Has anyone ever been to University of PA Medical Center for the treatment of TN. I live in the New Orleans area where there are two internationally known medical centers, Ochsner & Tulane U. I have...
I'm not a guy, so I can't offer any advice on your medical situation. What I can assure you is that you are in the right place for information and support! I know many of these guys personally,...
I appreciate your words of encouragement. May your kindness be rewarded with relief from pain....
In addition to my PCP, I've been to dentists, dental specialists, an oral surgeon, 3 neurologists, a therapist and a psychiatrist. No one has been able to help me. Oxtellar, gabapentin, Lyrica, etc....
Nikki, remember, you and/or your insurance company are paying for that visit. It's natural (I think) to feel rushed because neurologists tend to have a lot of patients. But stand your ground and...
Nikki, have you tried contacting the MS Society in your state? They may be able to provide you with information relative to other options for your meds. I'm very new to the MS community, so I am...
Nikki, I am off Copaxone and I'm not familiar with tsabari, so I can't help you. I'm really sorry. I wish you the best. You are smart to get a second opinion. Gretchen1, you will be happy to hear...
My biggest complaint is headache. i can't say there is any time of the day when my head doesn't hurt. I still have the mouth/face pain that started over 4 years ago. (I originally thought that was...
Thanks, G. I will look into Ocrevus and speak to my new neuro about it and any other options I might have. Have you ever received Ivig infusions? Just curious. I don't know anyone who has. My present...
Thanks so much, Gretchen. I had my doubts about taking Copaxone from the beginning because I know it's for RRMS, which is not what I have, according to this neuro. I went with it because I was so...
I was diagnosed with PPMS in October, 2016. Per neuro's orders, I did manual injections of Copaxone 40mg 3x per week for the months of November & December. I had no instructions except the package...
Thanks, Gretchen. That helps to clarify the various causes of lesions as well as the role of the MRI in diagnosis. Appreciate it!...
Gretchen, you mention lesions in your signature. My neuro has showed me on the MRI lesions and areas of white matter in the pons. I don't have a clue what this means other than a diagnosis of MS. I...
Thanks, Gretchen. Appreciate your feedback. Have a good weekend! Sue...
Does anyone know of any literature which may address the possible connection between MS in relation to Epstein Barr Virus, CFS, Fibromyalgia, Major Depressive Disorder, and/or other mystery...
Hi, All! Well, after clearing many hurdles and making tons of arrangements to get our ducks in a row, Steve & I are FINALLY committed to attending the gathering in Rochester!!! At the end of next...
Tony, that is marvelous news! So happy for you - it couldn't have happened to a nicer guy. Thanks for all of your research, support, and doggedness when it comes to PC and the folks it impacts. Keep...
I saw a neurologist last Monday. He took an extensive history and seemed to agree that what I have might actually be TN (atypical). My husband & I have done much research and basically found this...
Sonny, so happy for you. Steve & I will toast your great report. ;)...
Many thanks, EleanorRigby. I have my first appointment with a neuro on Mon am. Last night the pain was so bad I was sobbing, praying the rosary, took extra xanax and was doing anything else I could...
Thanks rockyd and basimelhashy. Any info about meds and specifically TN in general will be so helpful when I visit the neuro next month and how to explain to my family & friends when I am...
Thank all of you for your feedback. Your advice, support and prayers have helped already in a BIG way. The neurontin seems to be working more and more each day. I am very careful eating (not chewing...
I have this condition and wanted to know if anyone else who does might share their experience (triggers, MV surgery, meds, treatment, etc). Also I am bipolar major depressive. Trying to find ways to...
Fabulous news, Todd! Keep on keepin' on, brother!...
Sonny, all of that is great news. So happy for you and Sherry....
It was a spectacular event and a raging success! Many, many thanks to M/M Worriedguy and all of the folks who worked so hard to make it so. Even though I was a bit under the weather and had to miss...
I have been on Pristiq 100mg and Lamictal (400mg) daily for about 5 years for major depression & bi-polar depression. My problem is that I seem to always have 2 thoughts running in my brain at 1...
Todd & Mrs WW, most excellent news!...
Welcome, Hector. You will find wonderfully supportive folks on this forum. Wishing you relief from your coughing and rapid healing from your surgery....
Sonny, Steve & I are SO excited to know we will be at another GFMPH gathering soon! Sue From 142: Just to tie up the spring event and move to Rochester, Please use this thread for the September 2014...
Aaaaah - that was NOT the emoticon I selected! I AM really happy for you both. I'm staying away from that $(&^*&(*) smiley face sh*t! Damn computer....
Great news, Jim & Marie!...
Wessy, I feel for you. When my husband was diagnosed in Aug 2011, I was totally stressed out from being in a job I had hated for 6 years (stayed for the health insurance - a good thing I did) AND my...
Thank you, thank you, nvrthesame98 and Chotti. I SO appreciate your input. I will do my homework and report results to this site. You guys are great. Again, thanks and my best positive thoughts and...
...but I am about to lose my mind. On Christmas morning, 2012, I awoke with pain in my lower tooth (bi-cuspid?) which already had a crown on it. I grind my teeth at night and, according to my...
Sonny, NolaVette & I send our most positive thoughts and prayers to you and Sherry. She is as fantastic a lady as you are a marvelous man. Please hold tight to your positive attitude and, when that...
Most EXCELLENT news! So happy for you both....
Rock on, Jazzman!...
Great news, Todd! I'm new to HW but my Steve has been on for quite some time. Your blog is extraordinary. NolaVette & I aren't going on the cruise but will have dinner with the GFMPH group the...
NolaVette & I are finally home from our whirlwind trip to the Northeast! This was my first GFMPH gathering (Steve's third). I was overwhelmed by everyone's generosity and camaraderie. I feel a...