Hi Andrew. Another person switched from the 20mg copaxone to the 40mg. The ap for tracking injections is cool. I have been on copaxone since 2012. It is a great med for sure. I tracked my injections...
Thank you. I do need to go to that next appointment with a list of questions and demand the doc's attention. It's easy to feel rushed and I get flustered too easy. I do wish the neurologists office...
Thank you Gretchen. I feel the same way. I will have to say that to my neurologist and not let myself feel rushed at my appointment. Probably write down my questions. I am in control of myself and my...
In the beginning, I went to a support group. Did the ms walk to help raise money for the cure, I get magazines every month from the ms Society and another one I cant think of the name. Lots of great...
Thank you for your response. I hope that you will finally get a for sure answer. I know doctors are slow to figure these things out sometimes, and I worry too much, which is not good. Good to hear...
I actually haven't posted in awhile. I was looking for people who may have been on copaxone for awhile and reasons neurologists give for switching a person to a different treatment. So was diagnosed...
Well, I haven't posted on here in awhile. I've been on copaxone for right about 4 years now. I did get switched to the 40/mg 3x per week. Taking fewer injections is good, lucky insurance did approve...
I have been diagnosed with MS for just over a year now, and my B12 was low upon initial diagnosis. My neuro prescribes a B12 shot-it was weekly at first but now I take it monthly. I love it, helps so...
I take copaxone, not rebif. But I tried cymbalta right after my MS diagnosis (1 yr ago), and it made me so sick. I couldn't quit vomiting while taking the Cymbalta, I only made it 5 days and quit...
I'm reading this and thinking I should throw my 2 cents in. I am a 32 year old female, diagnosed with MS 1 year ago. I started on Copaxone very quickly after diagnosis and have been doing excellent...
Oh, I re-read the post and see your having low-energy too. I'm sorry about that. Guess I'm having cognitive difficulties. My energy issue was different than what your saying though. I would feel so...
Hi Scared. I got diagnosed with MS in January, and I didn't have the exact symptoms you speak of. How is your energy level? That was probably my first symptom I noticed, just had no motivation...
I wish I could help, but honestly I don't understand my own MRI report. Over 80 lesions, one larger than 1cm. I don't think its that common to have so many. Surprisingly, I do pretty good. A hand...
I know what you mean about stairs. I have to walk up about 20 to get into my house. It totally wipes me out, and I'm sure I'm moving like I'm 80 years old. I need to move somewhere without stairs....
Thank you for sharing. I really don't know what to do. My MS isn't bad, relapsing-remitting. I have allot of lesions, over 80. Its crazy cause I feel like I'm fine. Just a shaky hand is my only...
Hi Angel and Gretchen. So you've been on Copaxone 6 years, Gretchen? It is so awesome that your doing so well. I'm glad to hear from someone that has been on it so long. But I've never had that...
I think copaxone is excellent! Been on it 6 months, doing great. No flu-like symptoms that come with the other MS treatments. It is a daily injection, but not bad at all once you get used to it. I...
So I have only been diagnosed with MS 6 months, been on Copaxone during this time, and its looking like I may be pregnant. Positive pregnancy test last night, not far along yet though. I'm only a...
I've been on copaxone for 6 months now, and been doing good with it. At first I was upset about the daily injection, but its really not bad at all. Beats flu-like symptoms, in my opinion. Only takes...
Copaxone. I got diagnosed with MS this last January, after severe optic neuritis, and my neuro started me on Copaxone in February. Doing great with it. I feel better than I have in a long time....
Thank you for the suggestion, Gretchen. I never thought of starting the kids on some vitamin D. I will definitely do that. I'm going to tell my brother and sister to as well. Thanks again. Nikki...
Hi everybody. I have been wondering about this since I got diagnosed with MS this past January, and everything I read about it is conflicting. So I was gonna ask you guys, do allot of people with MS...
So did you get diagnosed cakelady? I got hit with the MS dx very quickly. My situation is different from everyone elses I've heard. I just woke up totally blind in my left eye, got put in the...
I totally agree with Gretchen on this. I got diagnosed with MS in January, started the copaxone in February, and have been doing good with it. All the other MS treatments are interferons that not...
Cliff, you're definitely no wuss. Taking care of a 2yr old and bar tending would wipe anyone out. Makes me tired to even think about getting a job. I guess taking care of my son is, but I think if I...
Oh Yeah. The fatigue is the worst part for me. I am 32, female, and I just got diagnosed 1/4/12. I started the copaxone 2 months ago. I have a four year old son to take care of daily (until his Daddy...
The best thing you could do, in my opinion, would be to get the neurologist to order an mri. MS can mimic so many other things and a blood test wouldn't show whether or not you have it....
Hi Lou. The shoulder pain for me is hard to explain. I do know that for me, it is always 1 shoulder, and not both simultaneously. Right now, its my left shoulder and it sorta feels like an electric...
It was the neurologist that said all this, I don't even have a family doctor. I know,I should get one. I saw an eye doctor when I went blind in my right eye, he sent me to this neurologist, then she...
I see that this thread was started a year ago, but I am in the same situation as the original poster. I was just diagnosed jan. 4, 2012 when I got optic neuritis. I had a terrible headache for 1 week...
I am not a doctor and no expert on MS. I was just diagnosed January 4. I do know the MRI was how they figured out for sure that I have MS. I was told blood tests don't tell them much with MS...
Thank you, Barb and Frank, for your input. I am doing pretty good, haven't started the Copaxone yet, I assume by monday it will be here. Only time will tell I guess. It is good to know that there are...
Thank you for your reply. I'm not sure exactly where the lesions are located yet, but I guess all I can do right now is try to stay positive. I'm starting the Copaxone any day now. I read where you...
Well,I went back 2 the eye doc yesterday because the neurologist told me to go and let him check my vision. I said it before but I had severe optic neuritis and spent 6 days in the hospital, 5 days...
I guess I am lucky in a sense and should be grateful they did catch this so quickly. I need to start dealing with all this more, and ask to see my mri's when I go back in a few weeks. I still can't...
Thank you for responding. I never thought about it being odd that I got diagnosed so quickly. I guess it is though. I have avoided dr's for a long time. when I saw the eye doc when I lost my vision...
Right after xmas, my vision in my right eye got dark. It was darker the next day, so I go to the er. They said I had an abrasion and to see an eye doc if it didn't improve. Keep in mind I didn't have...