My first ileus I had an ng tube and pain killers. They could find no reason. The second one I refused the tube but the did one of those xray barium enema deals. Same thing, no answers. I've had 4...
I have had 3 ileus' first one at 33 now I am 39. I absolutely refuse an ng tube. I've emptied my bowels with an entire bottle if miralax, about 20 dulcolax and 20 colace. This has been going on over...
Ok guys, help me out here. I had my PFO closed on friday. It was 1cm large and closed with a Gore-Helex. After talking about my excessive weight gain, my surgeon told me I could start RUNNING again....
Cedars-Sinai in Los Angeles is very good. They teach this procedure....
I wrote this in another thread but thought it might be helpful to you ladies. I came to find out that mine was a "good size" hole. From what I have read, out of the 20 - 25 percent of people who have...
I also have metal allergies. My surgeon said that this would not be a problem. To be honest I don't know how allergic specifically to nickel I am. I can only wear sterling silver and at least 18k...
oh, sorry. My point was that my surgeons told me that this implant is very bio-friendly. That it will take about a month for the cells to bond and skin to grow around it. It is made of gore-tex. I...
I have the Gore-Helex device for a 1cm size. Just done on friday, May 27th. Mine was done in the Los Angeles area....
After 3 1/2 years and 3 primary care docs, 4 neurologists, 1 hematologist, 2 G.I. docs, 1 rheumatologist, 2 cardiologists and 2 psychiatrists, I had my (what was discovered to be large) PFO closed on...
Yippee!! All is well. Thank you Nancy and Greenhope for your support. If you happen to be interested in details (I always am) Please read on... I was first up friday morning. surgeons came to see me...
Hi Nancy- Great news!! Scheduled for procedure on the 29th of this month. Trying to manage expectations as far as how I may or may not feel after. What is your energy level like now that you are this...
Things don't look so good right now. My current neurologist doesn't believe that I've had strokes or tia's but migraines and is telling the surgeon she advises against the procedure. Now my...
so I just got back from my appt. with the surgeon and I really like him alot. My husband came with me and we asked MANY questions. He explained that this procedure is only done on a very select and...
thank you so much for your response Nancy! The information you gave is very helpful, especially about how you were becoming more tired after each event. I need my exercise to feel better and lately...
Hey everyone, I've been surfing through and trying to find info. I'm not going to tell my whole story right now because it is LONG and complicated like most. My biggest question/concern is that I am...
Hello, not sure if this thread is still going. I was diagnosed with PFO recently after looking into every possible thing that might be causing my problems. I have lesions on my brain and also had an...
welcome mishelitsa. I hope you will hear some things here that will help....
Hi Dale, I think I get what you are trying to say - but may not be too clear, so please correct me if I'm wrong. I really hear you saying that you are welcoming discussion about how this disease (or...
I hope the brace helps you Linda. thanks for your sharing your experience with all of us, it really helps me to hear from you all....
you guys rock. I can't tell you how much I needed to read this thread tonight. I am one of those in limbo and it can be a really lonely place. Most people have no idea what I go through on a daily...
Here too. It's a big bummer - especially when you're trying to be intimate and all you can think of is "I can't feel anything?, oh wait..., uh, no. darn" I sometimes wonder what my face looks like....
What my emotional chart would read: Morning: alarm, confusion, "is this really happening again?, Do I really feel this way? an over-all "Groundhogs Day" effect. morning-noon: bumble around, get...
hugs to you too Michelle. You have been so great to me since I joined this forum a couple months back - I'm sending lots of love your way!!...
thanks anthony for keeping us informed. Things sounds very promising for you :)...
Thank you for your response. I will find out more on the 23rd when I see the neuro again. I have heard that Migraines can cause lesions, have you ever heard this? Also you mentioned Hemiplegic...
Really beautiful to see your gratitude. :smile:...
I have not been diagnosed and also experienced loss of control of my bladder in March. It was terrifying as well as the experience of total numbness during intercourse. My doctor put me on...
Thanks to everyone who responded. I really look forward to hearing from you all when I sit down at my computer. You are the only people I have found who understand and identify with with what I am...
Thanks Uppity. That is what I needed to hear - although it's been closer to a year since I started with my first MRI and EEg. I guess one year is still a relatively short time in comparison to...
thanks Sunny. I'll answer your questions. 1. Neuro doesn't know what caused the lesions - yet 2. The MRI says : at least 10 foci of T2 measuring 3-4 mm involving subcortical and periventricular white...
Hello all, I'm new to migraine forum but have been active in the MS forum for a couple of months. I am 32 and started experiencing major symptoms about two years ago. Was too busy with two little...
I apologize for sounding like a broken record. I know there are many of you reporting the same frustrations. I also know that many of you have it pretty bad - I just followed your threads ceciliasky...
thank you to all who replied. I don't know why I am anxious about contacting my doctors about it. I think I feel like they will not prescribe me anything because I don't have a diagnosis yet. That...
Does anyone have any experience with Glyco-nutrients by company's like "Mannatech" or any others. A friend just stocked me up and am wondering if anyone has any success with it....
Question for you all: I am still undergoing the diagnosis process. Actual aching pain has never been a big issue for me. It will happen for a day or two every couple of months. This week it's been...
Such a good question! I will be interested in hearing the response. I have wondered those same things in the past. I was on a medication for sleepiness for a long time and am recently off of it. I'm...
Hey Suzanne, Welcome. I have two kids, one is 3 1/2 and one is 20 mos. I have had the shocking sensations in my head and the burning on the bottoms of my feet. It's crazy dealing with this thing -...
thanks madlou. My symptoms have ranged from numbness, tingling and vertigo to loss of bladder control, total loss of feeling during intercourse and weakness in my right arm that led me to not even be...
thanks for the info. I'm not sure if I have vasculitus or not, that is what they will check for next. That's interesting about migraines. I don't have headaches or anything, but am now wondering if...
wow, your story sounds similar to mine. I'll save everyone the details - but if you want to email me feel free. I am 31, have lots (at least ten) of lesions and a "working diagnosis" of MS even...
Hello All, A few things: It's been awhile. I'm going to limit my talk about how CRAPPY I've been for the last three month and just tell you that I am feeling much better now. First: my first neuro...
I feel your pain butterfly. I am not yet diagnosed but am just coming out of a flare ("working diagnosis of MS" ) that has left me basically bed-ridden for the last three month. We had to take my son...
I really feel for you. I don't have advice - just empathy. I am not yet diagnosed and just coming out of a 3mos flare. My children are 3 1/2 and 20 mos. We had to have someone come and move in with...
hi Sherry, I don't know if this counts, but I am a recovering alcoholic. I ended up in rehab at 19 and have been sober ever since. My body could not take alcohol and I did crazy things - my problem...
Thank you so much for all of your input and support. Pertaining to my "sleep disorder" , the good news is that as long as I am taking my adderrall, I don't fall asleep at the wheel or anything like...
Hi dalilady. welcome I'm new too. I am so sorry that you are experiencing this. If I were you, I would get real proactive and go see another neuro whether they are an MS specialist or not. I am just...
Hi Denda, I am new to forums but wanted you to know that I can empathize with both your panic and impatience. Uppity is right though by saying nothing has changed now that you read it - except for...
yes, it is i.v. drugs. Sorry about the confusion with the word "shot" , I haven't known myself exactly what's what with all of this. I realize that I have had about 4 or 5 flares and the residual...
I had one done last August when my journey began. It was at a county hospital (we didn't have insurance at the time) and my experience was really crappy. Hopefully my situation was unique because I...