HELLO! This last year has been a whirlwind. I was first diagnosed with Lyme Disease in May and then a Chriari Malformation in November. I had brain surgery to repair the malformation in December and...
Same Dr. F in raliegh and chapel hill. i emailed yall....
Infectious disease decided it is the Lyme that are causing the lesions. i have a plethora of symptoms, it just drives me crazy. Numbness, dizziness, my legs and arms are week, major cognitive issues,...
Traveler...SORRY!!!! I totally forgot (can i blame it on the lyme brain?) :) you guys are the best, Lyme Warriors!...
I am currently being treated by Dr. F in Raliegh. I will email you the info!...
Thank you very much for your kind words....
I am 30. This all started around 4 years ago. My Lyme doctor is treating me for babesia, lyme, mycoplasma and c. pnuemonaie right now. I feel like everything is going wrong. my last MRI was likely...
I used to be on this MS forum and then after getting diagnosed with Lyme, stopped really thinking my symptoms were MS. My neurologist isnt convinced yet. i have a follow up to discuss these results...
any help would be appreciated. My neuro wanted to check for other diseases, like MS, and ordered an MRI and lumbar puncture. here are my MRI results: "1. Scattered tiny foci of signal abnormality in...
Immunofixation Result, Serum An apparent polyclonal gammopathy: IgM. Kappa and lambda typing appear increased. Any clue what this means?? Had a lumbar puncture and blood drawn last week. MRIs...
so hard to say. i looked up pulsatile tinnitus and the underlying causes seem pretty serious...its all a little intimidating. i have MRIs and a lumbar puncture next week, if it doesnt stop I will...
Does anyone hear an extremely loud "heartbeat" in their ear? its getting worse and more constant. it started within the last month and sounds like I am listening to my own heart through a...
OMG. OMG. i had a guy feeling it was NOT right. My doctor wrote my script wrong, it was supposed to be 2 100MG 2x per day!! she had me taking 8 per day which was why i would outrageously ill. LESSON...
i tried taking just the doxy and puked 2 times :( wouldnt stay down. i did eat also, but didnt make a difference....
starting a new round of meds to treat mycoplasma, Lyme and c pneumonaie. starting babesia tx in 6 to 8 weeks. doxy 100 mg, 4 tablets 2x per day (800 mg day) metronidazole 500 mg, twice a day 2x per...
what are these ones: Chlamydia Pneumoniae, Mycoplasma pneumonia i hadnt heard of these before. Thank you Girlie! you are always so helpful! I start my PICC next week....
my appointment isnt until monday, but i feel like an anxiety ridden mess right now. any help would be wonderful understandng my results. i know that i have lyme already, but my LLMD just ran a ton of...
how do you take it? i have the activated charcoal powder that i use when i brush my teeth to make them whiter. is there a capsul form? or can i injest the powder somehow? would be great if it helped...
TSH is .869 uIU/mL with standard range of .450-4.500 uIU/mL (i dont know what any of this means, but it is within range....
Thyroid levels are exactly where they should be. Not that at this time....
Ok, i will try anything. I did hair, skin and nails, but it was too much on my stomach with everything else i take. Would make me throw up! YUCK. I have barontella, babesia, lyme and possibly...
I emailed you the name of my Raliegh LLMD....
My hair is so dry and broken and keeps getting shorter and shorter and shorter from breakage. Its so thin, i just have a little bun. My hair has always been a huge part of my image. That sounds...
My hair is so brittle, damaged and thin. I treat it constantly with conditioners and masks, take vitamins and still cant get it healthy and thick again. I am on Doxy and about to start IV meds, I am...
Summer16 Look at https://new.cannasense.com/ref/2926/ this is where i order everything, including MM and its shipped to my house in NC. Crazy. Do some research, but the cooking products are great....
I have used MM for years, but the CBD oil conectrate thats 200 MG has helped with my vertigo and nausea over the last few months. They both make a difference with the pain. Also, its important to get...
I havent seen many posts on this, but just replied to one which sparked me to post on it in case it will help you. I live in NC and order Medical MJ and CBD oil from California. Personally, it helps...
My LLMD told me today that she supports the use of CBD and MM. I live in NC and order both mm and cbd oil online from Cali. I had to use teledoc and get a MM card. It comes legally to my house, even...
First LLMD appointment went great. She has Lyme and was so understanding. She upped my doxy and we are starting IV antibiotics. Positive Lyme, plus she believes these coinfections so far:...
do you think thats really a thing?? Bc it makes ABSOLUTE SENSE. i used to be so fun and outgoing and always up for a good time, adventurous, outgoing...now im 100% the dead opposite. im home and in...
Thank you all. I am so emotional lately about this all and i dont even know why. i feel like my mental state is deteriorating so fast. for four years i fought for a diagnosis, but never thought it...
it is JF in Durham, NC. i have called the office a few times, but man they are so hard to get ahold of. she is a true LLMD and she also has lyme herself. i have heard pretty good things, but then...
I have my initial 2 hour LLMD appointment Friday. Present: IGG 66, IGG 41, IGM 41, IGM 23, Lyme IGM interp Positive Lyme ab quant = .84 Lyme ab quant igg <91 according to my PCP and Rheum, my results...
Hey Bleepitybleep- There is an LLMD in Durham who i am seeing july 21. her name is J. F. and came highly recommended from a family friend who is also a physician. Dr F also has Lyme Disease and is...
ohhhh. that makes sense now :)...
I want to add a pic of my test results to get some advice from y'all....but cannot for the life of me figure out how to add one! can someone explain? i would really like to get advice before I drop...
Thank you. That is SO helpful! i keep "planning on detoxing", but wasnt sure where to start. i am going to order a dry brush now and get started on everything. You are all the best! Thank you!!...
Getting lost has happened to me a few times also. Forgot how to get to work and then how to get to my kids daycare. Plus, i have lived in my house for 3 months and occassionally still need to use...
Good luck! It will all get better, keep your head up! I am new to Lyme also, but lean on these forums for help and guidance. I certainly do :)...
HI TRAVELER!! :) I see my LLMD for the first time on July 21. My PCP has been zero help, as I know a lot of us deal with difficult doctors. :( I am not detoxing...not even sure how to appropriately...
I feel like crap this week and last week, worse than my normal crap feeling. I forgot the day of my husbands birthday...even after THREE reminders. i thought it was today (monday)..but it was of...
If i even have 2 beers, my arms will be numb the next day, horrible feeling of my insides just feeling terrible, weakness in my legs, complete brain fog, balance issues and just that yucky yucky hang...
Thank you. I agree, its a case of lack of knowledge. How dangerous is that though? Man, the frustration i feel is beyond measure. im thankful that i am going through this and not one of my children...
Jinna- good points. Not really planning on suing, more facetiously wishing I could. Being from Europe, what do you think of CBD oil or cannabis to treat lyme?...
Thank you all so much. I seriously can't tell you enough, I'm so thankful I found you!!...
I will. I just don't get it....
Wow. I had no clue we were up against anything, but I'm quickly realizing the opposite. Scary!...
I am downloading it now. It's all so corrupt. How bizarre. Thank you for your responses. I wish I could sue them, this is so wrong to do to people....
I just want to swear. I'm so freaking irritated....
I have an appointment with LLMD July 21st. I haven't starred doxy. In the last 2 weeks I had cellulitis, a yeast infection, a cold sore...so once I'm off the 6 pills a day antibiotics for this junk,...