I had really bad ulcerative colitis in my 20's. My colon was removed and I have an ileostomy. That cured the UC. I was diagnosed with MS tenatively in my 30's and diffinitively in my 40's. I have...
Hi Amey, I am confused as to why you had such radical surgery just because your bowel was lazy. I'm also confused as to exactly what surgery you had done. If you had a total colectomy that must mean...
Rhonda-, I tried Neurontin and Lyrica with no relief. I am currently on Klonopin at bedtime, Tegretol and Zanaflex twice a day, but there are some evenings that I just want to cry the burning,...
Has anyone tried Sativex? I know it's not available in the US, but I read that the FDA may start trials on it. I've always been skeptical of the benefits of marijuana, but I've been unable to find...
Thanks Shellypoo, I did look at that we site and others, and they all say that Interstim is not indicated for MS. So I guess the FDA hasn't approved it for MS? That can become an insurance problem...
Tell me about Interstim. I can't tolerate a lot of meds because of retention problems and Interstim sounds like something I would be interseted in....
I do have MS and one of my symptoms is a neurogenic bladder. I have to self-cath myself at least once a night, sometimes twice a night. I too have an overwhelming urge to pee and then can't go at...
Hi Marie Claire, I have posted on several different sites about the same issue. I have MS and had ulerative colitis 30+ years ago. It was fulminating UC and ended up with total coloectomy and have...
I developed fulmanating ulcerative colitis 35 years ago and had a total colectomy and and ileostomy. 20 years ago I started showing signs of multiple sclerosis and was diagnosed with it in '98. Now I...
I had an Ilesostomy 35 years ago (whew!) and love the ocean. No special problems except that if I'm doing body surfing and messing around in waves alot I frequently check to make sure everything's...
I started out on Avonex and after 8 months of feeling icky and getting worse I started Copaxone. No side effects but I wasn't seeing any improvement in MS symptoms. Then I had three Novantrone...