Wow I had know idea what was involved with pumps. I'm so glad you feel so well with it too. I'm not sure if he was serious or not. I have spasicity but I'm on a low dose of bac. And asked to increase...
Mine got so bad after I had my son two months ago they wanted to do chemo then go back to tysabri next week is 2Nd infusion since I delivered on June second. I had lossed vision in My left eye, had...
My dogs? No my docs is what I ment to say. ITouch it's great but picks words sometimes to make me look silly :-)...
Oh ok just saw it listed. well I would go to a PT they would be able to tell you I wouldn't suggest anything I don't want to mess you up. My dogs suggested a pump for me. Do you adminester drug...
I am on Tysabri for my second year whereas before I was relapsed for years with really bad MRIs and sound very similar to you. My doctors put it to me this way... take your chance or you will be in a...
I'm on RX Baclofen which only works if you work with it. Yoga or stretching is recommended while you are on this, it does not treat it helps YOU treat....
Was on Provigule 400mg per day but recently my insurance Co. Does not cover this drug for MS dx I have two young children (3yrs and my second child is 2 months) need to function, what are you on or...
Yes i have had "run-ins" with walls, people, get out of bed and falling to the flour like gravity had shifted. i was/Im a "righty" haha that's funny however, it was because i had started Neurontin...
Katie, Sorry about the needles but as others have said, they are working on a better way of giving meds. orally. Some needles are better than others. Once you know what you are going to be on come...
Interesting, Sweetly, I never thought of that. I'm not sure if I've heard a description or not. I can never get a "good" breath or , like i said, i catch myself not breathing at all. I am in a 8 year...
Katie, I know it is a difficult time for you. But stay positive. My dx of MS came from a dx of ON. If its MS you life will still go on. There are answers and i'm happy to hear that you are ready to...
WOW you have two jobs???? Ya, Provigil will change your world. I can't really take naps. I have a 2 yr old. So when he naps i study, because I'm back into school or i do house work. If i do...
So when I'm relaxing i find that I'm not breathing. I actually catch myself not breathing! LIke I'm holding my breath or taking a series of very shallow breaths. Then when i do breath i feel like...
Provigil is my life source i take 400 mg a day. Without it I am a slug. I take one in the morning and one before the "BeWitching Hours" start. (perfect expression, loved it) It works for me perfect....
I got terrible headaches. I am on Imitrex (as needed) and Neurontin for pain (2 daily) and i was just put on an antidepressant (1 at night) that also works for MS for pain. Even though i hate the...
GretHerb- great new about the Tysabri OK. its so nice to not have to think about injections on a daily basis. I was relapsed for 2 yrs and finally they put me on tysabri if i didn't they said within...
Oddly enough my initial dx was ON and i was (last night and right now experiencing weird eye stuff. like they aren't tracking right. my poor husband is worried and scared i try to reasure him but...
I also should have told you that I'm on Neurontin. It calms down the nerves that mismaps sensation etc. Its an neuro-inhibitor Do you think that could be the cause?...
This morning I was walking and it was like walking in a fun house that had "tilted" floors. My knees don't buckle but I slam into walls on my left side. I have never experienced this before. It...
I am sorry that you have to go through this will so many unanswered questions. It can be scary we all know that and understand. My symptoms that lead me to see a doc. was Optic Neuritis (ON) They did...
I am so happy for you. It also great to know that I'm not the only one on the Tysabri train. For two years I was relapsed, started Tysabri and the MRI after 3 months showed no activity! Get prepared...
Barb, You very welcome. I had a hard time finding people who were on Ty. and found it frustrating so I wanted to help out without sending you to 100 different links that are outdated info or just BS...
Great Question. I honestly from my personal experience would not tell them. Its not any of their business if you are working well and performing your job duties. I tried to be open about it with my...
Yes, I have read posts of others asking about Tysabri recently. I didn't want to post until I had seen results of using Tysabri myself and well, like you had said good timing!!! I think its a lot...
I have never looked into events at my chapter, maybe I should. Good idea. I live in Cleveland Ya, we beat you guys, but it was a great game. I went to the Browns game and they won too! So good...
