OMG Where do I start.. At the beginning I guess.. On June 3rd 2008, I was wisked away in a ambulance. I was recieving steroids for a flare, and was having severe difficulty breathing. I don't...
Hey Everyone, Been working alot. Still trying to settle into new house. Winter stinks.... Have had enough... LOL All yours Rhonda, sending it your way....wait can't jet stream doesn't go that way to...
I hope I'm not interupting..... But talking about visual disturbances, I will be driving along and when ever I come to a stop it looks like the road keeps moving.... I know I have come to a complete...
Start writing a book about your life...... Thats what I'm doing..... before i forget what my life was like... LOL... Take a computer apart and put it back together .... I do this also.... It's a good...
Last shift was an exciting one.... My partner and I were riding around. Traffic was a little congested but not bad ( it being Labor day weekend and all). We just passed this somewhat danderous...
msblessed, I have swollen glands in this same area......I was on copaxone but been on Rebif for almost 2 months now. Mine just started showing up 2 weeks ago...Mine hurt...... I have an appointment...
Hello to all, I have finally stopped moving and some what have settled into the new house. Cleaning it is a (blank). I just may have to take pictures and show you all. Got the internet back as of...
/community/emoticons/cool.gif Hello /community/emoticons/cool.gif Just wanted to let you all know I am still alive an kicking. My family and I are in the process of moving twice in one month....
Hi Gunzen, I tryed the amandatine and it gave me wicked mood swings...the switched me to provigil and it works great. I use Gabapentin AKA: neurotin, for the tinglies......But I am in a major flare...
Congrats Anita..... Being a new mom is very scary..... But it is also a very magical time. I have also heard about symptoms going on vaca..... I have been diagnosed, but don't have any real good...
Um ok....... Sunny........ How did you get your print bigger.... Finally a message I can read without a problem. BTW...Welcome to the site.. It has to be a html code or somrthing....LOL Hugs Bonnie...
Rhonda, Dear friend, I have these unusual sharp pains. I take Lyrica for it.... Not all the time. I dont mind a pain here and there couple times a day, but when it doesn't quit I take the Lyrica and...
Hello, Just adding my 2 cents worth. I suffer from severe spasticity. I'm on Baclofen and Gabapentin ( nuerotin ). The combination of both was the key for me. It did take a whiule for the groggyness...
TY all for your kind words and support. Things are getting better slowly. But I believe I'm about to throw a kink in the system. I can't do these shots anymore....... It's not just the shot, I have...
Hello to all, Well it all started on the 3rd. Terrible pains in my upper chest area. Laid around most of the day hoping it would go away. That night couldn't get comfy... Even took Vicodin without...
Rhonda, I take the injections daily. They would like to see them taken at the same time everyday, but they said a 4-5 hour window is good. I did my second one today, with a little bit of punky...
Hello Friends, Well, I did my first injection. It went well. I don't recall ever being stung, so I can't say it felt like that. It had burning, itching, and pain. This happened about 15 minutes after...
Rhonda, Thats what I needed. LOL. You made me smile and laugh. I shouldn't really have a problem. Iive learned to give shots through my training. Thanks to all of you wishing me well and good luck....
So, tomorrow is the other big day... /community/emoticons/confused.gif I go back to the MS clinic for randomization ( a computer generates a code which will be my name through-out the study, and...
hey Pete, I was offered 2 studies. One was this new pill form of drug. My thought was, i just got diagnosed ms, and have an opportunity to put a road block in the way. Why take a chance on a phase 1...
Rhonda, Hang in there girl. I'm hoping you start feeling better soon. Keeping you in my thoughts. I could always come over and give you and IV..... :) Hugs, Bonnie...
Not really sure as to how to help you, but if this is of any help at all, I have hypothyroidism, and my endo has said that is causing my lipid tests to go bonkers. Thats the only thing I can offer...
Denda, I'm not sure how it would work for a regular prescript, but I and trying a clinical trial of Copaxone. Before you can start and meds on a study or trial you need to be medically screened with...
Rhonda, Sorry to hear you are not feeling well. I hope things get better for yuou. I'd lend an ear, but do to internet restrictions, ill lend my good eye. Hugs to you. Keep us posted.. Bonnie...
