TY gretchen! WoW I dint realize how depressed I am! I am going through a divorce atm as well... Got a restraining order on my hubby for domestic abuse, but now that my mom is away I find I am...
I took copaxone for a year, to the day. The welts were always present and at times I worried about not having any more spots to inject. The pain was terrible everyday for 365 days that year. There...
Oh yea, I am still here and still have MS... Like a few people, in posts that I have been reading, it has been awhile since I have posted. I just dont want to think about this ugly beast that is in...
Ok Tertle- I will give u my very twisted and no PR response. HELL YEAH I DRINK!!! I drink because I am a binge drinker, MS or no MS, I will drink. Does MS effect my drunk, I dunno. Like any...
Hello Everyone- Been awhile, but I am still here and kicking! YAY... Anyways, I have taken Betaseron, Copaxone, and Rebif... All of which I have reacted to poorly... Depression and extreme fatigue...
It has been so long since I have been here and active on the forum, but I do check in time to time...un-noticed. But now I am scared, but my life is so good right now, I don't think I should be so...
Uppity- In my original post there was no mention of a doctor, I am seeking knowledge. Knowledge that is a bit over my head at this point in time, so no I can't expect any doctor to go into the detail...
I haven't read any statics recently about getting the flu then having a relapse, but from my experience there is a direct correlation... although the link I have may be a little weak lol. I RARELY...
Thank you ALL for the encouragement! I may be a nurse, and I may be able to to "know" things, but when my name is on that paper, I loose any "know" I may have and just get overwhelmed. I think this...
Thank You uppity for your response. I was on copaxone for the year between 10/06/2005 and when this MRI was taken. I don't feel that it was effective for my MS and I actually stopped taking it the...
/community/emoticons/sad.gif I have the written results to my most current MRI findings, but yet I can not translate this into English other then bad Bad BAD. I was hoping that someone here may be...
Thank you ALL for your response! It has certainly brought a smile on my face enlight of such a "complicated" thing. It's amazing to me that I am really not so alone. I am glad others can relate so I...
I have FINALLY returned to work, YAY! But find that my memory, or words, are not what they used to be... I believe I may have some sort of aphasia where I can't find the words to say what I am...
I know for a fact that I would not have a job without it. Once you have it, the ADA act is there to protect people with disabilities. FLMA is simply for your work to provide "reasonable"...
I haven't been here for almost a month or more... ={ seems like forever. I didn't want to post till I was back at work and feeling back to my "normal." Last I posted I just finished a round of IV...
The Mayo clinic I hear is good for people with MS. Univerisity of California, San Fransisco is where I go and they do a lot of research out of their MS clinic. University of California, Los Angeles...
I find that extra-strength vicodin is the best for fatigue relief for me! It puts most to sleep, but I find that it works better then provigil most days. My biggest concern about using it as a...
To be quite honest and frank, I can be a binge drinker (once every 2-6 months lasting 2-7 days), always social though. When I am on a binge it takes A LOT for me to get drunk starting from day one....
My best friend of 15 years hasn't called since I was diagnosed. In her defense though, we were down to a single phone call about every six months because I moved and she got married ect. What really...
Been a week now since the IV steroids and I am FINALLY starting to come around! Rhonda- I did call my doctor and told her everthing that was going on and she suggested a wait and see approach and...
I feel like poop. My vision is blurry. I haven't done a dookie in over 3 days. I am shaking like a leaf. I can't think straight. I can barely walk. My head hurts. AND I have a horrible bitter taste...
TY sheila- today is now day three and I feel like poop. I started feeling bad very soon after I woke up. I got a CBC about 4 days ago but haven't checkd on the results. I can't think straight. I hope...
Well, today was a good day till about now! Did a lot from a seated position, and went out with my hubby for about an hour to my bros, when we got home I was so tired, I collapsed... on the driveway,...
Okay day two on these things. Right now I am hooked up, but so far so good. IV kinda hurts today while infusing, but I suppose that is from being outside looking at the flowers for the last thirty...
