thank you! hugs to you all and prayers returned to all of you. We know the power of prayer :)...
Hi! No not 95% well I am afraid. Still fighting lyme. Following the birth of the baby I became really ill and took a nose dive. My Lyme doc has been pushing for me to go on ms meds neuro is 95% sure...
Sorry been out of touch. Been fighting the good battle still fighting :) Baby is great I am still on meds and also now looking at 95%chance has kicked in MS so still working on getting myself well....
IFA is I guess the igenex Elisa. I tested positive on that test also....
ok meet with neuro thurs am he might want to put me on steroids big issue with lyme...eyesight-lyme hell boy what a predicament. Wed full body bone scan, mri spine thurs pm so maybe something will be...
Thanks Gretchen for responding. MRI last time still unchanged scattered non specific foci. Lumbar was negative IGG was top of normal. EBV reinfect and mycoplasma still a battle. Eye tests have been...
Gretchen are you out there? heeeeeellllllllllllllppppppppppp! just kidding but not really! what shold I do i second evoked potential eye thing is not till next month neuro opthamologist next month....
Hey there, Hope you are all well. Have not dropped off the face of the earth although feels as though I may have been :) Doc is 95% certain at this point I have ms. This is going on and on and in the...
can you take it with antibiotics?...
Virginia Beach VA :)...
Hi there, check your mycoplasma levels if your dr is opme to do so. My issue with mycoplasma started with this strange pain in my back in the rib area and is under control when the myco is ......
I had the same issue and was unsure what to do. I just decided to half the inital dose of 100 mg to 50 at night and then worked my way up taking the 100 after a few days when my hubby was home. Now I...
http://members.aol.com/rgm1/private/nicolson.htm http://www.immuno-sci-lab.com/microbiology_pamphlet1199.html http://www.consumerhealth.org/articles/display.cfm?ID=20000830164126 the last one is...
Did anyone find they had a vitamin C defficiency? I eat well and still when I am ill my vitamin C drops to nothing.......
There is always hope :) This has been a nightmare for me for years and it is getting soooooo old. At the very least when dr's are allowed to practice without the fear of persecution until guidelines...
Hey Rhonda! Hope you are well. I am still on the MS limbo train trying hard to stay positive :) Am happy to report the Lyrica and clonopin is helping but I took it upon myself to half the dose and...
Hi! Am happy to report I feel the lyrica is helpful. I just hung in there through the rough time and halved the dose the Dr told me and only took it at night. I feel as though the pain is easing to...
Hey guys, Just wanted to share this with you. Huge for the lyme community and I am excited as I think that DRs will eventually have to take a long hard educated look at all conditions. I know that...
http://www.c-spanarchives.org/library/index.php?main_page=product_video_info&products_id=281419-1&showVid=true&clipStart=12150.52&clipStop=13454.41 This is so awesome i am thrilled...
Hi Marlee, I had the testing done through my doctor. Labcorp does some testing some....another was located during a spinal tap and there are others to test for also but my doc is an intern and really...
Thank you Cindy :) You know I have found that it really does help the pain to some extent. It does increase he fatigue a little but I am hoping that will pass. I am going to be brave and up it today...
you guys are AWESOME thank you so much for all the info. Yes the mycoplasma issue is huge. Truly I feel it is the root cause for fibro maybe the trigger. It is well documented that even after beating...
LOL I was thinking the same thing :) I told my hubby just incase I become non responsive pls call :)...
I just wanted to thank you for some kind words you offered. I am a member of the healingwell board on lyme/ms but came asking questions regarding my fathers health. He was an alcoholic and lived in...
oh good gosh why did he say you had that response? what do you take for pain now?...
Thank you :) I am always dizzy so the lyrica just takes me to a whole new level. Thanks for the response. I have been so terribly unwell and the baby is crawling and teething and I feel like I am...