Hello to all........... I am no longer in Limbo Land..... Today I got the official word I have MS. I start my trial screening on Monday. Very Bitter/Sweet news. Did know how i would react..... I...
Hello to all. Well, I went to my appt. Had the longest MRI I'v ever had. All this time and assumed it would be the same this time. But it wasn't. They found lesions. In Brain and Spine....... He is...
Uppity, Forgot about the pseudo thing. Now tht you mentioned it, I remember the ms clinic mentioning it. So basically my body is telling me my limitations and is recooping from the exhaustion I...
I need to try to explain this before all of you can understand. First of all, other than working on the ambulance as my full time job, I'm also on the volunteer fire department. Last January (2006)...
Ok, so I have an appt. @ the MS Clinic on Tues. I'm so nervous. I have a 140 minute MRI in the morning, then see the Team in the afternoon. Just to refresh memories, last time I saw the NP he said he...
Hi all, If this is the case, should I mention this to the ms clinic when I go on Tues.? Thjey already know i have a bowl movement 3 times a week, but I only urinate maybe twice a day.........
Hello, I'm not sure if this will help any of us, but saw the commercial w/ Montel and went to check it out. Here is the web adderess. https://www.pparx.org/Intro.php Have a good day Bonnie...
rhondab, Thank you for sharing. Nice work.. :) Bonnie...
Hi Auggie, I have had multiple negative/normal mri's, Positive symptoms...... Doctors couldn't go on much with that........ Then I had a spinal tap..... It showed O-Bands which is one thing they look...
Hello Again........ I'm having weird spasms in my spine. I wouldn't call them painfull, but yet they are bothersome. It sends electric vibes down my left leg. Similar to L'Hermittes. My left side of...
Update...... Went and saw the endo today in regards to my hypothyroid. He said that my thyroid is not causing my symptoms. That was the last of the possibilities that could be causing my symptoms. So...
Hello, Was wondering..... I have been sick for 2 weeks. Today its gotton worse. Weird thing is my family isn't getting it. Has anyone here been sick by yourself? Just fyi, has not been officially...
Hello, I thought I had a question, but not sure at this point, LOL. I was put on Amantadine, and was somewhat sure it was working. I recently stopped taking it cause i was a royal "you know what" and...
Welcome to the forum Gretchen. Bonnie...
Shashi, You made me cry. As I read, It was as if you lived my life not that long ago. You need to hang on. Some how you have to keep the strength and willpower to keep going. I know that it is hard...
"24" Stands for 24 hours. This is the amount of time that a new neurological symptom or increased baseline symptoms must be present consistently for it to be considered a MS exacerbation, relapse, or...
Hello, Hope this finds everyone well ( as can be expected ). I now see a Nuero that specializes in MS. Bout time. What happened is my regular Neuro sent me to this doc, cause he could do no more for...
Being peanut gallery again..... I suffer from these spasms, and was put on nitro to relive the worst episodes. It works, but on the down side, i get a migraine from the vasodialation. take care Bonnie...
So, i have been seeing my neuro every 3 months. And being a Limbo lander, and not knowing what is going on, its nice to have a neuro who belives you. So anyhow, I have been having terrible pain...
Hello, the only way I can help is to enlarge the font for every web site you go to.... In internet explorer, go up to the top were it says file, edit view, ect. Click on View ang go to text size, try...
I have been doing well the past couple of months got my feeling back in my arm and leg. Was able to go back to work for the ambulance. The baclofen im on works wonders. about 6 weeks ago, i was...
Tiphanie, No words can express my thoughts. Extreme sorrow has hit my heart, and the only thing I can say is I am sorry. I can not put myself in your shoes. Tears flow from my eyes now thinking of...
Hello to all, So, I went and saw my neuro, and took control of my life. He said that there was no other tests that could be done, and that the only conclusion he he looking at is early stages of MS....
Hello, Well, It is not a festoring infection. All those expensive tests have come back normal or negative. I did find out, that sometime in the past I have had Mono, and been exposed to some weird...
Bonnie...
Hello RUtired2, Were you able to talk? An asthma attack doesn't go away on its own. But what does go away is an Esophageal Spasm. Whitch is what I have. I would defiantly tell your doc asap. That was...