Three times now I have fallen, my legs are not steady or strong. I have not gotten hurt because it was inside on the carpet and the lyme doc acts like it's nothing. Have any of you had this? And I...
Hi Aly, I was feeling so bad too and went to the doc today. He changed alott of my medicine, cutting it way back. Then added a few new things and I will return to see him in 2 months. Maybe too much...
I have had the pain and stiffness for a long time but it has gotten much worse lately (due to lyme?). And the rheumy did imaging a year ago and shows deg disc and spinal stenosis. I just need...
I use a heating pad and that relieves the back pain but I don't have any pain reliever or muscle relaxer. If I go anywhere it is a question if I can smoothly walk to the car so I stay home a lot. I...
I have been getting so much back pain and stiffness, I can't even stand up straight. I don't see the doctor until next week but I can barely walk to the car and just moving around the house is a slow...
My walking has been so stiff at times and exhausting. I have spinal stenosis and I think that steroids might relieve this. But I wonder if that would be a problem with the LD?...
I have had arthritis in my back for a long time but since the LD came it has gotten worse. Do you think it is just from the LD stirring things up or just a separate illness?...
Maybe not doing as much for detox as I should. Tell me what you do and is it each day? And each day I do the pekana basic kit and the banderol and pinella according to the package directions....
Thanks so much for your reply.The doctors asst called me today and said these sx might be from die off and I should cut back on the IV to 3x week instead of 5. She also said I should start a clay...
I started a new IV med last week and have noticed an increase in leg weakness & off balance I have. This morning I fell and landed face first on the hall floor. Luckily my forehead and nose only got...
I have a few degenerative discs and also spinal stenosis so these might be the cause. But why would all this flare up so much now with the lyme disease that I am dealing with. I am not sure which...
Hi Beth, I see a Dr M at the Serenity Clinic in Waukesha. They are an alternative medical clinic and have a big website where you can find much information. I have been seeing Dr M since Jan '15 and...
I thought maybe my stiffness and walking problems would ease up if I went to see a chiropractor. Have any of you had relief from this? Please guide me how to choose a good one......
Not sure if this is part of the herx stuff from the new IV but I have been having tiny urine leaks. Luckily I am wearing a pad, but I don't even feel it coming out, only notice afterwards. And when I...
I do the bath almost every day. And I am taking Pinella and Banderol and a 3pk detox kit from the lyme doctor. My biggest problem is extreme fatigue and walking unsteady. I just go up and down with...
I was on rocephin IV since mid-January with little progress. I am waiting to feel better. It is a good day when I can get showered and dressed and not be wiped out for the rest of the day and that...
Each day I get a few good hours then the fatigue and flu like feelg comes back. I just started a new IV med called Invanz a few days ago and also will be taking another new oral called Clindamycin. I...
To either Pirouette or Lymemomx2, does the new IV invanz seem better than rocephin or is it too early to tell? Thanks...
Oh, I wonder because of the IV abx change will all the other meds re. lyme be changed? Thanks...
I started a new abx infusion-Invanz- at the drs office today and asked the asst if I could get a printed list of how I should be taking the detox stuff. I am lost and then my lyme brain makes it...
So good to hear from you, Pirouette! And a few of the other wanderers are back, is that good or bad? From a lyme point of view it stinks but still good to see your cute name and the other post-ers!...
Thanks so much, not sure I understand all that and if I can really fit it in my day the right way. I get confused easily!...
Hi Silly, Just read your post and sorry to hear things are so hard for you right now. But there will be some bright spots soon so hang in there. Wish we lived closer to you, we could cook up some...
And btw, the above extras are in addition to the 15 other meds I take everyday and I wonder if I will get the hang of all this? Thanks!...
This is what I was told by the lyme doc's nurse--the banderol (1-30drops 2xd before meals) and then pinella(l0 drops can be taken at the same time but do not mix together and they both need to be...
And why don't some meds work and others do?...
OK, the new IV med is Invanz and I will start it on Wed. Going to the doc ofc to get the first new infusion. I was on IV Rocephin for 4 mos. with few changes. And also I still take oral abx along...
Now the lyme doc has switched my IV med to Invanz, hope this is more effective for me. And she sent me a detox kit of 3 small btls and also Pinella and Banderol with different directns for each. Are...
I don't know what changes she will make in my oral meds. But for now I am taking Banderol and a tincture for babesia. She might change it all up, I will let you know. Thanks...
I talked to my lyme doc today and told her that altho I have been taking 4 mos of rocephin with minocycline, tinidaz and clarytho I have little progress. So now I will start a new mix of abx and a...
On rocephin IV for almost 4 mos now and still have extreme fatigue of sleeping 8 hrs at night and 4 hrs or more each day and having very stiff walking. Also have no normal activities except getting...
I am treating babesia with a tincture made at the drs office and also something else he gave me called Banderol Microbial Defense which I take each day mixed w/ water. Not sure if this is effective...
It is not that warm yet in WI yet I am sweating at night often, not always. It is disgusting! I am past menopause so maybe this is from lyme and babs?...
My back and chest have so many small brown moles, where I used to have clear skin. They are not anywhere else and are just ugly. I wonder if any of you have similar skin issues aside from the lyme...
No, a rheumatologist will not treat lyme. I took my positive test results to mine and he said he would only give me a month supply of meds. And he did not know how to read my lyme test. You need a...
I feel like I will never get well or even better. I am so tired of waiting to feel good. I am praying to just get healed or die quickly. I am sick of being sick. What helps you when you feel so down?...
This lyme disease and babesia is like being on a roller coaster and just when I think I might be getting better--wham! So I wonder what your week or days are like?...
I think that my symptoms are from Babesia more than Lyme. The IV that I take is hitting the Lyme hard but I think that maybe the Babs I have might be the main prob now. What is effective for you?...
I could not remember my granddtrs name when we went to her school play. She said Hi Grandma and hugged me but I blanked out. She did not notice but I am freaked out! (I knew that I knew her but could...
Akkami--This is to correct my post. I switched "lupus" around with "lyme" in a few sentences. I hope I did not confuse you--I am so befuddled sometimes! 1)my lupus titers were sky high 2) the lupus...
Akkami--not that this is much consolation but I remember that on average it takes 5 or more years for some ppl to be dx w/ lupus. I had symptoms for a few years but they came and went. And even when...
I had systemic lupus for over 15 years and when I read your post I wondered if that might be your problem. Have you asked your questions on the Lupus forum? If I remember right, there can be negative...
Some days are better than others but I have so much stiffness when I walk. I do have degenerative discs and spinal stenosis but neither of those ever bothered me too much until I got lyme !! Is all...
I am thinking that rather than wait until July, I could possibly have a phone consult w/ the other doctor from the clinic. She is much more experienced w/ LD. I just don't want to keep waiting and 3...
I saw my doctor today and he increased my IV med from 2gm to 3gm of rocephin daily and gave me a tincture for babesia. He wants to meet w/ me and another lyme doctor at the same clinic to discuss my...
I have easy bruising on the front of my lower legs. I think even when I wear socks too tight I get a blu-ish line around my leg! The lyme doc doesn't seem concerned.......
I was having rib pain on both sides and it felt like I was bruised. I could not get in to see my LLMD so I went to my PCP. He said it was costochondritis and gave me a rx for meloxicam, an...
I see the doc on Thursday so I can ask him about all this. Thanks!...
I feel worse now after 9 wks of IV rocephin. Is there some other IV med that I could ask the doc about? (I did have a few good days) Just FYI, I have NO life except sleeping or sitting in a chair...