the elisa is useless-- and you can ask for a western blot-- i paid for the igenex test myself 190-- insurance doesn't cover it-- they don't even take insurance but it came back with very significant...
have you had to take any antibiotics for anything latley? where were you tested for lyme?...
i use probiotics when i have to take antibiotics and they definitly help-- it is just a supplement-- they help to replace the good bacteria in your stomach which can be killed off when taking...
well the all neuros have now said no way to interferons-- and yes i am going to see a llmd-- want to cover all bases thank you for you opinion and support...
thanks for your imput-- i don't have to go on interferons-- which is a choice-- the 30% efficecy rate isn't worth the side effects and stuff but i know now that there is other choices-- and i know i...
nerve pain really isn't any fun at all-- i sure know that-- mine had subsided on it's own for a bit then when it comes back for a couple days it feels worse cuase i had gotten relief-- but my...
hello all-- well i finally got results from all the lyme testing and b12 and thyroid-- although most everything was normal and the lyme was negative overall i did have some positive bands associated...
i wish i could say i have but i had tons of post site injection reactions and was never told to do that because my body was actually fighting the copaone i was taken off it-- but i did have to either...
thanks i will take your advise into serious account and talk openly to my doctors about what i am looking of rand what they think of each move and accept if they do not want to treat me-- i have to...
has anyone told a doctor no to certain ms meds too afraid of the side effects??...
oh silly me the thread kimber was talking about was when i was inquiring about tysabri-- there is some great info and links there also some on ldn--...
have you asked about ldn?...
kimc-- how is the ldn for you-- would you way it helps? lynn-- thanks you for your input on rebif-- i will take it all into consideration...
thanks kimc for the info-- i am in the works on it and are grateful for you suggestions...
sorry to offend-- i am just frustrated-- yes i consider ldn the best alternative-- it is fda approved just not at that dose or whatever and i may not be allowed to do interferons and the copaxone is...
wow-- you sounded just like the copaxone nurse-- it sounds exactly the same-- auto inject right?? anyway you did help me to realize that i am gonna just say no-- i do not want to go through this...
i am glad it did good for you-- how were the shots-- the copaxone shots have given me tissue damage everywhere and were super painful and swollen and stuff-- i am not up for that again either...
in case i have to try interferons since i reacted badly to copaxone and don't know if i can find someone to prescribe the alternatives-- has anyone tried the interferons -- which was easiest--...
barb-- the frist time i was on it was for about 3 months but i had a post site injection reaction that was serious enought ot send me to the emergency room needing oxygen-- but the second time i was...
well sadly my neuro looked at me like i was a total crazy person when i asked about ldn and antibiotics and stuff-- i really am interested in ldn but need a nuero to prescribe adn a pharacy to do...
oh madlou you are my new bestfriend -- we are so on the same page i am looking into ldn mostly-- but i would have to find a new doc who will do it-- let's talk more-- copaxone was so tough on me--...
i knew i would hear from you first madlou-- yeah i did copaxone already adn have tissue damage from it and lots of yuck side effects from that -- i too am very medication senstivie so i will just...
please can anyone give me experiences on rebif-- how is the shot -- side effects etc...
i was confused and now i understand-- sorry you both have to suffer from ailments -- he is going to the doc on wednesday...
kimber--- ok my mind doesn't process like ti used to -- do you mean taht you adn your husband ahve ms??...
thanks for the input-- we will look up the poison thing-- also he's had fatigue and chronic heartburn chest pain stuff in the past that was chalked up to stress by a doctor-- just wondering what is...
has anyone ever experienced a spouse with sympathy symptoms?? my hubby has some things going on he is concerned about and i am too-- tingly painful fingertips and feet-- weakness leg drop-- bladder...
i can't say -- truthfully i feel better around my time of the month -- i don't know though it is different for everyone-- i mean i have all the usual "girl" pain and cramps maybe it just takes my...
yes and yes--- tons of mri's -- with lots of lesions but small ones-- but apparently you can have all these things present with lyme- and like i said he explained to me that there is no real test...
thank you madlou i will check that out-- i am running low on options and wan to research as much as possible-...
wow-- sorry about the 800 typos in my last post-- tough day at the office so far-- we are very busy and my hands are only so-so-- i am just trying to get info on as many ms treatments as i can --...
ah that is what i meant too is antivirals-- i have seen studies on both-- i would love info does your frined have ms?? my great uncle is 95... he is still walking on his won too-- i don't know if he...
i was wondering if anyone has tried treating ms with broad specturm antibiotic treaments or with B12 shots-- my great uncle has had ms since he was 30 (the age of my diagnosis now) and he has only...
thank you i am hoping to hear from him-- i know no promises-- but again thank you...
i meant treating the ms with antibiotics--- thank syou for answering-- so he has had good results with that -- i would like to hear from him--...
Thank you Rhonda -- the puppy party was a blast-- i wish i took video to post of the crazy pouches running around while we were toasting up some smores and camper pies-- great fun-- luna is more...
gretchen-- i just gave luna a big smooch for you--we are having a puppy party for my husband b-day tonight--how fun-- 2 boston terriers, one bulldog retiever mix adn luna-- and thank you for your...
Well my lumbar puncture showed the "stuff" for ms but my blood and spinal fluid were negative for lyme-- he wants to redraw for lyme and send the sample to cali still because he didi the dna test one...
what is sativex??...
ohhhh my neuro's secretary cindy called me just now and that my lyme test came back negative-- it was not the elisa or the western blot it was a dna test called pc something or another-- we are still...
i was on copaxone but was taken off but i have heard that if you can inject it manually it is easier on you-- also i found that if i avoided the sun they didn't get as itchy--...
well as many may have read i am back on the "hey do we have the right diagnosis" train again i am at work and i feel like i have carpo tunnel but i will carry on--to make matters worse my bro who is...
yuris-- thanks for your input-- my doc said if those tests come back negative we are reding them at the lab in cali and he wants me to see a specialist maybe-- i am just hoping they can get it...
I have lots of pain-- i was too scared to try neurtin but i noticed that my klonopin (prescribeed initially for anxiety) eases it up -- my thoughts are with you too-- pain is so tough to deal with--...
i was tested on tues for lyme-- i had a spinal tap, and blood drawn for elisa test and i think the western blot-- my doc said if those come back negative he is not ruling it out yest though-- i don't...
didn't know about hormonal stuff-- so that is a new one-- right away the heart doctor, my pcp and the neuro requested tests for lyme so i had a couple of those but then my nuero mention als and lupus...
forgot to mention this weird one-- i have been dropping wiehg teven if i eat like a total pig-- i was 110 slowly it was dropping but then it floored down to 92 pounds with all my clothes on...
yes they are very strange symptoms my skin is soooo sensitive -- i get rashes really easy--- the heart trouble is not that serious thank goodness but it is new and the cardio asked if i had been...
ok i was wondering if anyone with ms has hair falling out and traveling pain that feels like arthritis and it is in the bones? they think my ms diagnosis may be incorrect and are testing me for other...
Thank you for getting back to me everyone-- i actually had it done yesterday-- he said he was gonna numb it and when i thought he had the numbing needle in it hurt like crazy and i jumped 10 feet...