Joy, You have gotten some great advice so far. I am sorry you have so much on your plate right now. I can relate to the stress part as a fellow fibromite. you need to find a way to take care of...
i have been on it for a few years. had to up my dosage for it to work and really notice if i miss my nightly dose. my 18 year old daughter just started it too because unfortunately she suffers...
well obviously I thought I had moved to the Lupus thread and hadn't and I am not tech savy, so here this sits. Oops....
I posted on the Fibro board, but am also posting here because my doctor told me that the drug she wants to try me is also used for Lupus. I have a form of vasculitis called microscopic polyangitis....
just wondering if anyone else has also been diagnosed with vasculitis? There are many different forms of this disease and I have microscopic polyanigitis. This is in addition to Fibro. My doctor...
I can so relate to muscle aches right now. I have two suggestions for you. If you sew or know someone who does, make bean bags as I call them and fill with rice. They can be made in any size from...
Question for all of you on disability. I have been on disability for years. Lucky for me the company I worked for supplied me with a lawyer when I got denied because they didn't have a job I could...
one more suggestion that has helped me is Aveno Oatmeal baths. They only help when I am in the bath and for a very short time afterwards, But relief is relief when we itch. Debbie...
I too get this and my neuro has diagnosed me with peripheral neurophathy. I take Gabapentin to treat it although it still comes and goes, nothing can be done to completely get rid of it, but for me,...
Lynnwood, wow, you have alot on your plate right now. Anyone would be overwhelmed. I have a few suggestions. For just now, forget about the stuff, and take care of yourself. The stuff will still be...
I have never actually been diagnosed yet with Lupus, but all the symptoms are there just not the positive ANA, but I do have vasculitis, Microscopic Polyangitis is the form I have, and it has come...
Joy, Oh that stinks, can you try Tylenol or Advil PM? That would drive me absolutely nuts. Nothing worse for those of us who need sleep, not to be able to and to be denied sleep aids. There is also a...
I have used a migrastick for migraines,didn't try it for the Savella headaches, just stuck it out and it passed. This has been my miracle drug too. You can get it in any vitamin store. It smells like...
They do give you a neck rest, but I think a pillow may interfere with how they "lock" you in so there is no movement. Don't let me scare you, but they need to position you so that your head doesn't...
Godlady, I hope you can be patient and adjust to the side effects. I did and am glad I have. I was dizzy and nauseaus (sp) at first and this did take a while to go away. Couldn't even nod my head at...
Joy, Congrats, that will take alot of stress off and help you to feel better. A suggestion about the bills, call the companies and explain your situation, ask if they can help you until money comes...
not sure about if its a symptom, but what I can suggest is to watch what you are eating and when you get them. My daughter and I both suffer from migraines and need to stay away from cheese,...
just wondering if fibromyalgia is represented with a ribbon color? my daughter is getting a tattoo and wants to add a ribbon representing that I have fibro, she is putting a ribbon for her...
Hi all, I have been diagnosed and undiagnosed with Lupus depending on the doctor because I have never had a positive ANA. My present doctor says no lupus because of the negative ANA. But here is my...
MaryAnn, My neuro sent me for this test. I know the feeling. I felt like a complete moron when I left. I even passed the Boards for my RN, but I am sure I failed this test. I have been on disability...
MaryAnn, Don't give up, that is what they want you to. Just play the game as frustrating as it is. Fortunately for me, my company paid for the lawyer representation because they had no job they could...
NanaBee, Hoping you have made a copy for yourself of everything. Just in case they call with any questions, you will have a copy in front of you of what they sent. Debbie...
Think of all the time you save on folding the laundry lol Sorry, couldn't help myself, I put the laundry in the dryer and forget to turn it on. Debbie...
FibroMomof4 I too like Sherrine tried to not let my Fibro interfere in my kids lives. They knew I was tired and achy alot, But we would play board games and watch movies. When I couldn't pick them...
NanaBee, What I will suggest is make a copy of the form to make a sloppy copy first, write on that one and then transfer your answers. That way if you make a mistake, or want to modify what you wrote...
Hi Lawchick, I had to go off Plaquenil because I did have eye problems from it but I had been on it for over 20 years. I had pains like your saying, heavy legs, aches and pains, severe fatigue. My...
Hi, I live in Tucson, AZ, lived in NJ all my live before this. Moved here to leave the cold winters and humid summers for just the reason your talking about. It has helped me alot. The winters here...
had to reply as I just saw my rheumy for pain like this. Couldn't even lift a glass. She examined me for 2 minutes and diagnosed tennis elbow. I couldn't believe it because it was my left forearm...
Thanks for reaching out, its funny I even saw the post, I have had the vasculitis under control for awhile. Had four of the 6 treatments. They weren't too terrible. I was in bed with mild flu like...
Hi all, haven't posted in forever. I am totally confused and could use some suggestions from those of you going through similar situations. I have been ill since 1988. Started with a rash at...
Thanks Chutz, good topic. I just went for a 3 hour evaluation myself because I can't seem to remember anything anymore, forget words midsentence, can't do simple math problems when writing out the...
Hi all, I haven't posted in ages, but this one hit home. I just saw a retina specialist on Wednesday because I have been on Plaquenil for about 20 years and my Rheumy said there is a new test that...
Labor itself was fine, it was post partum (sp) that I had a problem with. My doctors learned that after my first daughter was born. So with the second, we did a precautionary course of prednisone....
You have gotten some great advice already. I know when your flaring it feels like it will never end. There is nothing worse than your four year old saying your no fun. I've been there. But you can...
Barb, Teenagers are all about themselves. I have had to learn this the hard way. I don't pretend that I know it all about them. I am still learning. When my oldest turned 18, the very day of her...
You should enjoy every single minute with your little girl, and not waste any of it thinking about the laundry, dishes, dust bunnies, etc. Read more books, draw pictures, write a story together,...
Judy, I have had many different rashes over the years, and am still not officially diagnosed. Have an autoimmune disease of some kind, but have the docs baffled. When I have had rashes, and I did at...
Britt Also sounds similar to something I had many years back that sent me to the ER. They never officially knew what it was, but thought it may have been an esophageal spasm. I just thought I would...
G, You poor thing. I know you hate to be down. I did you see your post on another site and wondered what had caused the doc to recommend the IV steroids. I hope they work. I have read that ON causes...
I have not been diagnosed yet, but my doctors are looking for an autoimmune disorder, and MS is one they have neither ruled in or out. My question is in regards to blurry vision. This is a new...
Thanks Everybody, My Neuro is upping my Gabapentin. Don't know what it will do for the spasms, but they have calmed down for now. She will call in a muscle relaxer if I need it. She was very...
Hi everybody, I haven't posted in a long while. This weekend my muscles hurt so bad that I can't even stand up let alone walk. They are so tight that you can actually feel the knots. I am already on...
I don't know your whole story, but I am sorry you are going through this on top of health problems. Do you have any friends or family members that will testify on your behalf as to how vindictive the...
Debbie...
I have been on disability for many years. I had heard from my neighbor, some months after the fact, that he had been called and asked about my abilities. Nothing came of it, but this man didn't...
the poisens in there. Becca has been an angel. I'd be lost without her. [color=#800080> [color=#800080> [color=#800080> Debbie...
Debbie ...