I'm Screwed!!! Between MS (16 years) and CD (2 years) and all the high and low dose predisone, my bones are probably bad....
it will take a bit to heal, that is ok because you want it to heal from the bottom up(otherwise you could get a empty pocket) All the best and God Bless!...
I would like to know what will happen if you are off your meds. Can't afford all my meds since Itook a job that is 25,000 less a year. Stopped my endocourt. What will happen?...
Thanks Gretchen, didn't know that. Sometimes perscribers won't prescribe drugs for their off label use. Good to know that they will....
Some medications work better than others, I think using Adderol for fatigue maybe contrainicated-it is prescribed only for ADD/ADHD. You would have to speak to your Doc about it,see if they can use...
I was thinking about getting an implanted port. Sometimes it is not just a case of better phlebotomists. I have a great deal of scar tissue in the veins. The place I got to to get blood drawn "no...
I have had MS since 1998,Crohns since 2010. Humira is supposed to be great for Crohns, but I can't take ANY of the biologics b/c of the MS(will make MS worse). Humira causing MS...Don't know I...
Gretchen- I used to take both provigil and Ritalin( no more provigil-too expensive even with insurance) and the fatigue can still be overwhelming. Shaking in my boots, have to start my new job and am...
Best of luck you guys. No little kids at home but I've had this since 1999 and still trying to work as a RN Fatigue is the worst!...
Studies that I have seen have been inconclusive and MS is not an approved condition for HBO(worked in a wound clinic and know insurance won't pay for MS...
I have crohns and MS. Even if I went on SSD, my hubby and I make too much to get medicaid. I quit my job on 10/31/12( too much stress) and can't find another one. My last job didn't have benefits so...
Teri, Gretchen: Ditto. I am so sick and tired of being sick and tired. Trying to hide my condition from employers, but having to be out either d/t MS or the crohns. They are Ok with it for awhile,...
GreeekGoddess: I'm glad you posted that. I was in the same boat. In my job, some people were pleasant,however it was all the back-biting complaining about everyone. Our clinical coordinator would...
I have been on Endocort 9mg for almost a year, it is the only thing that works for me and doesn't make me vomit /community/emoticons/sad.gif ...
Thanks Gretchen. Since I stopped working two weeks ago, I might wash dishes or do a load of laundry but that's it. Even that is a struggle, much less a walk. I feel like a lazy,worthless, slug....
Hopefull! I hope you are doing well. Found for me if I laugh at myself then people can't laugh at me. I changed jobs for awhile, but it was too stressful. I worked in a wound clinic. I got my numbers...
Justincase: Very good. When I taught health assesment for nursing students I showed them my positive Babinski( toes fanning out, happens on both sides) as well as a positive rhomberg test(falling...
Cathy: I just saw your post today. Could be a number of things, I agree with the one member that said you need to go to a neurologist that specializes in MS. Could also be normal pressure...
/community/emoticons/sad.gif Please help!I have had RR MS Since 1998. I have always had some amount of fatigue, and was on Provigil until the insurance won't cover it. I am also on Ritalin for...
Years ago they used to give quinine, like what is in tonic water. That being said K+ is a funny electrolyte. It ranges from 3.5 to 5mg/dl(I think it is mg/dl of blood.). The heart likes the potassium...
woundpacker,I am sorry that you and your mom are faced with this. No, I guess I shouldn't have said medical blackmail, but that is what it feels like. Yes, I suggest your mom find another clinic(June...
Also, I wasn't going to tell my last employer, however, they wanted a physical.A doctor can't lie. So the job saw what I had in black and white. The job I am trying to get wants a physical too. I am...
Jason- I KNOW this, what I am saying is that my job would not give me the time off to see the doctor. That is part of the reason I quit my job,can't be without meds!...
cleo 35- thanks for the post...Yes I did speak to the NP's nurse.....Left a VM for the NP....Only thing that worked is making another appointment....another reason why I quit, I asked for that day...
I did not intend on "playing" the system. I realize why anyone would think that. My job was not flexable in giving me time off for appointments and the doctor,as you well know, is booked weeks in...
