Hi Bunny - I have tremors quite often, but my nerve pain medication has helped ALOT. I use neurontin for my nerve pain, the weird thing about this is a side effect of neurontin is tremors, but in my...
Thanks to you all. The steroid shot didn't do anything for me that I can tell. The doctor even said that I would have this burst of energy for the next 2 days. I was really looking forward to that,...
Hi Everyone - I thought I was through with the whole Lupus world when I was DX'd with Lyme, however it seems I have a very painful rash all over my torso, chest, shoulders and arm pits, as well as...
Much thanks to you both for your replies. He is trying to get into his dr this week and hopefully they will give him some prednisone to help with the flare. I know he was on 9 Asacol/ day and I don't...
Hi Everyone! First time posting on this forum, but have been reading quite a bit for the last year every now and then when my hubby has a flare. My husband was dx'd with UC in March 2006, everything...
Sunny - Congrats on the new findings, but I as well as everyone else am a bit leary of your doc's 'fly by night' decision. Maybe if he/she sat down with you and could give you some type of answer on...
Whine all you want Rhonda! I've been defeated by spasms, tremors and pain in my arms and legs! I'm going to have to bump back up to the normal dosage, this past weekend was pretty painful and today...
Rhonda ! Hey there... The neurontin will only truly help if you are on it consistantly. Your body needs to have an ample supply of neurontin in it's system at all times to keep the pain at a minimum...
No problem Lynn! ;o) Gretchen should be back this weekend, I think. For the shingles, they don't hurt at all, but the area that I had them on is very discolored and still itches....
Hi Zoe - Neuro still has not ruled it out, however since I have some type of DX, I'll worry about that one and go with the flow until if or when something more comes up in the future....
Just wanted to say hi to everyone. Just got back from Alaska. Had a great time. Very relaxing except for me somehow contracting shingles a week or so prior... Wondered what was going on, my leg and...
My prayers are with you Michelle....
Hi Barb - Well, what I can suggest is have your dr do a mineral test on you to find out exactly what you are deficient in.. One of my docs did that and found out all kinds of stuff. I always thought...
Hi Kas! I too am glad that YOU are OK with the results. Hang in there, answers will come. Is your neuro an MS spec? I can't remember. Could you ask to be referred to an MS spec now that you have this...
Thanks all! I will be around, I'm a Healing Well addict now. Getting ready to buy that t-shirt.. :o) Thanks for teaching me the 'know how's' on the chat room too! ;o) Hi Jen - I had both tests done....
Hi All - Well, I've been my own advocate and when the MS spec told me he couldn't dx me with what I have and my neuro wanted to play the 'wait and see' game with the rest of the sx's. I knew I was...
Thanks TK, I guess that's what I've got. Came in late this morning for work since I could barely move my arms and legs. Talked myself out of bed and got the legs and arms moving again. Had 2 people...
Thanks everyone. Skipped school tonight and laid on the couch all night. Gretchen - we're flying into Anchorage on the 30th and then white water rafting up the Kenai river, then driving up with a...
Thank you redrose! I'll give her a call. Thanks again....
I know I'm not dx'd, but I really overdid it this weekend. Had a server crash on me on Friday and worked from 7:30 am Friday to 5:45 am Saturday straight to get the darn thing back up. Got about 4...
Hi MR - I am currently taking neurontin for nerve pain and it has been working very well for me. It also has been helping my tremors calm down quite a bit. However, when I overdue it, it doesn't do...
Hi All - Just wondering if someone could recommend a good rheumotologist in SE Michigan. For some reason, my neuro and my MS spec don't feel the need to investigate why my ANA came back positive....
I'm so sorry to hear about you being back in the hospital Michelle. I'll be thinking and praying for you....
Good Luck Sheila!...
Hi Marie-Claire - Welcome! There are many of us in what we call 'Limboland' here. Many more will be here to say hi and introduce themselves. I'm one of the Limbolanders, but I've only been here since...