I am currently on Tysabri and from reading other posts I feel that Tysabri is not accurately reresented. I have been on Tysabri for 4 months. Prior to, I had been relapsed for two years with a slow...
Dear Mystery Reader, I am currently on Tysabri and that decision was made based upon my two years of relentless positive MRI scans. The last scan, prior to Tysabri, was horrible nothing was working,...
wow your HR department sounds a lot like the crappy employer, they aren't MDs they have no idea of what you are capable of! When I was diagnosed they did everything in their power, some not so legal...
OK here are my 2 cents I had horrible migraines and I was on meds. sometimes they worked other times they didn't, I was on copaxone at the time. Had MRI and I light up like a Christmas tree. half of...
So nice to hear a sense of humor on the board, very refreshing. While I don't see how your prior hobbies gave you MS. However if you have ever covered you hand with Elmer's Glue, that is a different...
I feel your pain, NO PUN intended. I have constant stiffness after I sit or no movement for a while. LIke when i get up in the morning Nexium is a great drug, there is a generic for it that works the...
Hello, I just started Tysabri as well. (1 infusion) Here is the thread that Zoe was talking about. http://www.healingwell.com/community/default.aspx?f=32&p=2&m=851695 Let me know how it goes, doesn't...
I believe this may be rigidity. Do they hurt when you move them or just resting? What do you take and does it help...
Welcome, Ahhh yes, sleepless in _ _ _ _ _ _ I take a Benadryl Trust me it Works every time. Over the counter. A little less of a sedative than Rx Don't try to stay up. This is a time where you need...
This is very ironic. I was thinking the same thing this afternoon. Mine was stress fractures in my spine....
Kimber, thank you for forwarding that thread of questions and answers. It was great. Sooo many links. I can't look at them all today is there a way to save this some how?...
First of all I appolizes if this do not make sense as my cognitive function have been geatly affected. Can't follow recipes stuff like that whcih makes me feel very unconfident etc. Anyway just saw...
Thanks everyone. I too thought that it was too early to go off the Copaxone, initially she said that I would try it for 6 months and then wants to pull it now that I have had two relapses. I am due...
Interferons like Avvonex had long lasting side effects and depression. It was awful that I could not function for days, not to mention the needle size is too long for any part of my body. So I think...
Sounds like you need 400 a day. Mine wears out too. Try taking 200 in the AM and then a half of one in the PM. The pm one should not be taken after 3:00pm. Just kind of see what you need. I sleep...
I have ON that was the lead in to my Dx of MS. It is irritating and yes it does fluctuates with being tired and/or overheated. Summer is the roughest on ON. I dress my son a little warmer so I can...
Well after taking Copaxone for four months and having 2 relapses since I started taking it. my Doc. is throwing in the towel on this one as well. Avvonex did not work either. She has suggested that I...
hairball I was on avvonex for a while as well. Quit because the "Flu like "side effects that was suppose to last 24 hours lasted way way too long, like 4 days or longer. Anyway. I was considering the...
Littlechina, My injection date twin.(Feb 1st) I'm sorry to hear of your stress. I hope that everything works out to the best. Keep me informed....
Good to know that I'm not doing something different to have this happen. I am having the same issue as well. I don't like to feel as though I'm shorting myself any meds. I want every drop and that is...
Cece, I would not be able to function without it. Its really very helpful. I take 400mg daily. 200mg in the AM and 200mg around 3:00 pm. I really like it. I was nervous about taking it at first but...
I've had this happen a lot. It feels like my eyes are rolling around in my head or someone unscrewed my head from my shoulders. It's worse when you try to turn your head to look at something? It a...
My husband and I, along with friends and family are biking the MS150 Pedal to the Point. My team and I are guest bar tending. I've had MS for nearly 2 years now but my Mom has had it for awhile 31...
Interesting. I only get a cold once a year. Never the flu of anything else. I didn't know that it was so wide spread. It is a theory and just very interesting. Well hey, we got something going our...
Hey LittleChina, I get lumps on my belly. The nurse told me as well that I need to go deeper to a 5. She said the fattier the tissue the deeper you need to go. You need to be patient while trying the...