Paris Girl, My first symptom was hot, itchy feet! It usually doesn't come back unless I have been on my feet all day long. I have found that if I change the stimuli it helps some. I have tried ice...
Michelle, The summer has been crazy for me so I haven't posted in a while but I have been reading when I get a chance. I don't know really what to say except that my heart cries with you!! You...
Michelle, I am so sorry for all that you are going through! I truly hope you get some relief soon, you deserve and need it! Take care, Lysha...
This is wonderful!! I just wish the insurance companies would cover treatment before a formal dx! Lysha...
I did as you all suggested and called the neuro on Friday. The nurse called me back today and she is getting me scheduled for another MRI. I just had one 2 months ago. I am a little shocked and don't...
Cecilia, Is the pain in your muscle or on your skin? I get a burning pain in my muscles. It is like I have ran a marathon but all I did was walk down the hall or bend down to my knees. I also get the...
Congratulations to you and your hubby!! For me anniversaries are always a time to reflect on the past and how wonderful it was and continues to be. I hope your day was as wonderful as it was 39 years...
So, any tips for how to get the numb feeling in the vagina to go away????? I can't feel anything except pressure! I'm obviously not very good at faking it either or so my hubby says. Since I'm still...
I am glad you had fun with this! Gretchen, we are looking to have another person live with us. If you move to kansas, I think we could serve you! hahaha Sunny, I'll give you lessons some time. Maybe...
Michelle, I am so happy that things are starting to look up!! I have 12 extra pounds I could give you! Anything to help a friend! hahaha I am glad you are back home and feel up to dropping us a line....
Most of the individuals that we take care of have a daily sheet called "Data Cards". It has every waking hour listed and we record what happens in each hour. If anything is being tracked we also...
Stacie, I did the EMG and it was negative. I agree, I could think of so many other things I would have preferred! I was told when I was 23 that I had carpal tunnel, I was a casino dealer so it made...
China, I have the same problem. Sometimes it happens during intercourse and other times it will happen after. I agree it is very distracting. Lysha...
You absolutely need to mention this to the neuro!!! Also if you are having any bowel problems, anything different than your normal. I know I'm not a ton of help, but you do need to tell him. Lysha...
angielov, My muscles ache quiet a bit. Anything extra I do makes it worse. When I brush my hair my arms burn, if I stand too long or walk any distance my legs will itch and this is along with the...
Thank you, life! I have been wondering if everything went well. Please let her know that I have been thinking of her. Lysha...
My hubby has the de-coder pass word that you need to be able to look at them. As long as your's are on a dvd or cd type of disc. I will have him give it to you when he gets home if you are...
webuser, After my MRI I asked if I could take a copy to my primary care physician. They made a copy right there and I left with it and took it home. It is fairly easy where I live to get your films....
Thanks for sharing Rhonda! You are a beautiful woman in mind, body and spirit! 3 girls and a Monk, you really have your hands full!!!! Lysha...
I had my follow up with the neuro today. The MRI was normal. All the in office tests that I failed last check were fine today, except for my eyes. My eyes are not tracking like they should. I have a...
Thank you!! It was a lot of fun to put it together. You can do so many different things with myspace. littlechina, I tried to get onto your's but you have to friend me first. So can I be your friend?...
For all of my friends here at HW. I have been working on a web page. It is still a work in progress but you can see what I've done so far. www.myspace.com/barenakedkitties I think it is nice to...
Michelle, I will be thinking of you and wishing you well! Lysha...
Uppity, I work with the developmentally disabled also. We actually have a lady that lives with us full time and hubby manages 3 homes. I can't imagine what it takes to "break through" to them and get...
I am so sorry to hear about this flare!! How long has it been since you had an exacerbation? I imagine it is scary and frustrating!! I know I always feel frustrated when I can look back and know that...
Mom, Complain all you want that is what we are here for! I would recommend calling your doc and asking your question. I would hate to tell you that it is ok and then you find out something horrible...
