and adderall help you....
Saw my neuro this afternoon. The bad news is that I have 2 to 3 more lesions. (He did not agree with the radiologist about one). he felt there were only two new one. None of them were active. So I...
Thanks everyone! The MRI was just of my brain and brain stem. I suppose I should ask him why he does not have my back done too, since we know that I have at least one lesion there. I cannot imagine...
Hi Meche, It is nice to meet you!...
I had my MRI this morning, and prior to injection of dye I lost all feeling in both of my hands. I could only move 2 fingers on my right hand. But even though they were numb and I could not move...
I have never been asked to fart. I feel cheated!...
Katie, Thank you for sharing your poem with all of us! It started raining here a few hours ago, and it is also suppose to cool down. I am ready for some cooler weather too. It is not supposed to be...
Looks like fall is finally here in Illinois. The temp was in the eighties this past weekend, and we are supposed to have highs in the fifties by the end of the week. I hate the prep for...
Thanks G! I do not teach a grad class during the spring so hopefully I will be a bit less tired. I think this may be a flare as all of my usual symptoms are worse, but I still do not really know how...
Hope the fires are not near you G. I remember last year. I went away with a few friends this past weekend to visit another friend that now lives in Iowa. We were hoping that the leaves would be...
Hey everyone! I am a university professor and teach full time. I teach Political Science so I have been very busy the past few months. I have to admit that I am also so ready for this election to be...
Cindy, The book Rhonda was referring to is "MS And Your Feelings." The author is Allison Shadday. It deals with the emotional impact of ms. I have to admit that I did not read all of the chapters,...
Actually, magnesium may also help with muscle stiffness and spasm. I have never heard that it may help with IBS. I asked my neuro about magnesium, and he told me I could try it. He did tell me to...
G, Hope you are doing okay. Take care of yourself! Barb...