OMG! I was supposed to have a port implanted and now I am scared, if thsy can't find it. Just because someone is a nurse, doesn't always mean they know what they are talking about. I don't lecture...
Myrne: I feel your pain-literally. I take about 8 Immodium a day,b/c we are so busy at work I don't want to have to go or worse have an accident. I hope you have a remission soon :) Best of everthing!...
the only crohns med I am on is budesonide ec. The rest of the meds are for MS, been on them for 15 years. This pain started on Monday and is so bad at times it takes my breath away. Oh yeah I am on...
Dear big betty, thanks for the support!:) I appreciate it! pb4, my last job wasn't supposed to let me go b/c of health issues... the problem is I can't prove it. People want nurses who are perfect,...
yeah I know you are right, I just started this job, I don't like to ask for time off, but nothing available for three weeks for an appointment. If I lose the job, I lose it. It's very stressful...
I trred to make an appointment, they have nothing this month. I can try and ask the scheduler for a certain day of, but the clinic I work for is SOOO busy. I don't have sick or vacation days, I work...
the colonscopy I had did not show CD,I was the small bowel follow through that did show it. You have convinced me not to go to ER for my pain, and my gastro doesn't have any openings to see me this...
I am struggling with that as well....3 months ago I got a clinical job... so much stress! besides CD, I have MS and I've had one of those attackes three weeks ago. Monday I kept running to the BR,...
Has anyone else experinced this? I am out of my Budesonide, call the pharmacy to have them call the Doc to get a refill. They call me back and say they can't refill this the doc won't refill it until...
please let me know if you get an answer. I feel like someone has been stabbing me in the r abdomen,nothing seems to help. /community/emoticons/shakehead.gif ...
You guys are great! I know people are trying to be helpful, but it doesn't really seem to matter what I eat or if I eat, a bland diet or any special diet, vitamin, or product your cousin is hocking...
yeah if you guys now of how to get in touch with Dr.sewinski, PLEASE let me know . I live in Buffalo now and can't find a good GI doc here Thanks! Habshockey, I used to teach nursing at...
Oldcrohnie: I live in New York too. Won't beat a dead horse but my hubby is on SSD, I tried to get on SSD, but we make too much as a couple to get medical (medicare yes but it won't cover everything,...
Bruinsfan, Sorry about all you are going through. Had my employment physical and we will see if I keep this job after they read it (CD, MS, thyroid cancer)...
I am sick to my stomach all day, don't vomit but it doesn't matter what or if I eat. Didn't feel like this before CD...
when I was first diagnosed with MS back in 1999, the hospital I worked for said "You can retire or we can let you go your choice".So much for being honest....
Oh you guys that's awful!!! I'm paying 600 dollars a month for COBRA. Many of the CD medications they can't use on me b/c it would make the MS worse(the last job I had I worked with Nurses that had...
I thaught you could experience fatigue with CD....but I have MS too so maybe that is why I am so tired(plus working 40 plus hours a week)...
The left sided pain is new for me too. I try NOT to eat if I can help it.The pain was so bad over the weekend all I could do was cry...couldn't breathe. My husband is worried about a bowel...
data: i agree with you. told my last employer( I have MS and CD) tried to go back on ssd but my hubby is also disabled (DDD and bipolar). We can't get medical b/c we make too much on SSD(medicare...
Hi guys. Been working the new job for a month now. It is killing me. I am so tired. Between the CD and the MS and I have to keep going like nothing is wrong,it is sooo depressing,The job wants me to...
been on Copaxone since dx in 1999. You get a bee sting type reaction sometimes from the shot, but the support nurses that come with Copaxone are great....
Once you have one chronic disease, you are at greater risk for another. I have MS and Crohns....
http://emedicine.medscape.com/article/1464149-overview medscape article also on the same page is treatment for radiation issues. Lab your GP is not keeping up with what we call "evidence based...
chelleh: I am so so sorry. i can't have any more b/c my family convinced my to get fixed(their words, not mine). I hope that if it is through a surrogate, or you just decide to do it...HUGS and Love...