Good Luck Chuck! Sunny days are coming your way, my friend. Hugs ~ Andrea...
OK, time to jump in...that 40 pound side comment was just weird. We're supportive and kind here!...
Hi there. Yes, I had the pain on my left side and jaw. I didn't know what it was called. I took flexerill which I think may be the same as baclofen. It does make you loopy for sure. To help I tried...
Hi Anitalynn, I haven't heard anything about the study, but I guess it makes a little sense. If aspirin helps with inflammation, then maybe it helps with myelin inflammation and reduces the effort...
Chuck -- you just like all your girls :) It's a beautiful day here in California! Hope everyone is doing well. Andrea...
Hi chipdelight, When I was researching LDN, I know I came across sites that had some Dr. resources to write the LDN script. I've been on so many sites for LDN and can't recall how I got there, but...
rhonda, Thanks for your support! My husband and I are still in this disbelief mode. It's been weird, but in a totally cool way. I'll keep you updated. You all rock :)...
Hello, Gosh...what a tough time you've been having. I am obviously not a dr., but after our daughter was born, my MS went into a huge upheaval that sounds similar to what your are experiencing --...
Hi irishheat13, I know that there are some yahoo groups for MS. I've found a few other MS chat sites, but many of the people were downers. Let us know if you find any good ones! Andrea...
Hello all, I wanted to give an update on my new prescription for LDN. I started taking it January 24th at night like prescribed, but my sleep was disturbed too much. I called the pharmacist and asked...
Hello ColumbusMom, I'm sorry your son is having so many problems. When I was in constant relapse mode, my doctors put me on Cytoxan too. For me, it did stop the relapses, but I was sick & slept for...
Hi there, I wish I knew of some sure fire options for your Mom. Could a physical therapist help? Maybe some yoga? Muscle / leg strengthening? I only get balance problems / vertigo when I have MS...
Hi AnitaLynn, Handicapped cards are for a reason. Some day you may need it, and some days not, but listen to your body. And remember to be kind to yourself!! Pace yourself and look at what you did do...
Hi Andy (Tertle), Hang in there! Don't give up hope and know that you've hit the bottom and can only go up. Kids are a blessing but can tire you out (we have a four year old too), so pace yourself....
Hi there! I had to chime in about books. Love them! When I have time and energy, of course. I agree that "Water for Elephants" was awesome, and I'm just starting to read "Marley and Me." "Everyday...
Hello all, So after two days on LDN, I stared to feel beat up (wimp, I know) from the disturbed sleep side effects. I took a break yesterday and got myself well rested. My neurologist suggested to...
Gosh...you all are so nice! I am thanking the Lord for finding such good people. Gretchen, I'm glad you checked into the "leaky gut" stuff. I also went wheat / dairy free and organic. I can...
Hi Irish, I often get pain on my left side from my neck and down to my calf. The pain gets worst as the day goes through. I did some Yoga the other day and really stretched that side. That night, I...
Hi Brownie, I'm sorry about your troubles! After being shuffled around for years, and Ophthalmologist was actually the one who made the MS discovery and started me on the right track. I would go see...
Hi Krs, I had only one treatment of Tysabri before it was taken off the market. I felt like a super-star that month. Right now I'm on Copaxone and starting LDN...the relapses seem to be under control...
Hi again, Somehow I unsubscribed to this post, so my "thank you" is a little tardy! Your comments are helpful. I've had two nights of crummy sleep with the LDN, so I took a break last night. My...
Hi there...I'm on the MS side, but I was hoping someone here could help me! The sleeping disturbances with LDN are tough, and I was wondering if anyone has played around with when they take LDN? I...
Hi Katie, Wow!! It sounds like you have had a super information week. I'm glad you found so much information out. Will your intestines heal themselves once you stop eating gluten? It makes sense that...
Hi Cindy, I'm a newbie, but I wanted to chime in. I hate coming off of steroids, and my husband knows I'm going to be a b*tch when I taper off with Prednisone. Just know that it IS going to get...
Hi Littlechina, I am sorry you are having such a problem with your injector pen!! I am too big of a wimp to do the shot manually. I ice before I shoot it in, and I also warm the shot in my hand for...
How exciting! I really feel like a cure will be found soon. I can't wait to hear what your doctor says too!...
Hello all, I wanted to give an update on my LDN experience so far. Today's my first day, and this may be premature or just hopeful, but I feel pretty darn good. I was able to clean out a closet, walk...
Hi Medgirl :) I'm a newbie here too, and everyone is super nice and helpful. You will feel better soon...just stay positive. Take care...
Hi Mary, Gosh, I really feel for you. All of the waiting and investigating new meds while you are exhausted is dreadful. Just know that it will get better. Regarding Tysabri, I had the treatment just...
This is good news to hear! I've read mostly amazing success stories with MS & LDN -- it seems like a super healing / immune system restart pill. We'll see! I'll keep you posted and please do the same....
Hello there! The good folks on the MS boards said some of you may be able to to help out with a LDN question. I am hoping to find information about what time to take the LDN. My prescription is on...
Hi Chuck, I've been looking in on this site for a while and have noticed your nice positive comments to everyone. Thanks for chiming in on my question too! I noticed in your signature that you have...
Hi Gretchen, Thank you for your warm welcome!! I am very excited to find a nice, opened minded support group. Good call about the crohn's board and LDN...I'll try and remember to post there later. I...
Hi again Katie, The darn peanut butter!! I love the stuff too...it's bad for us though. I've switched to almond butter, but I do miss the good stuff. I thought of one more thing you may want to...
Yes...we have all experienced what you are feeling! It feels very defeating. What I have learned is this: pace yourself and don't use all of your energy just because you have it. Your body needs...
hello there! I am so thankful I found this site...it is wonderful. I am obviously new and hoping to find information about what time to take the LDN. My prescription is on its way, but I am concerned...
Hi there...I'm a newbie, but I wanted to chime in about gluten / dairy. I've had MS since 11/2001 -- crazy ride and went the natural way after all else failed. Anyhow, I was tested for celiac which...