I am glad they didn't find any thing of course now you still have questions. Good luck on your other test! You know it is probably just neurological!hahaha Take care friend, Lysha...
Kas, My original problems started in Jan. of 2006. In June I started having periods every 2 weeks. I went to an OB/GYN. They did an ultrasound to see if I had cysts or tumors on my ovaries. They...
Irish, I always say it is like fire running under my skin. It is painful and annoying because I know it is not there but my brain thinks it is! Sorry I am no help just wanted you to know that I feel...
Michelle, I know how hard this has all been for you and it seems to just be getting harder! I am very sorry about the colon removal! Taking out an organ that has no real function is one thing but...
John, Have you ever considered something such as Desmopresson (DDAVP). I have a few people in my homes that have been put on it for nighttime incontinence with rather good success. Instead of working...
Madlou, I know rheumatoid arthritis emits heat when it is in its active phase. This usually happens on the hands, feet, knees ect. I have no clue as to emitting heat on your back though. Sorry that I...
Michelle, Sorry about all the problems you are still having. I sure hope you catch a break soon! Glad to hear that you are back home. That's got to make you feel at least a little better. Take it...
Thanks guys for all the support! I really appreciate it! The nurse called today and my MRI is next Thursday. I am a little shocked. I thought it would be a couple of weeks away. I do have my bags...
AH, itchy legs. I can definitely relate! One of my first symptoms was itchy feet! Sometimes it crawls up to my calves. It is definitely bothersome. I have not found anything helpful. I also get...
I went to see my neurologist on Monday. I thought it was going to be a follow up from the sleep study. The only thing he mentioned about the sleep study is that it didn't show anything other than I...
Congrats Anita!! That is soooo exciting!! I am so happy for you! I am also not dx so I can't help too much. The best advice I can give is rest, rest and more rest. I nursed all of my babies and it...
Sunny, I think your post sounded fine. I use the techniques that you talk about. I am like Uppity in that the lights seem to have halos around them. I get disoriented and dizzy sometimes. During the...
I wish you lots of luck and I hope you find the answers you are looking for. Some of us have gone down the lyme road. For myself it just brought up a lot more questions than answers. At some point I...
Dear Bonnie, As I am not on any of the CRABS I can't give info. I don't know what I would do if I were in your shoes. It is easy to give advice but I won't this time. I will tell you a story. A few...
Welcome Sunny, Fatigue is a HUGE problem for me. My neuro sent me for a sleep study test because he thought I might have Narcolepsy. I am undx, so still going through all the hoops. I am sorry to...
Rhonda, First thing that comes to my mind is... Are you on any new drugs? Can I have some of those?hahaha I haven't heard of this but you know... not dx. Maybe someone else will be along soon. I...
With Rhonda's help I think I have figured it out. It is called Lichen Sclerosus. I am going to be calling my GYN next week and see what she thinks. Thanks Uppity for sympathizing with me! My friend...
Hi everyone, I have what one doc described as "warts" on the side of my right lip, down below. These are not sexually transmitted and I have never given them to my hubby, been married 10 years. They...
I seem to be having a problem with my volume control. When I try to speak loud, like talking over noisy children, I either scream or talk very softly. However to me it comes out at the volume I want...
Allison, You mentioned that you just gave birth to you second child. I am putting a link at the bottom for you to look at. It discusses pregnancy and MS. It might be helpful for you. Some of the...
Dear Rhonda, Children know so much more than we give them credit. What we think is just between the parents is actually written all over our faces. Even though you are not dx yet you could still...
I have a friend who has MS with a seizure disorder. Her and her doc chose Avonex. I think because it is once per week. She also still takes Tegretol to control the seizures. She has been doing very...
I wouldn't do it! That is my opinion. I have a family, like you, that needs me! If I didn't have a family or I was older and my kids grown then I might do it. I know how loving and selfless you are...
I have nystagmus also. Mine will go from the jerking side to side and also what I call rolling. If you remember the older televisions that the screen would roll up and down and you could adjust them...