I just got word that a family friend has had an MRI and PET scan and has multiple tumors in his brain and spinal cord. I am curious if anyone knows if tumors/lesions from MS or other disease can be...
Confused, I know how scared you are. I was there almost a year ago now. They initially thought I had MS, but I was later diagnosed with ADEM, then later with brainstem encephalitis. I know ADEM...
Well said! Glad you are on the road now :)...
Glad to hear! Hopefully the PT will help her get back some of what she lost. Who knows, maybe by early next year she may want to try out the support group? I think it will be good for you to go! God...
I think along with a brain MRI, they should also use IV contrast. It looks like this spinal MRI was without contrast, so I don't think it could tell you much in the way of diagnosing MS. If your Dr....
Nurse Jenn (and all others who have been told they have anxiety), I have my own anxiety story to share, I think it is a gross negligence of patient care. The first neuro I ever saw (granted I did not...
Andy, I'm sorry to hear everything you are going through. I honestly don't know the best advice to give except recommending that you seek help, for yourself and your children. They need their father....
I'm sure we all have those days when people say "Oh you are looking good" or something and we feel like crap!! I did when I was dealing with my illness and still with my recovery. MS (and any neuro...
I think that she has gotten the same response from just about everyone now and understands, maybe it was a mis-communication. We should all assume that since she is hear asking for advice she is well...
Needhope, I hope everything goes well tonight. If you say something, I hope it's the right thing and she takes it the right way. If it doesn't go well, brush it off and just tell her you are just...
If you would like any advice, I would be more than happy to talk to you. I became sick 6 months after I was married, at the age of 22. It is a huge life changing experience and I understand it from...
I was not diagnosed with MS, but I just saw a regional MS expert for a final diagnosis about my condition. At first, I had terrible muscle spasms that were debilitating. She said she did not believe...
Hello. It's not Devic's, but brainstem encephalitis. I believe devic's has more to do with spinal cord lesions. My lesion was just the area of my brain stem, but it was pretty massive and did a lot...
Hi Bradley. I just recently saw an opthamologist about my past optic neuritis and how my eyes were now. He did mention that he is always concerned that with prolonged use of steroids that it can...
Hello! I have an update from my neurologist appt. yesterday. She is the regional expert in MS at a large teaching hospital (very large I found since we got lost lol). She came into the room after...
I am also 23, a military spouse, and they thought I had MS at one point. (I since have been diagnosed differently). My suggestion would be go to your PCM and push for a referral to a neurologist, but...
Hi all! I have a couple questions. Has anyone gone off of Lexapro and what are the withdrawal symptoms like and for how long? My doc is taking me off it next month. It's my quest to get off as many...
Hi Bradley! Keep pushing for them to allow a very long taper of oral steroids. I had a relapse because my first taper was too short. In ADEM, the taper must be lengthy to make sure no chance of...
Bradley, From what I have read, ADEM is most often preceded by an upper respiratory infection. I bet that was the preceding factor for your son, not carrying your son upside down. I have done that...
Hello, I am glad to hear I am not alone, although I am very sorry your son had to go through this awful disease. I also had a relapse because I only did 3 days IV steroids at first, then got better...
Yeah very expensive med!! It's insane! Glad that you can get it that way! I've read that the patent is running out, so that's why they came out with Nuvigil. That way they can keep us paying for it....
Thanks Gretchen! It was a pretty huge flare that I had, so I'm sure there is still healing that needs to be done. My husbands long-time family friend that was like a grandfather passed away and that...
My handwriting was affected by my lesions and I pretty much had to re-learn all fine motor skills. I guess when my hands are shaky it just makes the handwriting more sloppy again. I feel like it...
I have a question for Provigil users. I have taken 200 mg/ twice a day (7 AM & 11 AM) since April, and no complaints. My only question is, does any have shaky hands a couple hours after they take...
I got this info off an ADEM forum. Thought it may help. "My daughter is being seen at the Mellen Center in Cleveland. She is only 6 years old so she is seen by the Pediatric Neurologist, Dr. Manikum...
Hello! I am sorry to hear about[b] your situation. I was also recently diagnosed with ADEM. I can never find anyone else who knows of it! Mine also had vomiting and fever in the initial phase, which...
The good thing about the steroids is that I personally felt much better immediately after getting them. You may be very hungry, have much more energy, get hot. I always felt better after my doses of...
I used to have very bad spasms all over my body and had some bad ones that were painful in the ribs. It's hard to get a full breath. My OT said it was best to just battle through the pain and breathe...
Wow! I do feel very fortunate. I was sick for a few weeks and no doctors took me serious until I came across a great doctor. He immediately did an MRI and thought MS, but after I quickly declined a...
Hi all! I just found this forum! I was diagnosed in Feb. with acute disseminated encephalomyelytis (ADEM). I was intially thought to have MS. It hit, but pver the course of a few days to a week got...
It's my miracle drug! I've used it for a few months and it has helped me dramatically!...