Hi there, I have been on Avonex for almost 2 years. I think 9 days is too long to wait. My doc said 1 day either way and I find that if I do change it I am better off if it isn't even 24 hrs...
Days late I'm here looking in on the boards for fatigue tips. I am so darned tired I could collapse, but the anxiety keeps that from happening! I am just here to gripe about being tired. Sometimes...
Hi all...I come to the experts for advice again... What in God's name can I do for vertigo? I feel like I'm 16 yrs old and I just drank my first 6-pack. When I close my eyes, the room spins. When I...
I definitely told both my gp and my neuro. Neither were concerned. I think they blame the Avonex....
Well, I don't know that it's common, but I have a fever quite often. It's usually low, but it sometimes goes up to 102 degrees for brief periods. Advil seems to do the trick when it goes too high. I...
Geez Uppity, thank-you as always! I have been having the squeezing sensation around my head for a week or so now and I was beginning to think it was blood pressure or something. Now that you say it...
Okay, now I don't take Beta, I take Avonex, but I was totally freaked out at first too. I also have anxiety attacks and so I have Xanax on hand. I found that at first I took 2 Xanax and then could...
I have been on Avonex for about a yr and a half. I have definitely been able (per the doc) to change the day by one day in either direction to accomodate my schedule. Also...it gets better so don't...
I have a couple of suggestions like the one from the Montel show. You should also speak directly with the manufacturer and see if they have any kind of assistance or reimbursement plans. Good luck!...
So sorry to hear that you feel alone. You sure aren't! Look how many of us are here with questions, suggestions and just general support and information. I also am on permanent disability. I find...
Hi Confused, Good luck tonight! I'm sure you'll do just fine. It's a scary thing to do the first time, but the nurse will help you so you are sure of yourself. Don't be afraid to ask for further help...
You may already know about this, but you can try going to freemedicinefoundation.com They are an organization who will go to the manufacturer of your medication (which you can also try yourself) and...
You'd be surprised how good it feels to be able to do the shot yourself. It gives you a real sense of taking charge of the illness....
Hi there...I have been taking Avonex for just over a year. At first I wasn't sure I'd make it on it but now it's no problem at all. I think it took 2 - 3 months before I wasn't really tired and sore...
Uppity, you are an inspiration to all of us. I hope I can some day have your positive outlook on life in general. I also hope that I can help others even a fraction of the amount you help everyone...
I'm so sorry to hear how frightened you are! You are way better off now that you know what is going on and can combat it with the Copaxone. You are now in charge. When you do nothing, the illness is...
Good luck with the "leg falling off" problem...lol You'll be surprised how proficient you can get at doing something that seems awful. Have a very merry!...
Good job Sheila!!! You will be so happy that you are able to do it yourself. The first time, when the nurse came to our house, I was convinced that I was doing it for the first and last time. I was...
I don't know how to add pics or I'd be happy to. We have some great ones and some really funny ones (i.e. me on a camel...lol) Tell me how to go about it and I'd be happy to share them with you....
Cruising is the best way to travel when you might just want to hang around relaxing for the day. It gives us the option for my husband to be more active around the ship and yet I don't feel left out...
I just wanted to share a trip that I just took. I was dignosed last year at this time and I just hit the one year mark on Avonex. Last year I was afraid that my life was going to change drastically....
I believe mine was a combination of weight loss too fast and having a hysterectomy. It doesn't seem like everyone has an "event", but some of us do. Hope you are doing okay. By the way...I could use...
I am wodering if any of you have traveled internationally with Avonex or one of the other injectable medications. We are traveling on Wednesday and I am wondering if all I need is the letter from my...
Hi there...I have been giving out the information for people without insurance to go to freemedicinefoundation.com I wasn't sure if they might be able to help you so I called and asked. According to...
Welcome! I am fairly new to this site, but have gotten such great help and support here that it has saved my sanity. (What I had to begin with anyway) I have been on Avonex since last December and I...
Oh boo hoo to your husband! "For better or for worse" was undoubtedly a vow he took, so here it is..."worse" and it is all part of the package. I too started Avonex last November and started...
Hi Jerry, I have been taking Avonex since December 2005. It was a little rough at first, but it is much better now. I too make sure that I take Advil a little while before injecting or I pay for it....
Hi again all...as usual I come to the experts with a question. I am having what feels like pressure behind my left eye. It is not pain, simply pressure. It does not seem to be affecting my vision, it...
Good job! The back-up plan is anti-anxiety meds for me. and lots of ice! Even still I have weeks where I sit like a boob holding a needle to my thigh for quite a while...lol The longer it goes on,...
Try doing (2) weeks of 3/4 dose in stead of going right to a whole dose. That's what my doc had me do. I've been doing the injections since December and I still have the weeks that it is really hard...
My word! What a situation you are in. Nothing is untreatable these days though and you have prayers from everyone here and I'm sure you have loads from family and other freinds to boost your...
I went to a seminar that Biogen put on and they had a neuropsychologist speaking about the brain shrinking from MS. He did give a lot of info on the physical part but also suggested that we should...
I definitely have the same thing! I'm always whining about my toes and feet. My husband says to go to the orthopedic and my neuro nurse practitioner says don't go to them becaue they will want to...
I think I am probably one of a very few people who post on this site who takes Avonex. I love the fact that it is once a week. At first, in December, I felt lousy after taking it, now I feel really...
This may or may not help you. I was just helping someone else who needed to try to find medical benefits even though she was working. She was not able to work enough to maintain benefits, but through...
Okay Michelle, I felt the way you do too before I started on Wellbutrin. I also take Avonex and I didn't think I was "depressed" when I started on it, but after a couple of months my neuro told me...
What a great post! Thanks to you we can be cool for the summer! Gayle...
Okay, I have that happen sometimes too, then I remember that I forgot to take my xanax...lol Do you take anything for the anxiety of the injection? I take my xanax half an hour ahead and I'm much...