Hi Marmie - Since I'm in limboland and lupus was thrown at me at the last neuro visit, I've been checking out their forum. I found this on one of their posts and I think MS patients can relate to...
Hi TurtleGirl - I just did a quick google and found that brainstem lesions can be the caused by migraines. Was it a c-spine that showed the lesions? I'm pretty sure the c-spine covers the very end of...
Thanks again to you all! Great Site Michelle. I'm 1/2 way through it so far....
Thank you all for the explanation! Motility! I was trying to remember the word for the bm -> 'fecal matter'! Goodness I can't believe I couldn't remember the real name! But the snake analogy makes...
Hi All - OK - I'm filling out some paperwork and of course the old any bowel or urinary issue question comes up. And it specifically states diarrhea or constipation. I have a different type of...
Thanks Okie - Still waiting for my neuro to call and let me know where we go from here. I know she is waiting to talk to the MS spec and he is out of town until next week. I'll report back when I...
Hi Nikki - Stay strong and positive, hopefully this is just a flare and you will be back to your normal sexy stride soon! ;o)...
Hi There - My neuro was suggesting tysabri as well for my treatment IF they decided there was enough evidence to dx me w/MS last month, BUT long story short, I came up a lesion short in the spine....
Why oh why can we not start at the 'I'm pretty sure it's going to get worse, but I can't help you until it does' stage??? :o(...
Thanks for the welcome! My neuro is waiting to see what the MS specialist wants to do. She mentioned sending me to a rheumatologist if the MS specialist is done with me. I should know something in...
Thanks to you all for your advice and experiences. I learned alot with Lynwood's info. And it helps to know everyone elses experiences as well. I'm just tired of this journey already and have only...
Hi All - I'm on a journey of trying to find out what has been going on in my body for the last 2 years. Everything started right after a hysterectomy in Dec '04 for adenomyosis. Last summer symptoms...
Hi Cecilia - I get this alot on the back of my left thigh/butt cheek, as well as on the back of my neck. It does feel like a sunburn or 'indian burn' as you describe it. Lysha - I get this type of...
Awesome Uppity. Congrats! What an accomplishment!...
Thanks to all of you for your support. Yesterday is done and I'm pretty sure everyone had a good time.. Thunderstorms and all. I haven't moved too far from the couch all day, even took an afternoon...
Wow, Michelle - You have had it all, haven't you? I'm so sorry for that. I don't see the antiphosphohlipid antibodies on the lab results unless it could be called something else. I see they did a...
Hi all - Saw my neuro yesterday, we spent another 1/2 hour talking about what is going on and where to go from here. The C-spine came back with a slipped disk and a spur on the left side of a...
Hi dog - I don't know if this may help, but I have been on neurontin for the last month and within about a week of taking it (200 mg 2X's day + 300 mg once day) my hand tremors have almost gone away,...
Hey there! I have the same issues as Kas, I think. My husband says I talk too loud in public, but then when I am home, I think I'm talking perfectly normal and he says I'm not talking loud enough. My...
Hi dRaMa - What type of MS have you been dx'd with, if you don't mind me asking? (DOH! I just reread the post... DARN Brain I see you already told us! )I'm still not dx'd, but the dr's have been...
Thank you all for the support. I am taking it one day at a time. So far have cried just once per day. :o( But I'm sure it's just everything going on right now in my life with both my kids leaving in...
Thanks Michelle - So nice to have a hug from you, with all you've been going through yourself! It means alot! Thanks again and a BIG ~HUG~ back....
/community/emoticons/sad.gif Hi all - had my t-spine and c-spine (with & w/o contrast) done last night and was miserable. Goodness! An hour and a half of lying completely still in the MRI was...
Hi TurtleGirl - I know exactly what you mean about not being able to voice things to the drs. The symptom sheet is excellent, although when I sent my symptom sheet to the MS spec I saw a couple weeks...
So glad to hear you went John! I was thinking about you!...