My hot flashes are not as intense. I'm also taking diflucan once per day for the past few weeks. It's hard to say what causes it, so I'm just dealing with it and will keep notes on it. I am not...
My LLMD recommends VSL #3, so that's what I'm taking. I ordered it on Amazon Prime and it came in a Styrofoam cooler with an ice pack....
Thanks for the response, Missouri. It's so hard to tell is something is a herx or a whole new issue. I will continue taking it and see what happens. And thanks for bumping, goshawk....
I've been having hot flashes since early January. I started tindamax mid December, started ceftin in late December, and continued taking the doxy and mepron that I've been on for a year or so....
Thanks for the response, Girlie. I should clarify. I was diagnosed and treated in 2009-2012 and then I just stopped treatment because I was diagnosed with Melanoma, so I freaked out a bit. But then I...
I've been treated for Lyme and co-infections since 2009 on and off. I had a brain and cervical spine MRI without contrast done yesterday. They compared it with a previous one done in April 2016 and...
Hello. Not tingling for me, but I get what I describe as lazy face. It feels like I'm not moving my lips that much and it even changes my speech a bit to where I'm mumbling. This comes and goes for...
I recommend Cotz for the face. It is so smooth and not greasy. I love putting it on and do so after my moisturizer. I am very fair skinned and not only is my skin sensitive, but I break-out when...
I'm the same way. I like being at home the most. But I don't mind that I love being at home. I think with all of the bad things going on these days, it's natural to feel out of place (maybe because...
Hi sulig. I have a confirmed diagnosis of Lyme and Babesia. I have lesions on my brain and one on my spine. I also have had very low vitamin D and folic acid in the past, for which I took...
I know you asked for those diagnosed with sleep apnea, which I have not been, but I realize over these past few months that I'm no longer waking up "choking" or with the feeling like I wasn't...
I always come in to see him. I don't know if he does or doesn't do phone calls with patients....
I'm taking Bactrim - 2 tablets twice per day since December. But I haven't read up on the side effects because I'm afraid I will put them in my head. Anything "odd" I've attributed to kill-off and...
I just made a list of all my medications and have been tracking my symptoms. Most of my symptoms have improved, which are I can walk normal, night sweats are decreasing, weird feelings in leg have...
Is it the well-known Dr. J.? This one? http://jemsekspecialty.com I posted the website as he is open about treating lyme disease. I still choose to say Dr. J. most of the time...just in...
I wonder if this is my Dr. J. He's not in DC, but in the suburban area of DC. I really like Dr. J and feel that he has saved me twice now....
Just from my own experience, I think the best abx are bactrim, mepron, doxy and rifampin, though I see some don't think mepron is a good combo with Rifampin. I have to say that I feel better these...
Before I started treatment in 2009, at the one set, MRI showed 12 lesions, so I found an LLMD and after doing treatment for several months, the next MRI showed four brain lesions. Now I have five or...
Thank you all for taking the time to read and offering your input. I am just going to focus on the Lyme and hope that my LLMD stops talking about MS and focuses on Lyme with me. ChickenArise - I was...
I wanted to let you all know that I decided to go see a neurologist since my LLMD asked me to. I just got back from the appointment. The neuro said he couldn't diagnose MS based on the MRI alone and...
pugmom1 I had one spot on my cervical spine in 2009, but only four lesions on my brain at that time. I had o bands in my fluid too, but the LLMD said I didn't have MS. It's all so confusing. LLMD...
Traveler - Good idea - I should just ask him what if I don't want to go to a neuro?!? Because I don't! :) Also, I just noticed Loutucky's comments about taking the LDN which he wanted me to do. I...
He is worried about the lesions and that they are active. I think they are active because I needed treatment. It seems to me that if a bunch of things go wrong, a lesion or lesions might be a result...
Loutucky - I am on my 5th week of Mepron for Babesia treatment and it was hell up until these past few days. I had to skip one day completely and took only at night for a couple of days and then I...
And thank you for the links and article suggestions, Traveler. I really appreciate it....
Traveler - yes I have reminded him. He knows I get upset when he talks of MS. He examines me and says that my physical examination doesn't at all seem MS like. Whatever that means. When he sent me to...
