Hi Kiwi man, I haven't posted on here for a long time.....but the fact that you're a Kiwi got me motivated! I'm a Kiwi too! Not many of us on here! I'm in Taupo. In response to your question....I;m...
Hi there, I have not been on this site for a long time. A few years ago I used to visit the MS board......but now I'm just very unsure as to what's going on with me....so I'm back! Hoping for some...
Just an update......my eye pain completely went away after a couple of days....yay!!! And the nausea has also gone, I think it must have been a bug. Isn't it crazy how every little thing makes you...
Hi guys, thank you so much for the great support and advice. I am still feeling the nausea and pain today.....but not quite as bad....so fingers crossed that it's all going to go away!!! I have...
No advice sorry....but just wanted to say sorry about your progression! Good luck with your decision making. KAS...
Hi there, I've been feeling really nauseas for the past few days.......but no vomitting or other sort of tummy upset. I know that people with MS get nausea with vertigo etc.....but I haven't had any...
Hi Gretchen Take care of yourself!!! Thinking of you. KAS...
Hi D'awesome thank you so much for your reply!!! I appreciate the time you have taken! It has helped me to put my situation into perspective. You have obviously had a very long road to travel....I...
I often have the same crawly sensation on my face......learnt to ignore it....until the one day that I saw black movement out the corner of my eye.....turned out that time it ACTUALLY was a spider!!!...
Hi D'awesome, I'm pretty sure that I met you about a year ago when I used to be on here regularly????? Please excuse my slack memory. I was just reading another post about diagnosis....and see that...
Hi Kathy, I hope things go well with the eye doc, and Avonex nurse.......must be a stressful time for you. The other posts sum up pretty much all that I wanted to say! Good luck! KAS...
Good news Gretchen....thanks for that!!! They've been giving me troubles for years....so finally decided to get rid of them!!! Maybe I could swap with your compliant teeth!! LOL...
Hi there, I too have had this......not a nice feeling. Was hospitalised with it about 10+ years back....and had meds for a year or so to prevent it.....then surgery. Was related to the nerves that...
Hi all, getting three impacted wisdom teeth out next weekend with IV sedation.....does anyone know of any complications with neuro symptoms etc....or where I can look for this info????? Thanks! KAS1...
Good luck with the search.....not knowing really sucks!...
Hi Massey, Can't answer any of your questions sorry....but wanted to say that I understand what you are going through, and that I hope you get some answers soon! Waiting is awful!...
Hi Mojo....have to say that I love your advice and attitude! Kas...
Hi kkw6, I don't know any of your history (haven't been on here for a while), so I apologise if I'm completely off track!!!! When you get these finger sensations, is it in both hands???? Because my...
I'll definately have to come and chat.....I'll defend you!!!...
Hi D'awesom, nice to meet you....good luck in May!!! Gretch and Sunny, hi you two, hope you're both doing well! Been thinking of you often! I very much doubt that you are behaving!!!...
Hi Millie, when I had my first brain MRI, they actually did the top of my spine at the same time.....even though the doc called it a "Brain MRI".....Not sure if this is just standard in New...
Rhonda....so glad to hear that things are going well for you!!! I think of you often! Lynn...great here thanks, how are you getting on?...
Hi Rhonda! Pretty good here actually thanks. Still having many of the weird and wonderful neuro symptoms.....but no further test....nor any closer to a diagnosis.....pretty much just choosing to...
It's been a long time since I've posted....or even read posts.......but thought I'd come back and see how everyone's doing! Great site!...
Hi there, I definately notice that my symptoms are worse around my period! It often takes me a while to pin point the connection each month....but it seems to be a few days before, and during my...
Hi Rhinda, sorry....can't be of any help. But wanted to say that I'm thinking of ya....must be awful! Hope you find an alternative drug soon! Kas P.S. Rhinda was a typo...but thought I'd leave it...
Hi guys, I've just googled " muscle twitching multiple sclerosis" and found heaps of sites that I found interesting. The "ticking' that I get sounds really similar to what you've described. The sites...
Hi Annie, I didn't realise that you were in Australia. I'm in New Zealand....so we're practically neighbours! I think from what I've heard, that your medical system is pretty similar to ours....very...
Good luck with your appointments, I hope you find some answers soon!...
Hi guys, I've just googled " muscle twitching multiple sclerosis" and found heaps of sites that I found interesting. The "ticking' that I get sounds really similar to some of the posts here. The...
Hi Annie, not any help I don't think....but just wanted to say that I understand your frustration! I don't get the strangulation feeling, but do have the 'lump in the throat' feeling. The...
Hi Shar, not officially dx....so won't answer your poll. But will be very interested to see your results. Cheers KAS...
Hi all, thnks heaps for your replies.....nice to have people who understand the results, and what they mean. Denda: wish it was an MS specialist. We only have about 10 neuros in the country.....so...
Hi there, I'm not responding to offer any advice.....but just to say that I believe you are not being a hyperchondriac! The best thing that my neuro ever said to me was that....." even though we...
Hi there, sounds like you've been through the mill! Don't think I can offer any support.....but wont you to know that I'm another one here 'ready to ride the wave with you'! Hope things improve soon,...
Hi all, thought i'd let you know that i finally got my results today. Turns out that my right eye is fine, but there is a significant delay in the left....."suggestive of demylination". To be honest...
I agree that it's a very interesting article! I think it's pretty scary for us limbolanders though.....knowing that our prognosis is getting worse the longer that the doctors take to treat us! Thanks...
Hi Cecilia, I know exactly what you mean. I get this too....like my other symptoms it is pretty sporradic...it comes and goes for no apparent reason, and occurs in all different places on my body....
Hi Lisa, wow.....I don't believe that it's all in your head! I think that it's incredibly dismissive of the Dr to tell you it's anxiety without knowing you.......and totally inappropriate for him to...
Hi Pam, I can't remember getting it on my lip.....but I get the exact feeling that you're describing in other areas....e.g. neck, cheek, eye, thumb.....etc. Can't provide any help I'm afraid....but...
Hi zanmonkey, I have had similar issues....mainly in the shower....heat maybe???? I certainly know form what I've read that you are not at all alone! Currently grateful that it doesn't happen in the...
Hi drama, no suggestion sorry, I was just interested. I find that most of my "MS type" symptoms are quite sporadic (sp?), so was wondering. KAS...
Hi there, I don't have hearing loss as such. But I certainly have hearing issues......my volume control seems to be out of whack. I have trouble in rooms with a lot of different noises going on (like...
Hi littlechina and dRaMa, the stuff I've read is suggestive that the pill I am on, "Femodene" can show temporary worsening of symtpoms in people with existing ms...... But on the other hand, I have...
Hi all, have been researching the connection between contraceptive pills, and the worsening of ms symptoms......there seem to be some documented connections. I stopped taking the pill about six...
Hi Cocoa, so sorry that you're having to wait so long.....I know exactly how frustrating it is!!! I find it so hard when everything around us carries on like normal.....and we are left hanging! If...
Hi Denda, I have to say I agree with Gretchen! I sounded like you a couple of years ago......and resisted taking meds, but when I did it was amazing......back to my normal self again....and...
Wow, thanks for posting about this.....reading this thread makes me feel so much less alone!...
Great news!!!! Thanks Life...
Hi Angie, I understand your frustration! I genuinely hope you get some answers soon! Sorry. no advice! KAS...