Hi guys, New to your board not although not to healingwell /community/emoticons/wink.gif Hope you can help me with some info on lyrica.... I copied my info from the ms board and am still waiting for...
helooooooo? anyone out there? lol sorry chaps wanted to bump this and maybe make it shorter so there is not so much to read... anyone taking lyrica for pain? did you get dizziness and did it go away...
I understand how you feel. I really do. You are right sometimes you just have to let go and rely on a higher power. Hugs, Carolyn...
Hi guys, Still in the ms limbo. My neurologist prescribed me Lyrica and Clonopin for now for the pain and muscle spasms....Lyrica kicked my butt even with 3 provigil a day I cannot function at 50mg!...
The tremors are really bothersome. I know during my posts I mention them a lot as they are just intolerable! Pain can be dealt with and I have experienced much you have mentioned king1234 Nothing has...
Good luck with the testing! I hope that you are able to receive a quick diagnosis. If they are also testing for lyme check out the lyme forum also and they will give you a list of reputable labs to...
Thank you so much Ducky :) feeling like I am hanging in there! Not sure how long I had lyme but do know it took 13 drs before I got a diagnosis! I took plaquenil for only a short time few weeks and...
Hi guys, Trying to keep this short as I can...I have lyme and am now being tested for ms. I just had a recent mri of the spine and had one couple of years ago all clear. Now I have dessication of...
Neat!!! R us suffering from all the smoke? gosh it has been awful here! who is your neuo? Mine is in Chesapeake Dr. Goldberg... How are you doing? R u doing ok on the meds?...
Hi there, Not sure about the low saturated fat diet but at the very least you will be nice and healthy and a lean mean fighting machine :) Don't feel that going to the doc about the panic attacks is...
Domanique. I have arm weakness and tremors. I think that everyones explanation or interpretation of what they experience might be different. Insomnia.....hmm yup! right now it is 2:44am! I usually do...
Hi Grasshopper, I am so sorry you are having such a hard time. It is not easy to get a diagnosis sometimes. It took a lot of dr's and at least 7 months before I got diagnosed with lyme disease. I am...
Thank you so much guys. Gretchen you saved me! it clearly stated the bloodwork and puncture have to be done same day and the central scheduling were trying to send me to do it on a different day!...
Domanique, How are you feeling? what is your next step? sometimes helps to talk it all through. Also, sometimes, it is a good idea to start all over again. Leave all your other medical records behind...
Hey guys been researching a little and have a few questions..... 1.I am understanding that the spinal tap will only show the ms bands if there has recently been a flare up am I correct? I am still...
Thank you. I will:) wondering if all the years on antibiotics might have taken their toll or if it is something else.... really really am over going to docs but will ask the nruro next time :)...
Hey guys, Does anyone get strange tummy spasms? The pain is almost in the center of the tummy...I also get pains in the back area by the ribs but not on the ribs. This is not the first time I have...
Hi Domanique, I know it is so tough. I had unexplained symptoms for a long time. I did not have any evidence on the brain back then. Why I have them now I do not know. Look around for answers. I know...
I am so sorry. That is so hard for you both. I am going to keep you in my prayers :) going to bed too .......
Wow lots going on with you.... I hope you have a fun time in cape cod always wanted to visit there. CT hot area for ticks be careful when you hike :) I am sorry dd is having to go to Boston for eye...
Hi DiLane! It is very frustrating I can relate. I think a second opinion and even a third is sometimes necessary if you are not happy with the diagnosis. You might want to add a neurologist or ms...
I am glad you liked the neurologist:) Makes a huge difference. I wish I could go out and hike. where do you live? I like to walk out in the countryside and enjoy the nature. How are your family...
Hey there, Lumbar puncture is set for 25th at 9.00am and my MRI for the rest of the spine is Wed next week. Guess I will get my blood drawn then. Not sure which is the worse of two evils :( Either...
Hey rhonda, My whole body feels as though it is uneasy. It is hard to explain it is an inner movement feeling that is kind of like a hit and miss electrical feeling almost every part of the body has...