I don't have headaches. But I know I have Lyme. I've been down the neurologist road before, too. In fact, in 2009, the neurologist was "99.9% sure I had MS and that I didn't have Lyme". But after...
In the list Jackss provided, I have 1-7, 15, 16 and 18. I have confirmed blood tests for Lyme and Babesia. I have multiple lesions on my brain and because of that my LLMD keeps talking about MS....
So my LLMD that I started seeing in 2009 said that I didn't have MS and I had brain lesions then. I started seeing him again in 2016 after a break after treatment. He does not have any of my prior...
Thank you for all of the feedback. If rifampim and mepron don't go well together, then I don't know why my LLMD would prescribe them. This isn't the first time I've taken them together. When I go...
Hi all, I was having some odd symptoms, so I went to my LLMD in mid-December. At the appointment he took blood for a smear. He suspected Babs, so he prescribed Mepron - 2 tsps BID and replaced...
My LLMD has said that I may have MS caused by Lyme. I have positive Lyme tests and I responded immediately to antibiotics during my initial diagnosis and recently during my recurrence because I...
I planned to. Would an antibiotic be effective if taken every other day? I hadn't considered taking them different days. Last time I took mepron twice per day, though one tsp 2x per days vs two tsp...
I'm not sure why I need LDN. I was doing fine until September. July or August I stopped the mepron. Oh one other thing.... my folic acid was low at 3.7. Doc had me take daily folic acid and retested...
He told me to replace tindamax with bactrim and continue the doxy and rifampin. And start the mepron at once per day and work my way up to two tsp twice per day. I just feel really off lately. I only...
I no longer listen to the radio, I don't talk on the phone and I even stopped using my map app because I don't want the distraction. Phone is kept put away in purse. Two hands on the wheel. I have to...
Hello- My LLMD wrote me an Rx yesterday for compounded LDN. I told him I had to do some research but my initial reaction was that I didn't want it. He wants me to have another MRI and keeps...
I was treated for Bebesia for three months... about April to June and stopped because night sweats went away. I took mepron for that. I did test positive for Bebesia and Bartonella in 2009. Thanks...
Hi All, I've been undergoing treatment since April for Lyme - second round since 2009. I take three antibiotics right now, doxy being one of them. Anyhow, I'm now having "Brain" issues, such as...
Let's hope it's herx related and will subside sooner rather than later. I also feel "off" lately... very moody, too....
Thanks so much for the response! I will stick it out then and do more detoxing. I've been trying to drink a lot of water and I've cut out all sugar, pasta, rice, etc (low-carb) so I will keep doing...
Hi All, I re-started treatment for Lyme and Babasia in April. I started with Doxy 100mg 2x/day, Rifampim 300mg 2x/day, Clarithromycin 500mg 2x/day and Atovaquone liquid 750mL 2x/day. Since the night...
I forgot to mention... right before this post, I was out in the garage and suddenly had an urge to pee... I couldn't hold it... it just kept dribbling out. The urge came out of no where. What the...
Ugh. I was doing great, but starting Friday evening I was so achy. And on Saturday, I was just an emotional mess and then felt like I had the flu and my legs felt shakey. I had to take a xanax...
I have been responding very well to the four antibiotics and it's been a week. I'm walking completely normal now and my left side sensations are back to normal. However, the day after starting the...
Hi Cheetahjade - The little symptoms were what I call electrical shock sensations in my feet and sometimes they make my leg jerk. I've also noticed a slightly crusty nose, which means it has a really...
I've detoxed only once so far. I wonder if my double-vision/out of focus left eye is a herx reaction. What do you think? I've never experience double-vision, though my left eye has felt "weird" for...
Yes. I left off on amoxy, so I guess that was my maintenance dose. For some reason, I felt I couldn't tolerate doxycycline... it made me sick everytime I took it. And I believe that is because I took...
I quit cold turkey all antibiotics in 2012. I had another illness crop up and I felt like I had enough medical intervention at the time. It wasn't my best decision. There were never really any plans...
Oh and now my teeth hurt. What the heck?!?...