The prednisone taper is not needed to be safe and effective. The doctor has no problem with this either and she didn't even recommend it this time =). As far the IV route (high dose 1gm a day) I am...
Thank You Rhonda for your support! I am starting to feel better already =) Just took 50mg of Benadryl to help with the sleep thing (Steriods can cause insomnia and this is the latest I have been up...
ok- today started out as a good day! I felt better then I have for along time... But that can be misleading when I wake up so I am going through with the the IV steroids. Home Health RN came out...
To qualify for CA state short term disability, u have to be off work for 9 days or more and they start to pay on the 9th day. If you have surgery it starts on the day you have surgery. You should...
Well saw my neuro today. She is a good neuro, i think I got lucky on many levels with her! Knowledgable and compassionate as well as understanding yet firm! Well, she said I am currently in a Relapse...
WOW that sucks that ur neuro made it seem like he didn't have the time of day for you! Sounds like you got a doc that may be burnt out! Even an HMO will pay for a second opinion... I hope ur family...
lol, I am sure ur husband will find you! Other meds used for MS fatigue is Ritalin. I use vicodin for energy too =O I have also found that provigil can be fickle as far as actually working! I take...
didn't know that aricept was for fatigue... I take it right before I go to bed lol As for memory... I think it is a very nice, very expensive sugar pill, in my opinion... I have another month left of...
Nice Rhonda- never thought to put the meds i take in the notes section... will have to do that thanks!...
They say starting treatment early is a good thing, even before a definiive dx of MS is made even. I started the day I was told I have probable MS. As of right now, yes the only medications for MS are...
Thank You Lysha! I always thought it was possible to do a search like that but never knew how, lol. The search only lets me go back to the beginning of september even if I say I want to see a longer...
lol, when I first read the name of this post, I thought it was referring to I.C.E. (In Case of Emergency) phone number that emergency personal are suppose to recognize if listed in your cell phone,...
Montel Williams has a prescription assistance program that he promotes as well. I have called them before and they were very good at directing me to who I needed to talk to specifically for a...
My thoughts are prayers are with you and your sister. Good luck on ur first injection btw. As others have said it gets easier with time and the more you do it....
CONGRATULATIONS!!! So I have to ask...Do you have a date yet? =)...
So how do I view the previous posts, past the last five??? Thank You ALL for ur support and advice! Uppity, you have helped me to identify a real bump in the road -Guilt- I didnt' realize I had it so...
Ok kinda nervous, just need a place to put this nervous energy =O. I have a Dr appt with my neuro tommarrow. She is great, love her and would recommend her. BUT being the silly RN that I am... I am a...
Uppity, I agree with what the others have said as well. Ur straightforward responses are appreciated and I DO look for ur response when I post here =O. Somethings that u have said in a...
Ok - sometimes I get it by the stupid tree ( I take drugs for that too ). My ankles and legs are soooo "tight" and painful when I stretch them. This is MS related right? I suppose switching to denial...
Ok I have been recently switched to Rebif... so recent in fact I still have the script on my coffee table... I have taken Betaseron in the past for about 6 months and the side effects were terrible...
Yes, MS lesions show up even if u r in remission from an attack. I know this from personal experience. For me, I can have one or more active lesions on MRI when I feel like I am fine. I still have...
I agree with Kim and Uppity. Before I was diagnosed with MS I was diasnosed with Plantar Facitis which is the excrutiating foot pain u describe. I bought some really nice (Z-coils) shoes that I even...
Fatigue was my first symptom to the best of my memory. Today fatigue is my primary, and most devistating symptom. Right now I am too tired to be analytical, and I have an appointment with my PCP, I...
I would like to add a little defense to nurses here since I am an RN. The woman u talked to was NOT a nurse, she is an MA with very little training. I don't know why they refer to themselves as...
Getting narried on friday!! To a man that cooks, cleans, shops, works and takes care of business!He has been around since before I was diagnosed and sat next to me when they told me the news. AND he...
YES!!! Tell ur neuro! there are BEAUTIFUL meds that can help! I currently take provigil, which really helps with the fatigue. It is costly as well =( but Montel Williams is in a commercial that talks...